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Thread: Thread Drift

  1. #301
    Join Date
    Jan 2006
    Location
    Marin County CA
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    5,936

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    Wow Knotted - that's a bit scary. Definitely go for the second opinion.

    I have to say your attitude seems to be terrific.
    Sarah

    When it's easy, ride hard; when it's hard, ride easy.


    2011 Volagi Liscio
    2010 Pegoretti Love #3 "Manovelo"
    2011 Mercian Vincitore Special
    2003 Eddy Merckx Team SC - stolen
    2001 Colnago Ovalmaster Stars and Stripes

  2. #302
    Join Date
    Apr 2006
    Location
    I'm the only one allowed to whine
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    10,557
    Oh, yeah, and twice I've had a doc tell me the issue I was complaining about was simply stress.

    #1 turned out to be a torn alar ligament in my neck.

    #2 turned out to be malignant melanoma.

    So I have a bit of hesitation surrounding accepting the diagnosis of "not breathing deeply enough due to stress".
    "If Americans want to live the American Dream, they should go to Denmark." - Richard Wilkinson

  3. #303
    Join Date
    Jan 2006
    Location
    Marin County CA
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    Yeah, you're not breathing deeply, so you have symptoms that seem to match up with brain lesions that aren't causing those symptoms?

    What-ever.

    Get a second opinion.
    Sarah

    When it's easy, ride hard; when it's hard, ride easy.


    2011 Volagi Liscio
    2010 Pegoretti Love #3 "Manovelo"
    2011 Mercian Vincitore Special
    2003 Eddy Merckx Team SC - stolen
    2001 Colnago Ovalmaster Stars and Stripes

  4. #304
    Join Date
    Aug 2002
    Location
    Sillycon Valley, California
    Posts
    4,872
    Quote Originally Posted by KnottedYet
    Needless to say, I'm going for a second opinion.
    Um....good idea!

  5. #305
    Join Date
    Jul 2005
    Location
    Seattle, WA
    Posts
    325
    Knottedyet,

    That sucks! I hate to be talked down to. Why can't they just be honest and say "I don't know what's causing your symptoms?"

    I hope you have some recommended physicians in your health plan.

    Quillfred

  6. #306
    Join Date
    Apr 2006
    Location
    I'm the only one allowed to whine
    Posts
    10,557
    My resting heart rate in the neuro's office (surely a stressful situation?) was 72 bpm.

    That doesn't sound like the heart rate of a stress-case.

    I'm getting a little p.o.'ed. Working myself into a frenzy. Aaaaak, I can feel my breathing... it's getting... shallower..... no, deeper..... no, it's stopped.... I'm the next David Blaine!

    (I'm such a snot. Health care workers are the worst patients!)
    "If Americans want to live the American Dream, they should go to Denmark." - Richard Wilkinson

  7. #307
    Join Date
    Jun 2002
    Location
    Mrs. KnottedYet
    Posts
    9,152
    Knotted, every Spring alergies? Yep, breathing's a good thing but see a second...third....Doctor.
    Fancy Schmancy Custom Road bike ~ Mondonico Futura Legero
    Found on side of the road bike ~ Motobecane Mixte
    Gravel bike ~ Salsa Vaya
    Favorite bike ~ Soma Buena Vista mixte
    Folder ~ Brompton
    N+1 ~ My seat on the Rover recumbent tandem
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  8. #308
    Join Date
    Apr 2006
    Location
    I'm the only one allowed to whine
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    10,557
    I asked about allergies and got poo-pooed. (as far as I know I have none). Kinda makes sense to me, too. I mean, if I don't have MS (which kicks in in the spring for a lot of folks) SOMETHING is irritating my CNS and/or the lesions in the spring.

    If this is something I just have to live with 6-8 weeks a year, fine. But if it's something I can mitigate to some extent, I'd certainly like to know.

    Still mighty happy it's not MS or cancer.

    -Kaja, breathing deeeeeeeply
    "If Americans want to live the American Dream, they should go to Denmark." - Richard Wilkinson

  9. #309
    Join Date
    Jun 2002
    Location
    Mrs. KnottedYet
    Posts
    9,152

    Ohhhhmmmmmm breathing out...breathing in....

    Alergies can be awful. We have a family friend who leaves Sonoma county each year and visits family in Japan while something blooms that would make life horrid for her. Then she comes right back. Not sure if she even knows what it is she just goes.
    Fancy Schmancy Custom Road bike ~ Mondonico Futura Legero
    Found on side of the road bike ~ Motobecane Mixte
    Gravel bike ~ Salsa Vaya
    Favorite bike ~ Soma Buena Vista mixte
    Folder ~ Brompton
    N+1 ~ My seat on the Rover recumbent tandem
    https://www.instagram.com/pugsley_adventuredog/

  10. #310
    Join Date
    Feb 2006
    Location
    The Red Stick
    Posts
    1,439
    I'm glad to hear you've had it confirmed that it's not cancer or MS. I'd definitely get a second and third opinion on the breathing part. That just sounds absurd. It sounds awfully seasonal to me (and apparently everyone else). I wonder why the doctors won't even consider that as an option. Odd.

  11. #311
    Join Date
    Nov 2005
    Location
    Chi-town
    Posts
    3,265
    Quote Originally Posted by KnottedYet
    My resting heart rate in the neuro's office (surely a stressful situation?) was 72 bpm.

    That doesn't sound like the heart rate of a stress-case.

    I'm getting a little p.o.'ed. Working myself into a frenzy. Aaaaak, I can feel my breathing... it's getting... shallower..... no, deeper..... no, it's stopped.... I'm the next David Blaine!

    (I'm such a snot. Health care workers are the worst patients!)
    It's true. We are tough patients. Have to back down, switch gears, and be a pro-active patient. I *know*, as a health care provider, how hard it is to say, "We don't know what is causing your symptoms". But "you have two lesions on your brain...relax" doesn't make sense to me, either. Keep at it. We'll be here, waiting to hear what docs #2 and 3 have to say! L.
    Run like a dachshund! Ride like a superhero! Swim like a three-legged cat!
    TE Bianchi Girls Rock

  12. #312
    Join Date
    Aug 2005
    Location
    North Central Florida
    Posts
    3,387
    My daughter stressed me out enough during her teenage years to give me brain damage!!!

    I met a doc at the coffee pot yesterday, drinking decaf, who has the exact visual disturbances I get, who called it caffeine-induced non-cephalgia! (Like a migraine aura, kind of, but never get the headache). It was so weird, he described what happens to me to a T, even the length of time the whole episode takes. I thought it was related to my hole in my heart, and I was having mini-strokes or something!! It's just my friend caffeine!!

    I am watching the new eagle nest. At first I was disconnected from the babies, but I really got attached to them yesterday. The best part is watching the sun come up, and mom finally get up off them, and seeing these huge babies she was sitting on!

    Buttercup walked around the yard and grazed yesterday, with her head out!
    ***********
    "...I'm like the cycling version of the guy in Flowers for Algernon." Mike Magnuson

  13. #313
    Join Date
    Aug 2005
    Location
    North Central Florida
    Posts
    3,387

    Allergies

    I had headaches _every_ day of my life, since teenage years, and when I moved to Florida, I started getting VERY sick, coughing, congested, etc. I was prescribed Zyrtec allergy medication, which I take year-round, and now I don't get headaches any more, ever. Who would have guessed...
    ***********
    "...I'm like the cycling version of the guy in Flowers for Algernon." Mike Magnuson

  14. #314
    Join Date
    Feb 2006
    Location
    The Red Stick
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    1,439
    Quote Originally Posted by Nanci
    I met a doc at the coffee pot yesterday, drinking decaf, who has the exact visual disturbances I get, who called it caffeine-induced non-cephalgia! (Like a migraine aura, kind of, but never get the headache). It was so weird, he described what happens to me to a T, even the length of time the whole episode takes. I thought it was related to my hole in my heart, and I was having mini-strokes or something!! It's just my friend caffeine!!
    If I drink caffeine, my peripheral vision gets wacky and kind of wiggles. My heart also gets fluttery. I stay completely away from caffeine now and I'm fine. Is this similar to what you get? I've never had a migraine, so I don't know what the aura is like.

  15. #315
    Join Date
    Jan 2006
    Location
    Pacific Northwest
    Posts
    3,436

    Hey, knottedyet

    Go girl on the doctor front. Some of them revert quickly to saying it's stress when what they mean is, "Um...I don't know." And sometimes their test results aren't exactly right either, so those lesions might or might not be real lesions, also. I've had some experience with that kind of thing. You have a ton of support on this forum.

    Hope to see you around the trails---how will I know it's you? I am riding an bleached celeste '06 Bianchi Eros Donna (or a bright blue Burley tandem), and usually have a soccer jersey on (yellow or red).

 

 

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