Frustrated!!

[Aggie_Ama]

Thanks for the virtual hugs, I feel like I am on a pity party but I like Miranda I just thought I wouldn't see these again and not so soon after my neuro claimed me to be in remission!

About my friend.... Really he is a sweet guy we see a couple times a year. When the first flare of the tremors happened DH was interning away, my friend took me for margaritas (alcohol supposedly helps but not me), to a movie, anything to cheer me up. But being just a friend he wasn't there when I was crying my eyes out because I couldn't control it and he wasn't there when my mother drug me to Baylor because she was scared of how depressed I got. He is just the type that sometimes is a jerk and would die if he knew it hurt. It actually was a little smirk inducing, I couldn't keep the ice in my drink from clanking. But yes anyone else would have really hurt and if I put him in his place for it he would have felt terrible. I still should have told him where to go, he and I even talked about it being back but I just don't think he always connects with sensitivity. There are people you can excuse, this is one of the few but only this once.

Sarah- Yep I had complete strangers ask me if everything was okay. Tell me to take a deep breath and it would pass. Doesn't work that way like Beth said I can't tell my hand or leg to stop! I hope your friend is able to find something for hers. I read an excellent book she might look into "I Can't Stop Shaking". I got it through www.wemove.org, a fabulous resource for movement disorders. Both really helped me before because I didn't know anyone else with this and was desperate to hear it wasn't just me even if I felt like it.

Tulip- I am trying to stay off valium or getting primidone until I go to the neuro. I have never seen a competent one when I was completely drug free. I plan to write (or type depending on how bad they get) my questions so I can't forget a one. Like why on earth is this weight correlated and what new meds are out there.

We had discussed Botox but he would send me back to Baylor for that because he doesn't feel anyone in Austin in qualified to do it on my dominant hand. But that isn't a guarantee and it is hard to get insurance to cover. My mom said just no deep brain stimulation which is a scary treatment for the worst conditions.