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Thread: Graves disease

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  1. #1
    Join Date
    Jul 2006
    Location
    Central TX
    Posts
    757
    Thanks girls. I'm actually doing a good job remembering to take my meds this time.
    I have lots of research to do still and I need to get more organized about it, and start taking notes. So far I have just been reading.
    As far as my doctor, she is a Endo doctor that I am just now seeing, hadn't seen her before. The one I was frustrated with was GP doctor, he always seemed to blow me off thinking I was fine. I have been telling him for a year, that my heart rate was so high and I was worried something was wrong with my heart, then I talked to him about my ankles swelling so bad and he gave me a water pill, but did nothing to see why this started happening to me, then I complained about the heat, and thought I was menaupausal but he said as long as I was having regular periods I was not yet going through menapause. So, I kept walking away with no answers. Problem is I'm on an HMO and I have to have him refer me before I can see anyone else. I have often said I need to change from him, I've seen him since I was 19 or 20 and I think he has gotten complacent with me. I dont' know, but I guess he didn't think about my graves disease coming back anymore than me, since I am sooo heavy and weight loss is a normal sign. Problem is, he did nothing to try to find out why I was so miserable. I never even said anything to him about my moods. LOL

    Okay, now I have a question, I can't see the doctor again until after I have been on this medicine for a couple weeks and then she is going to check my levels again. Anyway, she told me not to get my heart rate up, but I can't do anything without getting my heart rate up.
    Can anyone tell me why they wouldn't want you to exercise and get your heart rate up to an areobic level just because of this. I would think exercise would be fine, and that since I have had this going on for a year now, and nothing has happened and my heart is still fine, that I would still be good to exercise.
    I rode this morning, but only went 11 miles and kept an eye on my HR monitor and tried very hard to go slow and not push, but still at my highest point it got to 170 when climbing some hills, is that bad? Most of the time it was in the 140 and 150's.
    I dont' know, I just can't see how they expect you to sit and do nothing.
    I need to get all my questions together about this stuff before I go in again. I have an appt for labs, and then I guess they will call me to see her again, like they did the last time after labs.

    Sorry this was so long. I've searched everywhere trying to find some information about exercising with this and cannot find anything except for people to say not to do much.

    Thanks for all the support girls.
    Donna

  2. #2
    Join Date
    Jan 2005
    Location
    Vernon, British Columbia
    Posts
    2,226
    DDH - the experience I draw from with a thyroid issue was my darling fur-baby who was hyperhtyroid in his last few years. I hope you don't mind. Anyway, his poor heart really took the brunt of it. With his thyroid cranking, his heart worked overtime and became thickened (cardio myopathy) and, well, I don't remember all the things wrong with it, but the heart specialist vet told us after the ultrasound that those three problems can't all exist in one heart. He truly was on borrowed time that last couple of years.... From what they told me, I gathered that the extra work his heart was doing, just becuase his thryoid was making it run faster, overdeveloped the muscle. The muscle tissue gets so thick that the heart eventually doesn't do it's job properly as it sort of gets in the way of itself and also loses it's elasticity.

    Based on the little I know about it, I'm thinking your endo doc is concerned that the more your heart works at that higher HR, the more potential there is for thickening. While the treatments should get your thyroid back to normal, it's possible that the damage it's doing to your heart in the meantime might not be reversible. Your body is precious - every part of it. Sometimes, as hard as it seems, you need to do just the opposite of what you think you need to do, to give it a chance to heal.

    Sending you butterflies of patience, calm, healing and hope. You'll get through this.

    Hugs,
    ~T~

    ps - if you are interested in an alternative, natural method of testing and balancing your systems, that can work in conjunction with your medical treatment, let me know, and I'll tell you my own story and find someone in your area you can see.
    The butterflies are within you.

    My photos: http://www.flickr.com/photos/picsiechick/

    Buy my photos: http://www.picsiechick.com

  3. #3
    Join Date
    Sep 2005
    Location
    Trondheim, Norway
    Posts
    1,469
    Hugs and butterflies from over here too, DDH. If it's any comfort, I cling to a line from a folklore lecture I have on an old LP. Supposedly this is something some really old Mormon elder said when asked how he'd managed to live so long:

    "The secret of a looong life ... is to get yourself an incurable disease ...
    and take care of it!"

    So take care, DDH. Take it easy these two weeks, then ask the endo doc about the HR issue when you go back for your next check-up on the meds.
    Half-marathon over. Sabbatical year over. It's back to "sacking shirt and oat cakes" as they say here.

 

 

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