Fancy Schmancy Custom Road bike ~ Mondonico Futura Legero
Found on side of the road bike ~ Motobecane Mixte
Gravel bike ~ Salsa Vaya
Favorite bike ~ Soma Buena Vista mixte
Folder ~ Brompton
N+1 ~ My seat on the Rover recumbent tandem
https://www.instagram.com/pugsley_adventuredog/
I guess not either, too bad! Kid is about 16 and has been on meds for at least 6 years I think. There is this subset of young kids with CML in the western PA area, all of Jewish decent, all of families with known concentration camp history. It is an odd epidemiological mystery that I do think is being investigated. Or so I have been told anyway.
I think this girl's family has been, naturally, trying very hard to do marrow registries through synagogues and such, to try and increase the potential pool for their daughter.
Here is a comment I found on their website:
has registered over 8,000 people...
at drives held in 12 states...
and 22 marrow donors have been found for other patients looking for a match.
I hope they find a match for their daughter soon, but I'm proud I was a part of a drug that has been keeping her healthy for years.
Out of curiosity, Possegal, what drug and what was your involvement? Do you do research or something?
Sarah
When it's easy, ride hard; when it's hard, ride easy.
2011 Volagi Liscio
2010 Pegoretti Love #3 "Manovelo"
2011 Mercian Vincitore Special
2003 Eddy Merckx Team SC - stolen
2001 Colnago Ovalmaster Stars and Stripes