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  1. #1
    Join Date
    Sep 2007
    Location
    Uncanny Valley
    Posts
    14,498
    Thanks for the update - hope he continues to improve.
    Speed comes from what you put behind you. - Judi Ketteler

  2. #2
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    Quote Originally Posted by oakleaf View Post
    thanks for the update - hope he continues to improve.
    +1.
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

  3. #3
    Join Date
    May 2007
    Location
    Katy, Texas
    Posts
    1,811
    Resident FIL is finally out of the hospital after 10 days and is currently at a skilled nursing/ rehab facility. He is more or less oriented which is a great relief after all of the dementia, lack of memory and connection he was exhibiting in the hospital. He is still not eating, (constipation and acid reflux) and his neuropathy pains are coming back which is worrisome as we are fairly certain that it was the combination of urinary tract infection and neuropathy pain meds.

    In the meantime he is at least getting up out of bed, and is doing some physical therapy. Some days are better than others and on the bad days he has the personality of a 2 year old alternating with aggressive anger. Today I took him a home cooked casserole that is one of his favorites he took one bite, threw it at me and told me it tasted like crap. Strangely enough though he always manages to choke down the ice cream.

    I am feeling very hostile and frustrated in spite of managing to spend at least an hour and a half in the gym with the trainer a couple of times a week and an hour or two on the indoor bike each day. Basically I am trying to work myself to exhaustion so I can creep into bed and sleep in the few hours that I am actually home.

    DH goes directly from work and spends a couple of hours with him, tries to help with dinner etc and if feeling equally frustrated and exhausted.

    All dad wants to do is "get the hell out of here and get back to my life." Unfortunately he seems unable to equate that goal with the fact that if they get him up in a chair and then ask him if he can walk three feet to the toilet and he refuses, he can't come back home any time soon. Ditto about eating, cooperating with the physical therapist etc.

    Day by day- at least the kids understand about coming home to a very low key Christmas.
    marni
    Katy, Texas
    Trek Madone 6.5- "Red"
    Trek Pilot 5.2- " Bebe"


    "easily outrun by a chihuahua."

  4. #4
    Join Date
    Feb 2005
    Location
    Concord, MA
    Posts
    13,394
    Marni, I really feel for you. Keep your sense of humor.
    2015 Trek Silque SSL
    Specialized Oura

    2011 Guru Praemio
    Specialized Oura
    2017 Specialized Ariel Sport

  5. #5
    Join Date
    Sep 2007
    Location
    Uncanny Valley
    Posts
    14,498
    (((((((marni))))))))

    I thought about you when I read this the other day about caregiver burnout. It's mostly someone's personal story - feel free to ignore. However you choose to do it, do take care of yourself. And vent here, any time...
    Speed comes from what you put behind you. - Judi Ketteler

  6. #6
    Join Date
    Apr 2011
    Posts
    117
    Marni - this sounds frightening and frustrating for all concerned. Will spin the wheels for you and your family.

  7. #7
    Join Date
    May 2007
    Location
    Katy, Texas
    Posts
    1,811
    Quote Originally Posted by OakLeaf View Post
    (((((((marni))))))))

    I thought about you when I read this the other day about caregiver burnout. It's mostly someone's personal story - feel free to ignore. However you choose to do it, do take care of yourself. And vent here, any time...
    excellent article- much to think about. Thanks oakleaf.
    marni
    Katy, Texas
    Trek Madone 6.5- "Red"
    Trek Pilot 5.2- " Bebe"


    "easily outrun by a chihuahua."

 

 

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