Another Thyroid Thread.... (Redux)

[indysteel]

Oh, Brandi. I'm so sorry. I'm glad you're getting an ultrasound, along with the bloodwork. I hope they reveal what's going on and that you can start treatment soon. Keep us updated, okay?

[Brandi]

I am glad I am doing something about it. I can be a chicken when it comes to Dr's but I am taking this seriously. I am getting myself informed but not too much because I know you can freak yourself out if you read to much before you even know anything. Keeping myself busy every day is the key. Though my energy is not to great and we are having super rainy weather for days now.
Staying in good spirits but I am getting a massage tomorrow morning because the tension in my back and muscles needs to be released big time.
I am with good friends this weekend and hubby has been a sweet heart about helping me put up christmas decorations. Yup keeping busy. Will ride my trainer tomorrow get a good hour in that should help too.

[redrhodie]

Welcome to the fun house, Brandi. My saga is also continuing. I got a call from a nurse today saying they were referring me to an endo (finally) because my cbc was off (I wish I listened better, she may have said low) and my iodine was high, which is weird because I asked for it to be tested because I suspected it was low.

I have been encouraged that my hair has stopping shedding, but it still looks bad, dry and weird. I don't look healthy if my hair is the barometer. I hope the endo figures me out. Although I generally feel a lot better, I suspect there's still something wrong.

[Blueberry]

I'm off to an endo too. My doc was willing to up my dose, but she doesn't really feel comfortable with targeting a range to make me feel better (though if I do feel better and my bloodwork is good in 4 weeks, I have the option to not go and she'll keep me as is). At my request, she did test all of my antibodies, and I was negative for everything, so no Hashi's. I've been on 50 micrograms for a little over a week. I do feel better - but I did when I first started the meds too so not getting too optimistic. I'm also on 1000 mg Vit D daily at her instruction - probably a very good idea.

Of course, the scrip got screwed up and I had to talk to her nurse to get it re-called in - who argued with me about my dosage and said my values were "perfectly normal." I was more than a little irked.

[Brandi]

They said my blood test were normal. Kinda bummed in a way because I thought it might explain a lot. Have my ultrasound on thursday so we will have to see what that comes up with. It all sounds so fly by the seat of your pants with this stuff.
Blueberry it sounds like a rough road I hope it gets better for you soon.
I just want answers as to why my thyroid is swollen.
Sending lots of light and love to all of you!

[Blueberry]

Find out what your numbers were. I have learned that not all docs agree on the ranges, and you can still be "within range" and have symptoms. I would definitely make an appointment with an endo. That really stinks. Hugs....

[indysteel]

Find out what your numbers were. I have learned that not all docs agree on the ranges, and you can still be "within range" and have symptoms. I would definitely make an appointment with an endo. That really stinks. Hugs....

+1. The ultrasound will hopefully be informative.

@Blueberry, your doctor sounds utterly frustrating. I'm so glad you're talking to an endo. although from my experience, some are better than others. I'm hopeful that it will be a step in the right direction.

I just made an appointment today with a third (yes, third) endo. I decided that I wasn't going to waste any time with the second one; I doubt that we'll be able to see eye to eye if she just wants me to do RAI. I think I finally found an endo in Indy that actually specialized in thryoid issues. He treats a friend of mine who has been resistent to traditional treatments, including anti-thyroid meds. Now, I don't necessarily have the same resistance, but I am encouraged that he's been willing to work with her and her parameters. That suggests to me that he listens and is receptive to more than one approach. I'm in the process of culling all of my lab results and diagnostics over the last year and a half. My appointment is on January 18th. Fingers are crossed.