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  1. #1
    Join Date
    Aug 2010
    Location
    Wilts, UK
    Posts
    903
    A quick update. Indy, your heart rate monitor tip was invaluable. I'm doing fine with the c25k but may need to drop my pace a bit as my heart rate is getting quite high. Although I am running in Cornwall this week which is far hillier than Wiltshire.

    I'm doing fine off the meds but have the general feeling that I'm now closer to over than under. My 14/8 appointment was cancelled by the hospital and rescheduled to next week, so I should get feedback on the two scans and my July bloods. I'm booked in for bloods next week too so am psyching myself up to start the meds again once the results come in.

    Indy, I would not want to have the radioactive ablation either. I'm hoping that if/when the time comes to choose, I can continue on carbimazole.
    Dawes Cambridge Mixte, Specialized Hardrock, Specialized Vita.

    mixedbabygreens My blog, which really isn't all about the bike.

  2. #2
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    Quote Originally Posted by hebe View Post
    A quick update. Indy, your heart rate monitor tip was invaluable. I'm doing fine with the c25k but may need to drop my pace a bit as my heart rate is getting quite high. Although I am running in Cornwall this week which is far hillier than Wiltshire.

    I'm doing fine off the meds but have the general feeling that I'm now closer to over than under. My 14/8 appointment was cancelled by the hospital and rescheduled to next week, so I should get feedback on the two scans and my July bloods. I'm booked in for bloods next week too so am psyching myself up to start the meds again once the results come in.

    Indy, I would not want to have the radioactive ablation either. I'm hoping that if/when the time comes to choose, I can continue on carbimazole.
    Glad you're making good use of the HRM. Let us know what the bloodwork reveals. I'm sort of in the same boat as you right now. I went off my meds because my TSH was starting to inch up. I think my next round of bloodwork is next week. I'm curious to see what it reveals. I feel pretty good from an energy, exercise, sleep standpoint. My resting HR has been as low as 49 and as high as 55--which is great. So, I don't think I'm hyper. The only symptom that troubles me is that I sometimes feel really irritable, and sometimes irrationally so, and that's how I felt when I was first diagnosed. It's hard to know whether that irritability is from life stressors--which I have a few of--or the thyroid. I hate having to guess. I've long been very proactive at dealing with my emotional issues, but when I don't know whether they're true emotional issues or the byproduct of a thyroid disorder, it drives me crazy.

    Keep us posted!!!
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

  3. #3
    Join Date
    Aug 2010
    Location
    Wilts, UK
    Posts
    903
    It's difficult, isn't it? It's not as if we have a constantly stable hormonal landscape anyway.

    I saw a different endo this week and had more bloods done. I'm now very slightly underactive by TSH, and my FT3 and FT4 just squeeze into normal ranges. He thinks that I had thyroiditis in May which was on the way to righting itself when the carbimazole sent me underactive. So I'm still off the meds with more bloods and another endo appointment in 3 months. Apparently my levels came down too fast for it to be Graves, although there is a chance that it was Graves and I'm just very sensitive to carbimazole. The next bloods should help decide. I feel really tired though, I always used to be a morning person and now I find getting up and going hard work.
    Dawes Cambridge Mixte, Specialized Hardrock, Specialized Vita.

    mixedbabygreens My blog, which really isn't all about the bike.

  4. #4
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    Have they done any antibodies testing? That's the most conclusive way to determine if it's Graves. Could also be Hashi's. Antibody testing for that tends to be more suggestive than conclusive but can still be helpful.
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

  5. #5
    Join Date
    Aug 2010
    Location
    Wilts, UK
    Posts
    903
    My antibody testing was negative. I had a letter today saying that although my scan suggested Grave's Disease the uptake figures were too low for Grave's (1.6%). I'm just going to take things easy and enjoy the summer.
    Dawes Cambridge Mixte, Specialized Hardrock, Specialized Vita.

    mixedbabygreens My blog, which really isn't all about the bike.

  6. #6
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    That's good! Hopefully it was just thyroiditis!
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

  7. #7
    Join Date
    Aug 2010
    Location
    Wilts, UK
    Posts
    903
    Hopefully so! They still keep a close eye on thyroiditis here as apparently there's an increased risk of hypothyroidism afterwards.
    Dawes Cambridge Mixte, Specialized Hardrock, Specialized Vita.

    mixedbabygreens My blog, which really isn't all about the bike.

 

 

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