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Thread: Bummer
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01-29-2009, 05:50 AM #1
Sue
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Bummer
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So my little brother has been sick ... he gets sick (he's one of those people who can't push-til-it's-over - it lays him up with mono or pneumonia or...) ...
... but it seems this time, it's "Wegener's granulomatosis" - he'd been hoping that he'd get something they could name after him when he was confounding them, at first. Seems prognoses are better than in the past - where 80% would die within a year - but the treatments are nasty and toxic. Here's hoping for strength...
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01-29-2009, 06:00 AM #2
its not easy being green
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01-29-2009, 06:12 AM #3
Can't never could!
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Seems like something they would have on House. Here's to a speedy recovery for your brother.
Amanda
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01-29-2009, 06:26 AM #4
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Sorry to hear this Sue. Wishing him a full recovery.
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01-29-2009, 06:48 AM #5
wannabe submarine gazelle
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all the best strength to your brother -
but usually, when a syndrome is named, it is named after (read: all the fame and glory goes to) the physician who publishes the paper, not the patient.
It's a little secret you didn't know about us women. We're all closet Visigoths.
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01-29-2009, 07:33 AM #6
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Wishing you all strength to heal. I am sorry to hear of your bad news.
Red Rock
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01-29-2009, 07:47 AM #7
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(((((((Sue & brother))))))) Sending prayers for healing and serenity.
Speed comes from what you put behind you. - Judi Ketteler
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01-29-2009, 09:35 AM #8
Sue
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Much appreciated
His fiancee already refers to this as "the latest House episode." Hoping it has a good reconciliation.
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01-29-2009, 11:41 AM #9
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Wishing strength to your family.
I ride my bicycle to ride my bicycle
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01-29-2009, 12:45 PM #10
Grizzled
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Sue, I'm so sorry! Wishing you both lots of luck and strength and good healing.
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01-29-2009, 02:52 PM #11
Home of pea gravel
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o!
Oh dear!
I had to look the illness up as it's something i've never heard of!!!
(((Geonz & family))) Take care
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01-29-2009, 04:39 PM #12
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I'm so sorry to hear that, Sue. I'll be keeping your brother in my thoughts and wishing him a speedy and full recovery!
Brandy
Be the change you want to see in the world.
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01-29-2009, 06:05 PM #13
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Sue:
I currently work in paeds rheumatology (we deal with autoimmune disorders, not just "arthritis") and we've had a rash of Wegner's diagnosed within the last year. Age ranges from 6-17. Some have had a rocky course, others have done very well. The treatments are very toxic and not without side-effects.
I send you virtual strength and pray that your brother does well with his treatments.
"You can't get what you want till you know what you want." Joe Jackson
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02-01-2009, 04:13 PM #14
Sue
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He was doing so dreadfully Thurs and Fri that they started the steroids early... but he has improved greatly Sat. and today. Tomorrow he starts the chemo... really appreciate the thoughts. Five days of toxicity... here's hoping...
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02-01-2009, 04:22 PM #15
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Geonz, my cuz went through this some years ago, when he was in his 20s, I think. He's been fine now for many years, so take heart as best you can while you're waiting...
"My predominant feeling is one of gratitude. I have loved and been loved;I have been given much and I have given something in return...Above all, I have been a sentient being, a thinking animal, on this beautiful planet, and that in itself has been an enormous privilege and an adventure." O. Sacks
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