I'M SCARED!... Aspergillus Fumigatus?

[bmccasland]

Hang in there Clock!

Would moving to a desert (or is it dessert? ) be helpful? Let's see, one is very dry and sandy, the other has lots of sugar...

Just wondering if your lungs would be happier in a more arid environment.

Meanwhile keep on riding, and here's to more good days with happy lungs than days with unhappy lungs.

[snapdragen]

Oh clock, I'm sorry you're going through this. I went to http://www.aspergillus.org.uk and read a bit. It sounds like eventually you will get stabilized; hopefully you'll be able to get down to a low dose of prednisone.

Take care!

[ClockworkOrange]

All comments duly noted, lots of helpful advice.

BUT I GOTTA SHARE WITH YOU............... only seven days on and I have clocked up 48 miles!

I was seriously getting concerned I would not be fit enough to ride in the London Bikeathon on the 19 July but that should be no problem.

On another thread, some helpful TE member mentioned an extremely good book to get Nancy Clark's Sports Nutrition Guidebook. I tracked down a used copy on Amazon for only $6.84 and it's brilliant also in superb condition. No, I am not a sports person as such but it explains everything so well for me. In all honesty, my knowledge of all that sort of thing is crap, so I now read this book making copious notes.

It's funny how being ill can make you better??????

Clock

[jesvetmed]

Clock: Sorry you are going through this, but I love your attitude.
I'd say do the best you can with your nutrition, and keep exercising as much as you can.

I'd add in Omega 3/6 Fatty acids for sure, if you don't already. Excellent for the immune system, and helps with allergic stuff nicely over the long term.

I wish you the best and congrats on the 48 miles!!! Keep at it.

[ClockworkOrange]

Clock: Sorry you are going through this, but I love your attitude.
I'd say do the best you can with your nutrition, and keep exercising as much as you can.

I'd add in Omega 3/6 Fatty acids for sure, if you don't already. Excellent for the immune system, and helps with allergic stuff nicely over the long term.

I wish you the best and congrats on the 48 miles!!! Keep at it.

What a lovely reply, cheers.

Well, thanks to my book I have checked out Omega 3 and I am getting plenty of that, thanks to my daily tin of sardines............think I will be growing gills and fins soon...............ooops!

Omega 6 I suspect I get from most things I eat, so all is good. It does however, reiterate how important to eat my sardines.

Clock

[cylegoddess]

See, oakleaf and I are right on the allergie thingo. Blood test is best way.
Im so glad I got mine when I was ill. If it wasnt for those huge changes, Id still be REALLY ill, not just ill on and off.
Yes, I would say 48 km a week...IS ON YOUR BIKE!!

[ClockworkOrange]

See, oakleaf and I are right on the allergie thingo. Blood test is best way.
Im so glad I got mine when I was ill. If it wasnt for those huge changes, Id still be REALLY ill, not just ill on and off.
Yes, I would say 48 km a week...IS ON YOUR BIKE!!

Hiyeeee

Now c'mon my Ozzie mate, don't disrespect my distance, it's 48 miles or 77.25 km..............phew!

You are so right, if they had not done this particular blood test, I would still be struggling.

Three weeks today on meds and everything has settled down, especially the spaced out feeling. Suddenly discovered I so like cottage cheese, plain probiotic yogurt and my newest surprise is sweet potatoes...........yum! Then the naughtier things like dried apricots and all sorts of nuts, ummmm, meant to be in moderation.


Clock

[OakLeaf]

Suddenly discovered I so like cottage cheese, plain probiotic yogurt and my newest surprise is sweet potatoes...........yum! Then the naughtier things like dried apricots and all sorts of nuts, ummmm, meant to be in moderation.


Clock

Okay, I was going to spare you this story, but since you mention it...

One of my dogs had to take Prednisolone for an auto-immune blood disorder.

All her life she had a very sluggish metabolism, was hungry all the time and had to be on a pretty strict diet.

When we put her on Prednisolone, she was so hungry that she used to sit out on the porch at night and eat June bugs.

If you start getting an appetite for June bugs, talk to your doctor immediately.

[ClockworkOrange]

I have not laughed so much in a while.

OK, as you know, when somebody adds to a thread, we receive an email notification, so, I just logged off from here and noticed I had a new email.

Clicked on it and it opened half way down to read:

................. on Prednisolone, she was so hungry that she used to sit out on the porch at night and eat June bugs.

Phew, was I relieved to realise it was a dog, I was beginning to get slightly worried.

Clock

[cylegoddess]

LOL!!!!!!!!!!!!!!!!!!
If you get that hungry, it may be like post anorexia. ( you want to make up for lost time or something) .
Carrots,raw carrots, munchy yum. Celery, green apples, non nom nom!
Eat them all day( I like to eat when I m bored, bad habit.)

But 77 mile, WOWEEEE!!!! Your like a goddess!!! I want to be you!
Thats like so cool

and I think June bugs dont have many calories( the poor dog!!)

[Mistie]

I know a guy who has a platlet problem and goes on prednisone about 6 month out of a year. He went on them in April of last year and I didn't notice anything until we went back to school in September. He had that moon face, but he didn't gain much weight (he was on a low dose). He did tell me he had a ton of energy (soccer coach) and felt the best he had ever felt. After he took his last dose in November, it took about 1-2 weeks and he looked completely normal. I also have a young friend who takes a low dose of pred. for rheumatoid arth. She doen't have many side effects, except energy. I hope you get better soon!

[ClockworkOrange]

When I first started this thread, nearly 8 months ago I was scared but as time went on, I did not struggle with the medication too much.

Since November I have been tapering down, nobody warned me how hard that was going to be.

I started getting awful aches and pains in all my joints, putting my arms above my head was agony but that is all easing up.

Have not been on my bike properly for about 6 weeks and just as I felt fit enough, we have snow..........apparently the UK are having the worst winter for some 50 years!

Anybody else going on Prednisolone, just be wary of when you have to taper off the stuff, it MUST be very gradual.

On the funnier side, I thought I would share these Prednisone T-shirts with you.



This is the slogan on the first T-shirt. "Prednisone. The all the time eating, shaking, bone thinning, weight gaining, b*tch making, so you can never sleep again medicine"

Thankfully, I am getting back to normal.............well, sort of normal.

Clock

[tulip]

Clock, I hope your health continues to improve! Those t-shirts are very funny for those of us who have experienced prednisone. I was on it when I was in high school--what a time to get fat, mean, and scaly (my skin got sooo dry!) I had to quit the varsity basketball team and the following soccer season was terrible (I had been a very good soccer player and had planned to play in college, but prednisone took care of that, too!) Fortunately, I was on it for only a few months, but that was bad enough.

Best to you!

[lo123]

Anybody else going on Prednisolone, just be wary of when you have to taper off the stuff, it MUST be very gradual.

That's an understatement! I've been on low dose prednisone for just under 2 years. The stuff's a beast. Took me a year to drop from 10mg to 5mg a day. I can't seem to get below 5mg for more than a week or two before my arthritis flares uncontrollably

I need one of those shirts! Glad you're tapering off. Good luck!

[OakLeaf]

My dad's been tapering for three years, by 0.5 mg per month. He's down to 1.5 mg/day. Any faster gave him all kinds of trouble.