Good luck and best wishes that you can get this resolved Crankin.
Undiagnosed medical problems are literally a pain to live w/
The following is in regards to the FMS not the arterial iliopathy
I was diagnosed w/ fibromyalgia 8 years ago after having horrible symptoms and doctoring in vain for 12 years. It was finally when I went to a psychiatrist because I thought I was depressed and losing my mind that he put all the symptoms together and sent me to a rheumatologist.
I am now on a very low, 5 mg, dose of cyclobenzaprine (flexerol) daily and that has been a miracle drug for me. I quit eating wheat products after discovering I was allergic to them (and oats), I built muscle through activity and weight lifting which I have found to be the most beneficial (but the most difficult to be motivated to do) and now rarely do I have pain or flareups.
Barometric pressure changes still can wreak havoc on the ol' bod though. I just call them my FMS days and get on w/ life.
BTW
FMS is a real syndrome. They just don't know what causes it or how to treat it or cure it.
I have it, my older sister has it, my mother has it and my 21 yo daughter has it (luckily she was able to be diagnosed and treated quickly so she hasn't had to suffer for years like the rest of us)
It's about the journey and being in the moment, not about the destination