I can't recall when she was first diagnosed, it must be close to 20 years ago now. In the early days she popped aspirin a lot, as her doctor told her she can take it to control her pains. Then she developed an ulcer from it, and that pretty much turned her off to any medication.

Her usual complaints are her eyes hurting her (she wears swim goggles around the house because air hurts them), and she can't eat dry foods very well. She used to have really nice teeth, now they are capped with veneers (bad job, too, as she cheaped out and went to a bad dentist, another story) and she has constant dental issues due to lack of saliva.

bmccasland, my mother's sensitive to sunlight, yes. When we went to Las Vegas last December, I had to give her my sunglasses because she was complaining about the light.

Over the last couple of years I've tried giving her this supplement and that (hyaluronic acid, serrapeptase), but she doesn't stick to them and dismisses them as useless after only a couple of days (she thinks supplements should work immediately like drugs).

Mommybird, I'm sorry to hear about your sister. Have they made an actual diagnosis? We have one guy on the job who no longer can work because of this "mystery" illness that's sidelined him with various strange symptoms. After years and years of trying to diagnose, they more or less gave up and said it was chronic fatigue syndrome. It sounds like a fluffy disorder, but his symptoms are rather nasty, so they ought to rename that syndrome to better address the severity of some cases. I hope your sister's condition will improve!