
Originally Posted by
Catrin
Brandi, I hope that you are able to figure this out soon! It can be so frustrating to know that something is wrong....
Indy, good luck with the new endo! The new one sounds quite hopeful, in the end they have to be willing to actually listen and that can be challenging to find in a specialist. I've never quite understood that...
Thanks! I want to clarify that I have nothing against RAI. I've talked to a number of people, like yourself, who were really sick with GD and for whom RAI offered the best chance of better health. I get that. I'm just not convinced that it's the way to go with me.
I've finally managed to review most of my labs for the last 18 months and am convinced that I have a subclinical form of GD. With SGD, TSH is suppressed, but other levels (like Free T4) are within a normal range. SGD typcially requires less aggressive treatment. Some docs don't treat it at all, and just let it resolve itself. I don't think that's an option for me, but in the very least I think RAI is too drastic a step. My first doc used the "subclinical" term once early on with me, but I didn't understand what she meant at the time and we never revisited it in terms of deciding on treatment. The one and only time I suggested something that would have been consistent with the dx, she shot me down. If the new doctor concurs that that's what I have, I think it'll open the door to a more fruitful discussion about how best to treat me.
Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.
--Mary Anne Radmacher