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  1. #1
    Join Date
    Apr 2006
    Posts
    3,867
    Vibing!

    Karen

  2. #2
    Join Date
    May 2005
    Posts
    546
    To All Celestial & Earthly Powers That Be:

    ENOUGH ALREADY. GET YOUR BEST PEOPLE ON THAT CHILD AND HER DOCTORS. NOW.

    Thank You.

  3. #3
    Join Date
    Jul 2007
    Location
    foothills of the Ozarks aka Tornado Alley
    Posts
    4,193
    Maybe, just maybe the doctors can find out what's wrong with her........please. Sending you lots of hugs from me and slurpy kisses from the furkids.

  4. #4
    Join Date
    Feb 2006
    Location
    the foggy wetlands,los osos,ca
    Posts
    2,860
    Thank you all for all the strngth you are sending her way. They sent them home last night with no answers. I can not believe this. How can they not figure this out? I haven't talked to my sister today yet to see how Lore is doing. When I find out I will post.
    Blessed are the flexible, for they shall not be bent out of shape.
    > Remember to appreciate all the different people in your life!

  5. #5
    Join Date
    Apr 2006
    Location
    somewhere between the Red & Rio Grande
    Posts
    5,297
    Brandi- (((HUGS))) I admittedly have only followed parts of Lorelei's struggle.

    Has your sister sought out a specialist in immune systems disease or maybe infectious disease (according to my doctor friend that is where the brilliant minds go)?

    I have a neurologic disorder that was out of whack adn the doctor I was seeing didn't listen to me at all. I was able to self-refer my self to a center at Baylor College of Medicine (the best research center in TX) and finally get support and answers. My husband was misdiagnosed with everything from anxiety problems to Strep virus in his stomach to hepatitis before a surgeon stepped in and got him one of the best gastroenterologists in Austin. Only then was he properly diagnosed with Crohn's disease and given care that has really improved his quality of life.

    Lorelei, her sister and parents deserve so much more than "we don't know". (((HUGS and PRAYERS)))
    Amanda

    2011 Specialized Epic Comp 29er | Specialized Phenom | "Marie Laveau"
    2007 Cannondale Synapse Carbon Road | Selle Italia Lady Gel Flow | "Miranda"


    You don't have to be great to get started, but you do have to get started to be great. -Lee J. Colan

  6. #6
    Join Date
    Feb 2006
    Location
    the foggy wetlands,los osos,ca
    Posts
    2,860
    My sister says things are a bit better this morning. Which is good. Lore was finally walking this morning even though she says her leg still hurts.
    Blessed are the flexible, for they shall not be bent out of shape.
    > Remember to appreciate all the different people in your life!

  7. #7
    Join Date
    Jun 2005
    Location
    Colorado
    Posts
    1,627
    I am sorry to hear about this. I will keep them in my thoughts.

 

 

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