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  1. #1
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    Brandi, you might ask your ENT to run some bloodwork to screen for the antibodies that are associated with thyroid related autoimmune disease. It is possible for labs to be in a normal range in the presence of such antibodies.
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

  2. #2
    Join Date
    Feb 2006
    Location
    the foggy wetlands,los osos,ca
    Posts
    2,860
    I will do that!
    Meow!
    Blessed are the flexible, for they shall not be bent out of shape.
    > Remember to appreciate all the different people in your life!

  3. #3
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    Well, I met with my third, and hopefully, last endo today. He's just what I was hoping to find. He listened, didn't talk down to me, and offered understandable answers to my questions. He seems to more closely monitor his patients levels if they aren't yet stable. Plus, he uses an online portal for posting my labs and communication. I just felt a lot more confident talking to him than I did the other two docs. He's not going to push me toward RAI, which is a huge relief.

    On a related note, my skin has been really itchy lately and my palms red so he's running some liver tests. sure hope nothing is wrong on that count.
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

  4. #4
    Join Date
    Nov 2009
    Posts
    10,889
    Glad you found someone you like Indy, sounds like he is the one you need. Good luck on the liver tests!

  5. #5
    Join Date
    Jun 2006
    Location
    Newport, RI
    Posts
    3,821
    Yay Brandi! Glad it's not cancer!

    So happy for you, too Indy! Hopefully this one will figure you out!

    I'm still feeling good. My endo appt is in 2 weeks. I don't feel bad or anything, but I'm tired of waiting.
    '02 Eddy Merckx Fuga, Selle An Atomica
    '85 Eddy Merckx Professional, Selle An Atomica

    '10 Soma Double Cross DC, Selle An Atomica

    Slacker on wheels.

  6. #6
    Join Date
    Jan 2012
    Posts
    96
    Quote Originally Posted by indysteel View Post
    Well, I met with my third, and hopefully, last endo today. He's just what I was hoping to find. He listened, didn't talk down to me, and offered understandable answers to my questions. He seems to more closely monitor his patients levels if they aren't yet stable. Plus, he uses an online portal for posting my labs and communication. I just felt a lot more confident talking to him than I did the other two docs. He's not going to push me toward RAI, which is a huge relief.

    On a related note, my skin has been really itchy lately and my palms red so he's running some liver tests. sure hope nothing is wrong on that count.
    That sounds lovely. I do like my endo, but have yet to find one with online communication like that. It sounds awesome.

  7. #7
    Join Date
    Feb 2008
    Location
    Edge of Colorado Plateau
    Posts
    701
    Well, it's been a while since you have seen me on this thread. I hope all of you are getting the attention of those that need your attention. Go Patients!

    I'm feeling like I'm at my wits end almost. It's been good that I have not had to come here to complain or get advice etc. However, at my last endo appt. , now about 2 months away previous. He told me to cut my dose in half, so from 10mg to 5 mg once a day. I have since lost a job, become more brain foggy, not remembering, short attention span, some bone aches and lost over or at least 5 pounds. I'm sure there is more. My next appointment isn't until the 20th which will not be here soon enough. I can't wait to tell him to put me back at 10 mg so I can be myself again.

    Those that have had to deal with doctors experimenting with your chemistry. Now I understand fully. It's no fun for sure. I have told my hubby that the night before my next appointment to give myself a full 10 mg. he says to wait until I go see him. Aargh! Not sure how I will make it.

    Anyway, that is what is happening in my life these days. Hope to be a better person again after my appointment. Thanks for listening.

    Red Rock

  8. #8
    Join Date
    Jul 2008
    Posts
    492
    I don't think I have weighed in on this thread yet, but do have thyroid issues myself. Please call and leave a message for your doctor that your symptoms have worsened dramatically (be specific) since the medication change, and that you, at the very least, need to go back on the old dosage until another treatment is devised and plan to do so unless you hear back with a different treatment option. At my practice I leave messages with the doctor's nurse. If you did better on 10mg, then start doubling your dose and get a refill request sent in if you don't have enough to last until the 20th. No need to wait until the 20th to take action if you are suffering.


    Grits

    2010 Trek 5.2 Madone WSD, SI Diva Gel Flow
    2002 Terry Classic, Terry Liberator

  9. #9
    Join Date
    Nov 2007
    Location
    Western Canada-prairies, mountain & ocean
    Posts
    6,984
    Red Rock, I hope you get better!
    My Personal blog on cycling & other favourite passions.
    遙知馬力日久見人心 Over a long distance, you learn about the strength of your horse; over a long period of time, you get to know what’s in a person’s heart.

  10. #10
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    ((((Red Rock)))). I'm with Grits. Call your doc and see if you can, in the very least, get blood drawn sooner rather than later to see where your levels are so that you can make an appropriate dosing change. I'm sorry about your job, too. Hang in there and keep us posted.

    I'm telling you; better health through chemistry is tough. I've played around with my own Methimazole dosing (reducing not increasing) because, quite frankly, if I waited for my bloodwork and a doctor's order, I'd feel lousy most of the time.
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

 

 

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