((((colorisnt))))
My mother has it, and it's not easy for her or for the people who love her. I have no advice, but I just want to say that I'm very proud of you for speaking up and acknowledging that it's a disease. Good for you for sticking with treatment all these years.
Nothing you can do about your family's reticence to talk about it. Remember, you cannot change their actions, you can only control how you respond to them.
Best to you, and keep us posted. You are right about talking about labial relief--that was very funny!