I am also a great believer in the 2nd opinion route and a believer in that going to a surgeon nets you surgery. One of the questions my husband, a physician, would have you ask. "If this was YOUR _____ (child, mother, husband, father etc...insert proper person), what would you do?" He often recommends that to people who ask him, as a friend, what to do in a certain medical situation (no particular situation). If there is any hesitation, then get ANOTHER opinion. I think the suggestion to go to a pediatric gastroenterologist was very good. This seems to be a problem that needs further work-up and expertise.

Good luck and I send good karma and healing thoughts your way.