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  1. #1
    Join Date
    Jun 2002
    Location
    Mrs. KnottedYet
    Posts
    9,152
    Quote Originally Posted by Possegal View Post
    One of my best friend's from childhood, her oldest daughter's best friend is a CML patient. She has yet to find a match. She is Jewish and there is a problem for this subset of the population, as so many were wiped out during the Holocaust. Her donor pool is very small.
    I'm here! I'm here! Jewish and in the donor pool. Guess I'm not a match you your friend or I'd know

    Thank you for donating.
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  2. #2
    Join Date
    Oct 2007
    Location
    MD
    Posts
    1,626
    Quote Originally Posted by Trek420 View Post
    I'm here! I'm here! Jewish and in the donor pool. Guess I'm not a match you your friend or I'd know
    I guess not either, too bad! Kid is about 16 and has been on meds for at least 6 years I think. There is this subset of young kids with CML in the western PA area, all of Jewish decent, all of families with known concentration camp history. It is an odd epidemiological mystery that I do think is being investigated. Or so I have been told anyway.

    I think this girl's family has been, naturally, trying very hard to do marrow registries through synagogues and such, to try and increase the potential pool for their daughter.

    Here is a comment I found on their website:
    has registered over 8,000 people...

    at drives held in 12 states...

    and 22 marrow donors have been found for other patients looking for a match.


    I hope they find a match for their daughter soon, but I'm proud I was a part of a drug that has been keeping her healthy for years.

  3. #3
    Join Date
    Jan 2006
    Location
    Marin County CA
    Posts
    5,936
    Out of curiosity, Possegal, what drug and what was your involvement? Do you do research or something?
    Sarah

    When it's easy, ride hard; when it's hard, ride easy.


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