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  1. #1
    Join Date
    Jun 2003
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    MI
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    2,543

    Diagnosed with Hypothyroid

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    I've just been diagnosed with hypothyroid. It came as quite a surprise. I went to see a new dr. about my bad back but, before I could be a patient, she had to do a full physical. I had bloodwork done last year on my thyroid and it came back normal. This dr. diagnosed me from noticing cracks on my heels and then running through a list of other symptoms: cold hands and feet, waking up at night, fatigue, weight gain, hair loss. She said I had all the classic symptoms.

    The fatigue has been horrible. Every time I see someone they comment on how tired I look. DH is skeptical that my tiredness is from thyroid and he thinks (although has not outright said it) that I am becoming lazy. He doesn't understand that it takes every once of motivation within me to do one simple task. He said he gets tired too but he just pushes through it. I wish I could push through this . . .

    Has anyone else had this problem? Does it get better with treatment? I'm worried I'm going to be really tired the rest of my life.

  2. #2
    Join Date
    Apr 2007
    Location
    Limbo
    Posts
    8,769
    I would guess there are plenty of us here who have hypothryroid but such extreme fatigue from just that makes me wonder.
    Did you get full blood labs?
    Did she check liver function?
    Quote Originally Posted by limewave View Post
    DH is skeptical that my tiredness is from thyroid and he thinks (although has not outright said it) that I am becoming lazy.
    That doesn't exactly help matters
    2008 Trek FX 7.2/Terry Cite X
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  3. #3
    Join Date
    Jun 2005
    Location
    Portland, OR
    Posts
    1,253
    Quote Originally Posted by limewave View Post
    Has anyone else had this problem? Does it get better with treatment? I'm worried I'm going to be really tired the rest of my life.
    Do a quick search on thyroid and you'll see a bunch of us here are working through some of these issues. I do recommend that you work with a doctor who can diagnose this properly with lab tests and adjust medication dosing conservatively. Even though doctors in the past have tested you and found nothing, the right tests should show a problem that explains your symptoms. I found my doctor via this link:

    http://www.thyroid-info.com/topdrs/index.htm

    Oh, and give hubby a whack upside the head while you're at it.

  4. #4
    Join Date
    Jan 2005
    Location
    Vernon, British Columbia
    Posts
    2,226
    I work with a girl who has been on medication for hypothyroid for a couple of years. You would never guess from her appearance or how she acts that she has any health issues at all.

    My only other experience with thyroid disease was my dear cat who was hyperthyroid. Both my cat and my co-worker took drugs, possibly even the same one: tapazole. With my cat I know it took some fiddling with the dosages to get it just right, which was sometimes humourous to watch for us, but was probably not as much fun for him. At least you will know what's going on!

    I'm glad you have a diagnosis, and I hope it is correct. Once you get the meds figured out you should have a normal energy level again!

    Hugs and butterflies,
    ~T~
    The butterflies are within you.

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  5. #5
    Join Date
    Jul 2006
    Location
    MD suburb of Washington, DC
    Posts
    1,832
    The tiredness is very real--when my meds are off, I feel a deep-down-in-my-core exhaustion that can't be cured with sleep or "pushing through it." I'm at the point now that when my endocrinologist asks how I'm doing, I can guess at my TSH values fairly closely based on my energy level.

    The good news is that hypothyroidism is well understood, and the treatments are fairly standard. Most people take T4/levothyroixine (aka synthroid or levothyroid) and for many that's all they need. I and several others on the board also take T3/liothyronine (cytomel).

    Unfortunately, despite my thyroid being controlled, I still struggle with achieving a healthy weight. Just know that feeling good is possible, but it may take a few weeks for the medications to kick in.

  6. #6
    Join Date
    Jan 2006
    Location
    Marin County CA
    Posts
    5,936
    Curious how old your kid(s) are and whether your symptoms started up after having a baby? Hypothyroid after childbirth is not uncommon - especially the auto immune stuff like Hashimoto's that may come when your immune system is in hyperdrive from childbirth, nursing, etc. That's what happened to me.

    I pretty much decided I was just going to be tired and miserable forever once I had my daughter and was trying to work full time. A year later, an alert GYN noticed my large thyroid and ran tests. Within a few weeks of being on the correct dosage I was my old self again. 10 years later, all is well. I'm still on a little pill every day, but I feel SO much better!!

    Good luck !
    Sarah

    When it's easy, ride hard; when it's hard, ride easy.


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  7. #7
    Join Date
    Jun 2003
    Location
    MI
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    2,543
    I have had the full lab work and have been officially diagnosed. Monday I have another appt. to talk about treatment. After talking to my mom, I learned that she has been on medication for hypothyroidism for almost 45 years and my grandmother had it too. Why she never shared this with me before . . . So, who knows how long I've had it, but the fatigue has definitely gotten worse since I had dd. I'll do a search of the forum and see what else comes up. I think I just need some encouragement as DH is so skeptical right now. Although, I can't blame him . . . he puts up with a lot

  8. #8
    Join Date
    Jun 2005
    Location
    Portland, OR
    Posts
    1,253
    Oh good, I'm glad to hear you had full labwork. While I believe in the importance of symptoms, I get a little leary of docs who only go by symptoms without the tests to back it up. And that's too funny (in an annoying way!) about the family history. "Oh yeah, didn't we tell you about that?"

    My BF was also a little skeptical of things as well. As he is starting to observe improvements he is coming around.

  9. #9
    Join Date
    Feb 2006
    Location
    San Antonio, TX
    Posts
    2,024
    Happy to report that I am one of those doing very well with treatment. The fatigue is real. When my meds are off I end up on my office floor sleeping in the afternoons. Finding optimal treatment isn't always easy. They will probably start you on synthroid (T4), and slowly titrate up your dosage. It takes *time* to see results too. Even though T4 normalized my blood work, I needed a T4/T3 combo therapy to have my symptoms controlled. I think my mistake was letting my internist treat me, rather than going to an endocrinologist sooner. FYI, I do best with 150 ug of synthroid (T4) plus 5 ug of cytomel (T3). T3 is the active form of thryoid hormone that is made from T4. For some reason, that small amount of T3 that was added to my dosing makes a big diff (it was actually not really added but replaced 25 ug of T4 since it is 4X more active).

  10. #10
    Join Date
    Aug 2002
    Location
    Sillycon Valley, California
    Posts
    4,872
    I've been on thyroid meds since I was 20 years old. When my levels are off I'm definately not myself. One friend described me as looking "gray" There was definately a lack of physical energy, and some mental sluggishness too.

  11. #11
    Join Date
    Apr 2007
    Location
    Limbo
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    8,769
    Since I have both liver disease and hypothyroid tired = normal.
    I wonder what I'd be like without the Synthroid? All day nap
    2008 Trek FX 7.2/Terry Cite X
    2009 Jamis Aurora/Brooks B-68
    2010 Trek FX 7.6 WSD/stock bontrager

  12. #12
    Join Date
    Oct 2005
    Location
    Shelbyville, KY
    Posts
    1,472
    I too suffer from hypothyroidism. I feel so blessed to have found a doctor who would listen to me, who would pay attention to my family history and who did not simply label me as a "depressed woman." I noticed a difference almost immediately once I started my medication and I continue to be amazed at what a positive difference it has made in my life.
    Marcie

  13. #13
    Join Date
    Jun 2007
    Posts
    12
    I too am hypothyroid and am on synthroid.

    My case began with Graves disease (hyperthyroid) and through radio-active iodine treatment became hypothyroid and have been taking synthroid for 7 years.

    I remember at first how devestated I was for having something wrong with me. Then after a bit of research found out that A LOT of women in particular have been through the same thing with very little side effects. Now through the medication, I don't even think of it as something wrong.

    I hope all these posts help you in coming to terms with it. Once the synthroid kicks in, I am sure you will feel much better. Good luck.

  14. #14
    Join Date
    Jun 2005
    Location
    steuben county new york
    Posts
    626
    I was diagnosed at age 37 or so with hypothyroid, by my GYN of all things. He had done some bloodwork as it hadn't been done in awhile at his office and noticed that my bad cholesterol was high, at this time I was strictly on a regimented weight loss and he said he found it hard to believe my cholesterol was high. He did a thyroid profile and levels were off. Once the thyroid was back to normal range, my cholesterol levels came back to normal levels also. He said he's diagnosed several hypothyroids by the cholesterol level..good thing, my drs office hadn't been telling me the results of my blood for the last 2 years, figured no news was good news. Needless to say, a new primary dr was in order.

  15. #15
    Join Date
    Feb 2007
    Location
    Denver Metro
    Posts
    834
    Like Shelly, it was my GYN who discovered my thyroid problem! She felt my glands thyroid and realized it was enlarged. I ended up having thyroid cancer and had a total thyroidectamy, but prior to having it removed I was yo-yoing between hyper and hypo thyroidism and I gained about 20 lbs(and this was my freshman year of college, so people kept trying to tell me it was my freshman 15 but I knew I wasn't eating that poorly!!).
    I have now been on synthroid for the past 4 years, maybe a little longer. It did take my body almost a year to get evened out weight wise, and I do get tired still every once in a while.
    Feel free to ask any questions, I will do my best to help with answers!

 

 

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