Another Thyroid Thread.... (Redux)

[emily_in_nc]

That's really encouraging news, Blueberry. Glad you found a doc you like and feel like you can trust. That's so important!

[indysteel]

The roller coaster that is my thyroid continues. My latest bloodwork shows a TSH of .004. So, i'm back to being hyperactive. Way hyperactive. Just to recap: I went on methimazole in August of last year after being diagnosed with Gravaes. It promptly put me into a hypo state, no matter how miniscule the dose. My doc finally took me off of it to see if I was in remission. Even after I stopped taking it, my TSH was still in the hypo range. I was tired and down all the time. So, she put me on Synthroid in July. At the six-week mark, my TSH was .6, i.e, getting close to hyper (which is generally considered .3). I continued to dose, although some days I would only take half a pill because I was started to feel kind of hyper. I saw the endo again this past Friday, and my bloodwork shows that I'm definitely hyper again. I'm not supposed to take the Synthroid again. I talked to her nurse and asked for a full blood panel order, i.e., Free T3, Free T4, TSH and my antibodies testing, in four weeks time. She's going to talk to the doc. I honestly have to wonder if I have Hashi's not Graves. Whatever I have, I can't seem to find normal anymore. And I'm beyond upset about it. Sobbing uncontrollably upset. I don't know who I am anymore or what I'm supposed to feel like.

Clearly, I need to get a second opinion. I just wish someone could explain what's going on to me.

[Catrin]

Oh Indy, I am so sorry that you are on this roller coaster and hope your endo (or another one) can help you figure this out sooner rather than later!

[indysteel]

Thanks, Catrin. I do, too.

What really pisses me off is that this ruined an other lovely day off. I had just gotten home from Brown County and my first MTB ride since I rode with you. It was a great day for it. The trails are in okay shape. You can tell that between the erosion of the summer drought and the recent rains, they've deteriorated to some degree. Roots and rocks are more exposed. Most of the trails were dry, but I had to ride through a small stream near the end of the NTL.

Okay, I'm stopped sobbing for now. I haven't cried like that in ages. It was cathartic.

[Catrin]

Thanks, Catrin. I do, too.

What really pisses me off is that this ruined an other lovely day off. I had just gotten home from Brown County and my first MTB ride since I rode with you. It was a great day for it. The trails are in okay shape. You can tell that between the erosion of the summer drought and the recent rains, they've deteriorated to some degree. Roots and rocks are more exposed. Most of the trails were dry, but I had to ride through a small stream near the end of the NTL.

Okay, I'm stopped sobbing for now. I haven't cried like that in ages. It was cathartic.

Sounds like the cry was needed, and hopefully things will go up from here.

I am not surprised the trails show the effect of the drought plus hard rains. I was there last weekend, but only rode Pine Loop and about half of the NT Connector with someone new to the trails there. I didn't notice anything, but then again those are the trails with the most gentle grade and Pine doesn't have any roots or rocks to speak of. Hoping to get some riding in Friday and Saturday before the Breakdown.

[redrhodie]

Oh, Indy, that really sucks. It's so hard waiting for time to pass so you can re-test, especially when you feel badly.

I wish I could do something for you. Virtual hugs are all I got.

[Blueberry]

Indy-

I wish I had words of wisdom to offer - just lots and lots of sympathy. Feel what you need to feel, and then move forward with finding a doc to give you a second opinion.

[redrhodie]

Indy, what dose of Synthroid were you on?

[indysteel]

Thanks, ladies. Virtual hugs are most welcome.

Red, I've been on 25 mg--I think the same as you. It's weird, because I actually feel okay these days. I don't sleep real soundly, and my HR has been elevated a bit with exertion. Resting HR is just fine. I haven't felt the crazy anxiety/irritability that I initially felt when first diagnosed. This is why I'm going to insist on a full blood panel. The antibodies associated with Graves can skew TSH; it's really better with autoimmune related thyroid disease to dose from Free T3 and Free T4 levels. I'd really like to see where those are. Of course, if my endo appreciates that distinction, she's never let on. Ugh, I need to find a new doc.