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  1. #31
    Join Date
    Sep 2006
    Location
    Washington, DC
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    1,632

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    Quote Originally Posted by emily_in_nc View Post
    Cancer S U C K S!
    +1 with Emily.

    Pancreatic cancer is an aggressive beast. Use this weekend to learn everything possible about it -- if you cannot access a published paper, some of us might be able to. I'd work the phones this weekend trying to get the names of the best surgical oncologist for a Whipple procedure, the best place for chemo... Is she in the Chicago area? Some of us could ask, too. I would not mess around with it. I'm very aware the news is shocking, but you need to put that aside and get ready for a battle.

  2. #32
    Join Date
    Apr 2010
    Location
    Erin, Ontario
    Posts
    188
    Hugs and prayers to you and your family.

  3. #33
    Join Date
    Feb 2006
    Location
    the foggy wetlands,los osos,ca
    Posts
    2,860
    Try to think good healing thoughts as much possible even when it doesn't seem like you can anymore. Enjoy your sister and the time spent with her and don't dwell on what is happening unless she wants to talk about it. None of us know what is going to take us out which is why everyday should be spent like it is our last. And don't avoid her and make sure other people don't. I have had experience with friends and family saying "Oh they are going through so much I don't want to bug them" then the one who is sick is wondering where everyone is (seriously)
    . This is the time when they should be all around her giving her love and support.
    I will say a healing prayer and include her in my thoughts today. I am on a job on an island so I will take a moment and look out over the ocean and send healing thoughts her way!(((((hugs))))) Take deep breaths!
    Blessed are the flexible, for they shall not be bent out of shape.
    > Remember to appreciate all the different people in your life!

  4. #34
    Join Date
    Jul 2008
    Location
    Chicago suburbs
    Posts
    1,222
    Quote Originally Posted by pll View Post
    +1 with Emily.

    Pancreatic cancer is an aggressive beast. Use this weekend to learn everything possible about it -- if you cannot access a published paper, some of us might be able to. I'd work the phones this weekend trying to get the names of the best surgical oncologist for a Whipple procedure, the best place for chemo... Is she in the Chicago area? Some of us could ask, too. I would not mess around with it. I'm very aware the news is shocking, but you need to put that aside and get ready for a battle.
    Yes, we are just on the outskirts of Chicago...about 12 miles west of the city. A friend of mine has an uncle that is a doctor at Northwestern Memorial Hospital, and she asked her uncle for the name of the best cancer doctor on their staff. He came back with Dr. Steven Rosen - he is head of the cancer center. So far, that is the only name I've gotten...and I am encouraging my sister to see him as a 2nd opinion. The oncologist that my sister has an appointment with on Monday, is out of Elmhurst Memorial (which is where her GI doc is from)...her name is Dr. Amaryllis Gil. If there is anyone from the Chicagoland area that has any other doctor suggestions, please let me know. Thanks!

    Linda
    2012 Seven Axiom SL - Specialized Ruby SL 155

  5. #35
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    Linda, this is all so sad to read. I hope you're hanging in there. Start rallying all the troops if you can. I've had some good friends go through similar things and everyone stepped up to make meals, do yardwork and cleaning and the like so that they didn't have to worry about anything other than their health. Facebook is a great tool for this. It's sometimes hard to ask for help, but those that love your sister and you will be chomping at the bit for something constructive to do to help.

    I'll keep you guys in my prayers. I'm truly sorry you're having to go through this.
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

  6. #36
    Join Date
    Aug 2008
    Location
    Chicagoland
    Posts
    836
    ((((Linda and sister)))) Thinking of you guys. Keep us posted on what comes from the appointment on Monday.

    Cancer truly does suck
    Andrea

    1988 Bridgestone mixte
    2002 Trek 2200
    2011 Surly Long Haul Trucker

  7. #37
    Join Date
    Sep 2006
    Location
    Washington, DC
    Posts
    1,632
    Some information sent via a PM.

  8. #38
    Join Date
    Jun 2006
    Location
    Newport, RI
    Posts
    3,821
    I'm thinking about you and your sister right now. I hope today's appointment goes well! Sending positive vibes!
    '02 Eddy Merckx Fuga, Selle An Atomica
    '85 Eddy Merckx Professional, Selle An Atomica

    '10 Soma Double Cross DC, Selle An Atomica

    Slacker on wheels.

  9. #39
    Join Date
    May 2006
    Location
    Hillsboro, OR
    Posts
    5,023
    Wow, Linda - that sucks. I'm sorry to hear this. I hope today's appointment holds some good news for you both.

    I'll be thinking of you!
    My new non-farm blog: Finding Freedom

  10. #40
    Join Date
    Mar 2010
    Posts
    209
    Linda, I'm so sorry. I don't have any information to share but I do have my prayers and I'm a big believer in those.

    It will be a long road with lots of ups and downs. With a good medical team and the love and support of friends and family (fellow TErs), the burden will lighten.

    You are in my prayers,
    dt

  11. #41
    Join Date
    Jul 2008
    Location
    Chicago suburbs
    Posts
    1,222

    Update...

    So today's appointment with the medical oncologist was...in my sister's own words..."a real slap in the face". Yeah...it's bad. The tumor is in the body of the pancreas and is wrapped around several important blood vessels that feed other nearby organs...therefore, it cannot be removed. Because of this, it is classified as Stage III cancer. Ironically, it has not spread to other areas...that we know of. But because of the blood vessels involved, it's a serious situation. Obviously, we will be seeking a 2nd opinion with a surgical oncologist to determine if it really is inoperable. As for prognosis, the doctor didn't seem like she wanted to pinpoint a timeframe, but kept throwing out "10.5 months" as an "average"...and that was WITH a chemo/radiation program.

    I still have hope that seeing a surgical oncologist might see things differently and be able to offer another option for her. She is due to get a detailed CT scan of the pancreas on Wednesday, to get a clearer image of the blood vessels...hopefully this scan will bring a glimmer of hope.

    Thank you all again for your thoughts & prayers!

    Linda
    2012 Seven Axiom SL - Specialized Ruby SL 155

  12. #42
    Join Date
    Sep 2006
    Location
    Central Indiana
    Posts
    6,034
    Wow, Linda. That's a lot for you and your sister to take in. I hope the CT scan proves helpful and more hopeful than today's consult. I'm sure I speak for everyone here in saying that we're rooting for her. Thoughts and prayers and (((()))).
    Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Continue to learn. Appreciate your friends. Do what you love. Live as if this is all there is.

    --Mary Anne Radmacher

  13. #43
    Join Date
    Nov 2009
    Location
    West MI
    Posts
    4,259
    Quote Originally Posted by indysteel View Post
    Wow, Linda. That's a lot for you and your sister to take in. I hope the CT scan proves helpful and more hopeful than today's consult. I'm sure I speak for everyone here in saying that we're rooting for her. Thoughts and prayers and (((()))).
    For certain. (((Linda))) I hope the 2nd opinion gives a more positive prognosis for your sister.
    Kirsten
    run/bike log
    zoomylicious


    '11 Cannondale SuperSix 4 Rival
    '12 Salsa Mukluk 3
    '14 Seven Mudhoney S Ti/disc/Di2

  14. #44
    Join Date
    May 2006
    Location
    Georgia
    Posts
    584
    Quote Originally Posted by nscrbug View Post
    I just learned this evening, that my older sister has been diagnosed with pancreatic cancer. She is 51yo...we are 7 years apart. I'm not sure how to even process this devastating news. She just had her biopsy on Tuesday, and today she was informed that there were cancer cells found in the biopsy. The next step is for her to see an oncologist to discuss how advanced it is and treatment options. I know this is an aggressive and very deadly form of cancer that progresses quickly, but that's all I really know about it. Can anyone here shed some light on this? Thanks.

    Linda
    Big hugs to both of you. I'm truly sorry to hear this. My dad had this type of cancer. I'll keep in my prayers. Jennifer

  15. #45
    Join Date
    Jul 2008
    Location
    Chicago suburbs
    Posts
    1,222

    another update

    So my sister cancelled her CT scan that was scheduled for today because she did manage to snag an appointment with a 2nd opinion doctor at Northwestern Memorial - a comprehensive cancer center here in IL. Her appointment isn't until Friday, June 17th...but they scheduled her for their own comprehensive CT scan this Friday, June 10th. Then on Monday, the 13th, she meets with another medical oncologist...before finally meeting with the surgical oncologist on the 17th. It seems like a long waiting process, but I suppose that is to be expected when you are dealing with one of the best cancer centers in the entire state. She has actually been going to work these past few days because she is bored sitting around the house. She says the Vicodin is keeping the pain at bay, for the most part.

    Anyways, that is the latest scoop.

    Linda
    2012 Seven Axiom SL - Specialized Ruby SL 155

 

 

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