Yep, I already have an appointment with the head of endovascular surgery at the Brigham. Thank G-d I live in a place that has the cream of the crop medical facilities. It helped that I have been there before, so it was easy to make an appointment.
Exercise is making this worse; but in very specific ways. I don't feel "sick" like I did last fall. In retrospect, my symptoms are very related to the cycling season. I was fine last January until the end of March... When I tried to explain what happens when I ride, i was dismissed by everyone. The other things I have had, besides the weakness and deteriorating performance, such as groin and stomach pain are directly related to this syndrome and are often misdiagnosed with all the diseases that everyone thought I had... in addition to being crazy! Sure, I was crazy, because no one believed me and then I got even more upset when I was told to "just ride 5 miles!" When I called to make the appointment and I asked for someone who had worked with endurance athletes, the receptionist didn't flinch and knew exactly what I was talking about. If nothing else, I will be reassured. My concern now is that I am having pain at rest, not just during high level cardio.
I guess my main concerns are: 1) I am allergic to IV contrast dye, which will make diagnosis difficult, although the first test does not involve dye, and 2) I am petrified of surgery.. not the surgery, but the anesthesia. I have weird allergic reactions to lots of things and I've only been put under once. I know 2 people who died from allergic reactions to anesthesia.
I am not afraid of medical stuff, per se, but these two things sort of weigh on my mind.
If I really do have Fibromyalgia, I wouldn't mind trying supplements, but there's a lot of crap out there on the Internet about this, and in my mind they're all schemes. I've been doing acupuncture for about a year; it did help my anxiety last fall/winter, but I am not sure it's helped the pain. I did PT for 6 months and it helped a bit, but it didn't make anything go away.