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  1. #1
    Join Date
    Sep 2008
    Location
    Beautiful NW or Left Coast
    Posts
    5,619
    I'm sorry to hear that your hubby has such a scary disease. i know nothing about it but I wanted to let you know that I care.
    I like Bikes - Mimi
    Watercolor Blog

    Davidson Custom Bike - Cavaletta
    Dahon 2009 Sport - Luna
    Old Raleigh Mixte - Mitzi

  2. #2
    Join Date
    Mar 2006
    Location
    Belle, Mo.
    Posts
    1,778
    Sandra! Haven't heard from you in ages. So sorry about what you are going through. I will keep you in my prayers.
    Claudia

    2009 Trek 7.6fx
    2013 Jamis Satellite
    2014 Terry Burlington

  3. #3
    Join Date
    May 2007
    Location
    Katy, Texas
    Posts
    1,811
    sandra,

    hang in there, I know nothing about that type of cancer, but I have found wonderful and positive support here, especially when I need to vent. I hope that you can do the same, we are all here to help. In the meantime, I will add you to my "spinning my wheels prayer wheel" and will occasionally stomp and sing some positive energy your way.

    marni
    marni
    Katy, Texas
    Trek Madone 6.5- "Red"
    Trek Pilot 5.2- " Bebe"


    "easily outrun by a chihuahua."

  4. #4
    Join Date
    Oct 2007
    Location
    MD
    Posts
    1,626
    I know a lot about the drugs for it, but can't speak to how it feels for the person. A good friend's step mother has it and they've done a fundraising walk for the MM research foundation for years. I know she's been doing well on treatment for quite a long time, but I don't know the step mother very well, so can't really even tell you much about what all she's going through.

    I will add my thoughts, prayers and well wishes though.

  5. #5
    Join Date
    Jan 2006
    Location
    Pacific Northwest
    Posts
    3,436
    I have a good friend who was diagnosed with it a few years ago. She went through a successful autologous stem cell transplant, I guess two years ago now, and has been in remission since then. My understanding is that it is seen as more manageable a disease than it used to be. I wish both of you the very best.
    "My predominant feeling is one of gratitude. I have loved and been loved;I have been given much and I have given something in return...Above all, I have been a sentient being, a thinking animal, on this beautiful planet, and that in itself has been an enormous privilege and an adventure." O. Sacks

  6. #6
    Join Date
    Sep 2007
    Location
    Uncanny Valley
    Posts
    14,498
    Adding my well wishes and prayers. (((((sandra)))))
    Speed comes from what you put behind you. - Judi Ketteler

  7. #7
    Join Date
    Apr 2006
    Location
    somewhere between the Red & Rio Grande
    Posts
    5,297
    My husband's grandma had it but it appeared as a mass on her leg in the muscle. It didn't spread to the blood. She was able to control it (for now) with radiation but they are concerned it will return, unfortunately with this type that is the biggest risk. I do know it is very manageable which is what they told her if the radiation didn't work. I don't have a lot of input on it, wishing your husband the very best!
    Amanda

    2011 Specialized Epic Comp 29er | Specialized Phenom | "Marie Laveau"
    2007 Cannondale Synapse Carbon Road | Selle Italia Lady Gel Flow | "Miranda"


    You don't have to be great to get started, but you do have to get started to be great. -Lee J. Colan

 

 

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