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  1. #1
    Join Date
    Oct 2005
    Location
    Israel (Middle East)
    Posts
    1,199
    I think those forums are good if you have a really specific question eg Did you gain weight on Aromasin, Do you have joint pain?
    Better than wading thru technical and medical stuff. Which is what you are "employing" your oncologist to do (or have done) actually.
    But you can freak yourself out if you read just for general info and women's stories. The latter you can get waiting for appointments and as the chemo drips () and people are friendlier when face-to-face than when online too.

    All you need is love...la-dee-da-dee-da...all you need is love!

  2. #2
    Join Date
    Jun 2006
    Location
    Newport, RI
    Posts
    3,821
    Just had the MRI. I held still very well for the whole time. The noise was not that different from some of my bf's pieces of music (he'd consider that a compliment). He plays electronic music. I felt right at home. I couldn't hear much of the actual music I was listening to (I chose The Shins, which was too soft), but I could hear the song changes so I had a good idea of how much time had passed. That really helped. I kept telling myself to relax, which also helped. I went back to my childhood, when I'd "dead-man's float" in the swimming pool, holding my breath for as long as I could to freak out my parents. Funny what you think about in those things.

    It took a half hour, not including set up time. You lie face down with your breasts in 2 holes in the table, with an IV in your arm, and headphones for the music. It's like a massage table. Just one tech, and she was excellent. For anyone who has to have one of these, it's not bad. The half hour didn't feel as long as the crit race I did last summer. That was way worse.

    Next appt next week, and I probably won't know more until then.
    '02 Eddy Merckx Fuga, Selle An Atomica
    '85 Eddy Merckx Professional, Selle An Atomica

    '10 Soma Double Cross DC, Selle An Atomica

    Slacker on wheels.

  3. #3
    Join Date
    Jul 2009
    Posts
    101
    Quote Originally Posted by redrhodie View Post
    Just had the MRI. I held still very well for the whole time. The noise was not that different from some of my bf's pieces of music (he'd consider that a compliment).
    That's how I felt too, like I was at a rave. I actually didn't mind it but I was ready for it to be over when they put the cold dye in. One issue with MRIs is false positives; I got two which were proven as such in a followup ultrasound / biopsy. So don't freak, the false positives are common, wait till you know definitively what is going on before you freak

    I haven't chimed in till now, but feel free to PM. I had stage 2 er+ pr+ diagnosed in Feb 2010. I had a mastectomy followed by a tram flap reconstruction. Am now on Tamoxifen. A couple minor things going on here and there but I am doing great.

    I've been keeping you in my good thoughts (I've been lurking here.)
    Last edited by szsz; 12-13-2011 at 04:58 PM.
    Giant TCR C3 :: Specialized Jett 143
    Specialized FSR :: Terry Butterfly
    Vintage Giant Road Bike :: Specialized Lithia


  4. #4
    Join Date
    Aug 2005
    Posts
    4,516
    Continuing to think of you, red - and send positive vibes.

    I'm impressed with how calm, cool and collected you seem to be. You certainly don't have to be/aren't expected to be - but it's nevertheless impressive.
    Most days in life don't stand out, But life's about those days that will...

  5. #5
    Join Date
    Jun 2006
    Location
    Newport, RI
    Posts
    3,821
    Thanks so much szsz. How long until you could ride again after that surgery? Does the tummy part have a big impact on cycling? I understand a little what you've been though, mentally, with making tough and scary decisions. I can't imagine the physical part. So glad you're here and doing well!

    Blueberry, I'm handling it okay. Anger comes out on the bike, the rest of the time, I'm not angry or even especially sad about my diagnosis. I'm scared of things being painful and my body looking bad. I know it shouldn't matter as long as I'm healthy, but it matters.
    '02 Eddy Merckx Fuga, Selle An Atomica
    '85 Eddy Merckx Professional, Selle An Atomica

    '10 Soma Double Cross DC, Selle An Atomica

    Slacker on wheels.

  6. #6
    Join Date
    Jul 2009
    Posts
    101
    Quote Originally Posted by redrhodie View Post
    Thanks so much szsz. How long until you could ride again after that surgery? Does the tummy part have a big impact on cycling? I understand a little what you've been though, mentally, with making tough and scary decisions. I can't imagine the physical part. So glad you're here and doing well!
    Let's see, I had the surgery in April 2010 and another little followup surgery at the end of May but looking back at my training records I started out with shorter (12-14 miles) rides in June and throughout July and August with a 20+ mile ride here and there. I haven't really done a ride over 50 miles since the surgery, but a lot of that has to do with opportunity. I need to get myself a group to ride with consistently now.

    (And, we did ski the following Feb and it was fine.)

    Also, although I was in the hospital for 4 days, I was up and walking the hallway by the 2nd day and I walked every day after. Little by little, but just getting up and moving.

    My surgeon recommended the tram / stomach surgery so as to have minimal impact on cycling and skiing. The other alternative is a surgery where they take the muscle from your back, but he said that would be a no-go with me being a cyclist.

    The best part of the whole thing was being so healthy going into it. Having good muscle tone to begin with, as I'm sure you do.

    Whatever you decide, you are going to be fine! And you are going to look great.
    Last edited by szsz; 12-14-2011 at 07:25 AM.
    Giant TCR C3 :: Specialized Jett 143
    Specialized FSR :: Terry Butterfly
    Vintage Giant Road Bike :: Specialized Lithia


  7. #7
    Join Date
    Jun 2006
    Location
    Newport, RI
    Posts
    3,821
    Wow, szsz, it's amazing that you were back on the bike so soon. That is very encouraging!
    '02 Eddy Merckx Fuga, Selle An Atomica
    '85 Eddy Merckx Professional, Selle An Atomica

    '10 Soma Double Cross DC, Selle An Atomica

    Slacker on wheels.

 

 

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