Sorry to ask again but...I need prayer's!

[LBTC]

{{{{{{{{{Brandi}}}}}}}}}}}}}} {{{{{{{{{{{{{{{Lorelie}}}}}}}}}}}}}}} {{{{{{{{{{Brandi's family}}}}}}}}}}}}}}

Sending big hugs and huge gentle calming butterflies that will provide clarity for the diagnosis, healing, light, calm, hope and remind all of you how much you love each other and how important that love is at a time like this.

Please continue to keep us posted.

Hugs and butterflies,
~T~

[Running Mommy]

Brandi- I know you are not with your sister, but is there anyone there besides her husband?
Having been through one too many situations like this, I know that as a parent she will not be hearing everything the doctors are saying.
She's in crisis mode right now, so there is only so much her brain can take in.
If possible is there someone who can get there that can take notes, ask questions, and possibly do some research on their own?
Taking notes is really important because you just will not remember everything that the doctor says. Esp. in her fragile emotional state.
So if there is no one else that can be there, encourage her to get a notebook to take notes, and to also write down questions as she thinks of them. It's easy to forget to ask everything- esp. since your time with the doctor is limited.

I'm really praying for all of you right now. I never like to hear about lumps or masses, esp. on the brain or chest.
BUT, that being said... Tread carefully when trying to do a cyber diagnosis.
running hubby had to have a chest xray before his knee surgery a couple of months ago. Just a precaution pre -op I guess. Well the doctor called and said that he saw a nodule on one of his lungs, and was sending him for a cat scan and referral to a pulmonologist. I freaked out and went on web md. I searched "lung nodule" and all kinds of cancerous "Omas" came up-
BTW- an "Oma" is a medical term for tumor (yes I took a medical terminology class back in the day) and they usually mean cancerous... I was freaking.
In the end- it was nothing. NOTHING. So I went through a complete freak out and was stressed for two + weeks for nothing.
Sooooo, tread carefully with good ol web md!
Well, my prayers are with you. Keep us all posted. Having met you personally I really feel like I "know" you, and I just want to reach out and give you a hug right now!
much love to you all
denise

[Triskeliongirl]

Hey Brandi- let us know if there is anything we can do. I am sure many of us would be willing to send cards if you can provide an address. Perhaps a 3 year old would enjoy getting post cards from all the diverse places that TE-ers live. Here is hoping for a happy ending. -e

[Mr. Bloom]

the saddness in my sister. I keep trying to get my sister to be stronge. And to not give in.

To your sister I would say:

There IS a peace that transcends understanding. I've experienced it.

BUT, our tendency is to 'freak out' over the possibilities first. We can do that, but at some point, it's beyond our control.

As loved ones, our role is to make sure that the best care and testing are provided and that our loved one is not 'lost in the system', but absent that involvement, it's out of our control - and we have to accept that.

"God grant us the serenity to accept the things we cannot change,
courage to change the things we can,
and wisdom to know the difference."

...as I ponder this, maybe I'm reminding myself of something that's easy to forget...

[Brandi]

Again thank you soooooooooooooooooooooooooo much for all of your words of wisdom. I can't wait to share this thread with my sister when she is feeling better.
It has been the hardest day so far. We had to wait almost all day for a bone scan. Good news is they ruled the mass on her head as INACTIVE! I love this word right now! My poor sister was so...boy I just can't describe it. I was being very calm with her on the phone. But when I would get off I would break down. But I never let her know or hear me.
We were so relieved when they Oncologist (not sure on the spelling there)said we could now rule out cancer. (BIG SIGH)
We still don't know what is wrong and they want to do a biopsy on the lumps on her forhead. But I am happy for now. It's not an answer to what is happening but for now it's ok.
I think they will be in the hospital for a while though. If anyone wants to send a card or something I will give you my sister's address. Just let me know and I will post it.Actually just pm and I will send it to you! I would say send to the hospital but things can change and I would not want them to go there and not make it to her. Let me know. I know a few of you have asked.
Happy new year!

[luv2ride94]

Hey Brandi, I'm just a kid, but I'm praying for your niece.

all the weird big words and stuff are scary and even scarier when you try to find a meaning for them i learned alot of them lately but just trust her doctors, knowing they were really great and ready for everything even when i wasnt makes it easier. Keep us posted please!

[Tuckervill]

I'm sending my positive thoughts your way, Brandi.

Karen

[Brandi]

Brandi- I know you are not with your sister, but is there anyone there besides her husband?
Having been through one too many situations like this, I know that as a parent she will not be hearing everything the doctors are saying.
She's in crisis mode right now, so there is only so much her brain can take in.
If possible is there someone who can get there that can take notes, ask questions, and possibly do some research on their own?
Taking notes is really important because you just will not remember everything that the doctor says. Esp. in her fragile emotional state.
So if there is no one else that can be there, encourage her to get a notebook to take notes, and to also write down questions as she thinks of them. It's easy to forget to ask everything- esp. since your time with the doctor is limited.

I'm really praying for all of you right now. I never like to hear about lumps or masses, esp. on the brain or chest.
BUT, that being said... Tread carefully when trying to do a cyber diagnosis.
running hubby had to have a chest xray before his knee surgery a couple of months ago. Just a precaution pre -op I guess. Well the doctor called and said that he saw a nodule on one of his lungs, and was sending him for a cat scan and referral to a pulmonologist. I freaked out and went on web md. I searched "lung nodule" and all kinds of cancerous "Omas" came up-
BTW- an "Oma" is a medical term for tumor (yes I took a medical terminology class back in the day) and they usually mean cancerous... I was freaking.
In the end- it was nothing. NOTHING. So I went through a complete freak out and was stressed for two + weeks for nothing.
Sooooo, tread carefully with good ol web md!
Well, my prayers are with you. Keep us all posted. Having met you personally I really feel like I "know" you, and I just want to reach out and give you a hug right now!
much love to you all
denise

It is just my sister and her husband right now. He's pareants have been coming by and visiting. As well as taking care of my older niece. And yes you are right about not getting all the info right. She babbles a bit on that stuff. If she had her computer in front of her she would be on top of things. I told her to let me know if she needs me to look up anything for her.
And thank you very much for you support. And I am waiting for her to ask me to come down there. A few of us are waiting. When the time is right I know she will ask.

[Brandi]

Hey Brandi, I'm just a kid, but I'm praying for your niece.

all the weird big words and stuff are scary and even scarier when you try to find a meaning for them i learned alot of them lately but just trust her doctors, knowing they were really great and ready for everything even when i wasnt makes it easier. Keep us posted please!

Thank you! Thank you very much! And it doesn't matter that you are just a kid on this site! Everyone is welcome!

[Brandi]

HI everyone. I wish I had some news to report but I don't.
My sister sent me a picture of the babay in the hospital this morning that almost broke my heart! She looks so sad..I am sure it is just how I am seeing it. But I have decided today I am going to put together a care package and send it to the hospital. To hopefully bring a little sunshine her way. If any of you would like to send a card or something here is her address at the hospital. it doesn't look like they will be letting her go home any time soon.
Her name is Lorelei Sellars in room 530 c/o Childrens hospital of Orange county, 455 South Main Street, Orange,Ca 92868
Just let them know you are friends of mine so they are not wondering.
They are doing a biopsy (sorry if spelling is wrong, my brain is not working these days) on her forhead to see what the lumps on her forhead are. I will update when we get info on that.
Oh and she LOVES lions. She has her favorite stuffed lion with her right now! he goes everywhere with her!

[sundial]

Brandi, I'm sorry to hear that your sister and niece are struggling with her illness. I wish for you and your family that the biopsies are benign and that your niece will be healed. I know how frustrating it is to be away from family during a crisis and my prayers and thoughts are with you also. Thank you for sharing the updates with us and we will all continue to keep you and your family very near in our thoughts and prayers.

Cathy

[Triskeliongirl]

What is the name of the hospital? I would be happy to send a card. Hugs...........

[Geonz]

Coming in 'way late but prayers and hugs here too....

[snapdragen]

What is the name of the hospital? I would be happy to send a card. Hugs...........

I believe it's Children's Hospital of Orange County.

[snowtulip]

Brandi, hugs and prayers going out to you and your family.