I probably missed it because there were a lot of posts to read, but I'm wondering about ON THE BIKE energy. I'm diagnosed with Celiac (confirmed via biopsy, genetic testing and IgG marker testing)-very sensitive, unfortunately. Had to get my own toaster at work, can't bring my own crust to a pizza joint, etc.
I saw a lot of discussion about wheat, but Celiacs cannot have barley or rye either. Also, oats are not ok as most are grown and sorted/stored with wheat and thus are contaminated. (Had to go to Mayo because I was non-responsive-the theory is that non-responsive Celiacs have a higher incidence of a deadly form of cancer, so had to get that ruled out).
I was diagnosed last July and just got the news today that my IgG marker is now close to a normal person's. This means my body has just stopped attacking my intestine and now I can start healing.
But I've been cycling (a lot!!) through it all. The problem is that I run out of energy at the hour mark. For whatever reason, I can't seem to access those stores you get to after the hour mark. And I can't seem to find much to consume to get the serious energy I need. By that point one is well into 500+ calories an hour; a serious defecit!!!
So, anyone here actually have Celiac and race? (not consuming wheat's tough-not consuming that plus barley, rye and oats is horrendous). If so, how do you get energy in while you ride? I'm set to try racing; how do you get calories while you race? What about distance riders? I'm set to try my first Century on Sunday and I'm sick to death of doing orange Gu and peanut butter nutrition bars (the only gluten free bars I can find). I tried Lara bars, but they seem to give me no energy.
Help!! I don't know any other serious cyclists who have Celiac, so I have no resources for the dangerous level of bonkage I'm getting into (I tend to forget where I am and how to get home when I bonk-and I bike alone a lot-so it's not just a matter of performance for me).
Thanks-I hope someone has some suggestions!
Lynne
ack!! Have to change my signature!! That was before I was diagnosed...I loved cheesecake and pizza. Yep, this has been difficult.
I get to have pizza after this, right? No...wait...cheesecake....