Huntingtons disease?

[Brandi]

Yea my neice has the juvenile form of it. And it is genetic.
I will go look up and see if I can fing the story, thank you for letting me know. It is very rare what she has at least for her age it is. Thank you for the warm wishes as well.

[Wahine]

Sending out good thoughts. Huntingtons is a terrible disease.

[Brandi]

Liza,
I just read the NY times article. Wow! I am beside myself for my niece right now. She is so young to have this. This is not going to be good or easy. Now that I realize all she will not be able to have or do. They say when it comes on young like this it is just a mtter of time. and there is not a lot of medicine to help it either. She can't have kids or might not even get married. Who wants to marry someone who is going to go insane basically. I am sad! My poor in-laws!
But thank you for telling me about the article it has made me more aware. I feel I should look into fund raising and what not to see if I can do anything.

[Ninabike]

Brandi, My thoughts and prayers are with your neice and her family.

[snapdragen]

Huntington's is a terrible disease, I'm sorry your niece has bin hit with this at such an early age.

A good friend of mine rode RAAM last year, he and his team raised funds for Huntingtons, they're doing it again this year. (Team 2 Cure Huntingtons Disease , if anyone is interested) His wife is at risk, another team member also has family at risk.

[RoadRaven]

What a tradgedy...

I know very little about Huntingtons and had never heard of it until I started looking at the background to rock music and discovered Woody Guthrie (who influenced Bob Dylan, who in turn influenced people like Elvis and The Beatles.....)

Woody was diagnosed with Huntingtons at 40, and his mother had died with it at 41.

Its a tragic illness, and all the more so for the youth of your niece.

The way I look at life, children choose their parents, and although it may be poor consolation, these two found their ways into your sister-in-law's life - albeit by different means. They will have chosen parents who have the potential to cope with this... I wish them strength.

[Brandi]

I have cried 4 times today! I am so sad for her and my sister in law.Thank you for all your prayers and good wishes. I will let them know they are in many hearts.
And so you all know my brother in law will provide my niece with only the best care so that is a good thing. I am sure there are a lot of people out there who have not had as good. i am starting to rethink how i look at some homeless people and the crazy people you see walking around. What if this is their problem too and there was just no one to help them deal with it or put them in a safe place to be taken care of. You just never know thier stiry do you?