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  1. #1
    Join Date
    Mar 2010
    Posts
    209
    Linda, I'm so sorry. I don't have any information to share but I do have my prayers and I'm a big believer in those.

    It will be a long road with lots of ups and downs. With a good medical team and the love and support of friends and family (fellow TErs), the burden will lighten.

    You are in my prayers,
    dt

  2. #2
    Join Date
    Jul 2008
    Location
    Chicago suburbs
    Posts
    1,222

    Update...

    So today's appointment with the medical oncologist was...in my sister's own words..."a real slap in the face". Yeah...it's bad. The tumor is in the body of the pancreas and is wrapped around several important blood vessels that feed other nearby organs...therefore, it cannot be removed. Because of this, it is classified as Stage III cancer. Ironically, it has not spread to other areas...that we know of. But because of the blood vessels involved, it's a serious situation. Obviously, we will be seeking a 2nd opinion with a surgical oncologist to determine if it really is inoperable. As for prognosis, the doctor didn't seem like she wanted to pinpoint a timeframe, but kept throwing out "10.5 months" as an "average"...and that was WITH a chemo/radiation program.

    I still have hope that seeing a surgical oncologist might see things differently and be able to offer another option for her. She is due to get a detailed CT scan of the pancreas on Wednesday, to get a clearer image of the blood vessels...hopefully this scan will bring a glimmer of hope.

    Thank you all again for your thoughts & prayers!

    Linda
    2012 Seven Axiom SL - Specialized Ruby SL 155

  3. #3
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    Wow, Linda. That's a lot for you and your sister to take in. I hope the CT scan proves helpful and more hopeful than today's consult. I'm sure I speak for everyone here in saying that we're rooting for her. Thoughts and prayers and (((()))).
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

  4. #4
    Join Date
    Nov 2009
    Location
    West MI
    Posts
    4,259
    Quote Originally Posted by indysteel View Post
    Wow, Linda. That's a lot for you and your sister to take in. I hope the CT scan proves helpful and more hopeful than today's consult. I'm sure I speak for everyone here in saying that we're rooting for her. Thoughts and prayers and (((()))).
    For certain. (((Linda))) I hope the 2nd opinion gives a more positive prognosis for your sister.
    Kirsten
    run/bike log
    zoomylicious


    '11 Cannondale SuperSix 4 Rival
    '12 Salsa Mukluk 3
    '14 Seven Mudhoney S Ti/disc/Di2

  5. #5
    Join Date
    Oct 2007
    Location
    MD
    Posts
    1,626
    A comprehensive cancer center is a great place for your sister to be seen. I'm glad she's going to an appointment there. Ask the surgeon if there is potential that if chemo/radiation shrinks the tumor enough, could it then make surgery an option? I have no idea, but that has happened with people I know with other cancers. My sister wasn't a surgery candidate for another reason but then after the chemo/radiation, she was. It wasn't successful, but they were able to try. But she's still doing very well. She doesn't have pancreatic mind you, but sometimes it helps to hear of other people doing well beyond what the median survival time is.

    And that is the only number a doctor can really give you, median survival. At this time, half of the people with this stage of this disease are still alive, half are not. Then there are many reasons why what happens to the population isn't indicative of what will happen to any one person. No one person is a statistic. No doctor knows how long anyone has to live. They know what the population statistics tell them. I'm always dismayed when I hear of doctors telling anyone "you have X months to live". This is all horrid enough, without being told a defined timeframe. My sister was told that 23 months was the median for her disease, that was hard enough. I'm glad she wasn't told that she had 23 months to live. Next week will be 49 months.

    I'm so sorry you and your family are going through this. I understand all too well how it feels to sit there feeling so helpless while your sister is in a battle like this. It sounds like you are doing everything you can for her, but the powerless feeling totally s*&#s. I have a good bit of experience in this area - both professionally and 49 months as a sister to a cancer patient. If I can do anything, don't hesitate to PM me.

    You and your sister are in my prayers!

  6. #6
    Join Date
    Sep 2006
    Location
    Mississauga -a "burb" outside Toronto
    Posts
    648
    Your sister has a wonderful sister. Strength and healing are sent your way.


    "You can't get what you want till you know what you want." Joe Jackson

    2006 Cannondale Feminine/Ultegra/Jett

    2012 Trek Speed Concept 9.5/Ultegra/saddle TBD

  7. #7
    Join Date
    Sep 2006
    Location
    Washington, DC
    Posts
    1,632
    Thinking of you and your sister this morning. Best wishes for today's appointment.

 

 

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