Frustrated!!

[TahoeDirtGirl]

The only thing I could see would be that when I did WW for a short time, it sort of encouraged you to eat packaged stuff and do the point thing. Not sure if you're eating packaged stuff but I would start looking at some of that. I try not to use any artificial sweetners because I realized it was driving my eating off the charts. I was always hungry! Hope you figure it out...

[Aggie_Ama]

I have an appointment Monday with my GP and the vampires. I guess by end of next week I will know if my metabolic panel looks normal. My insurance covers a nutrionist so I will keep that in mind as well.

it may be something in your diet/ daily regimen. I have to avoid caffeine

Did you do a food diary? I write what I eat but not drink. I am voluntarily weening myself off caffeine starting tonight. Right now I drink 24-60 (!) ounces of Diet Dr Pepper a day plus 64+ ounces of water (hmmm wonder why I am always peeing?). I really cannot stand to sit at a desk all day and not drink so I am constantly drinking which keeps me from constantly eating. But I want to get that to 12 oz soda and eventually ZERO. I am not even sure it is the caffeine, maybe it is the fizz and I can do Sprite or something caffeine free? Food for thought although I must say limiting caffeine before did not provide any noticeable results which was annoying.

The only thing I could see would be that when I did WW for a short time, it sort of encouraged you to eat packaged stuff and do the point thing. Not sure if you're eating packaged stuff but I would start looking at some of that. I try not to use any artificial sweetners because I realized it was driving my eating off the charts. I was always hungry! Hope you figure it out...

I am not eating much pre-packaged food. Just the lunches which I have done for 5 years and sometimes yogurt. But I am looking at what I ate the days I have had the tremor.

[Fredwina]

I used to keep a food diary.

[Aggie_Ama]

Ugh!!!! I went to my family practice doctor today and after doing the monkey tests (neuro baselines) he diagnosed a tremor. He is having me do a fasting blood panel in the morning just to be sure but he really thinks it will be unremarkable. At this point I haven't decided if I will make an appointment with my neurologist on one hand the leg tremor is much worse than before but the hand one is not. I hated primidone and the foggy feeling it left, I just don't want to take meds for this until it gets too bad to ignore. So I have to see what the blood test shows before calling my neurologist. I think I am in denial right now, I was supposed to be the rare person that it went away on.

On a side note, my doctor from today joined the practice earlier this year and I decided to switch from the founding doctor I had seen. I really like my current doctor they should make his bedside manner part of the curriculum in med school!

[redrhodie]

Oh, that's too bad! I hope you can get it in control again without meds. I think you should go off the diet and see what happens.

[Aggie_Ama]

Red- My doctor seemed supportive of Weight Watchers as a method. He was very interested in the correlation of weight loss and tremor flare up. He said he was headed to lunch after my appointment and planned some case reading, guess he was really interested. I am taking it day by day and week by week.

Still in denial about the return and the possibility of anti-convulsants again. I haven't hit rock bottom like before and I am still somewhat winning over the tremor at the moment. I will see if they get worse before calling the neurologist. Definitely still in denial that they will get worse.

[tulip]

Do you drink alot of caffeine--coffee, sodas? I can't imagine they would be helping the situation. I'm glad you have a doctor who seems interested and has good manners!

[Miranda]

Hey hun... btw, I DO totally know what you mean about having to fight to get tx. I have had my share of exhausting go-arounds with the docs and ins co about things. For them, it's just another pa. For us, it's our lives feeling like they are literally falling apart before your eyes when you can't control what you body is doing! That alone is enough to make a person crazy. Bleah.

I'm glad you like the new doc. That sounds like it was a good move. Sometimes fresh eyes can over turn a rock that wasn't before. I think sometimes when the docs get frustrated that they don't have the answers, they just shut down. Some just have bed side manners like that of an sob.

IMHO , I wouldn't wait to call the neuro doc. Mine was always hard to get into for one thing. Maybe some new meds may have come out? I know what you mean about that too. Ghee, which of the lesser evils do I pick here??? Feel messed up by drugs... Or... feel messed up by the condition?

One of my things I got for tx was the IVIG (gamma globulin therapy). I'm sure you already know this, but it's a blood by product that's the antibodies extracted. Blood banking tid bit, it takes 10,000 donors to make up ONE bag of that stuff. I figured by the end of my ditch effort tx attempts I have a population of six figures worth of other peoples blood parts in me. Hmmm... wonder what effects progressive science will find from that 20yrs from now.

But, I was happy to get it, as it was the only option for me. Again, lesser of the evils from ideal (be well). So thank you to folks who give blood. I don't know what would have happened to me without you.

I thought for sure too, just like you, that I was the lucky rare one that got better at the neuro's office. I told him, "I think it must be nice to see one of your pa get cured! ...I know with most of the population you work with that does not happen". Well, sure enough, when the beast reared her ugly head again, I was SOOOO devastated. I thought, is God punishing me for "bragging"... I TAKE IT BACK! But, it's just how the neuro junk goes sometimes. Actually, for me, when I tried to ignore it, I found I started having almost panic attacks... denial fighting reality in my mind. Then I'd say, "ok, Miranda, take yourself to the doc GF cuz this is not working either".

Maybe if you call and make the neuro appointment, it will bring good Karma? The beast will crawl back in it's cave at the thought of a fight. Fwiw. I wish I had a better answer. But just know you have positive thoughts coming your way. However you play it. (((hugs)))

Miranda