I wish I could help, Indy. I know nothing about thyroid disease, except that after reading all of these threads, sometimes I think this is what my real problem is.
I know I have enlarged thyroids, but after 3 years in a row of ultra sounds and no change, my endo said to take a break. She's the same one treating my osteoporosis, so I think I may talk to her. My borderline high bp, only at times, when most of the time it's low, and my semi- high HR when exercising (not scary high, but high) makes me wonder. All of your experiences doesn't make me hopeful that she even knows anything, but I may look into this. Generally, I like this doc and she takes a lot of time with me when I go in for the bone issues.
Keep us posted. Crying is good.