Thank you so much for the recs. I will follow them up.
Kjay, I too was diagnosed many years ago. At the time, I was a very serious non-pro ballet dancer, taking 6-12 hours of class a week, in great shape. During the first decade when the pain was very severe and unremitting, I did find a low dose of amitriptyline, and later nortriptlyine, to be incredibly effective--and both made me gain an absolutely breathtaking amount of weight, which I am still trying to get rid of. So I can't take those even though they work very well. I am sure fibromyalgia is a central nervous system-mediated change in how pain signals are processed.
I have tried all the usual stuff, including an intensive outpatient PT program through the UW Pain Clinic. Much swimming. Biofeedback. TENS. Nothing has been very effective. I have never been able to discern any pattern at all. I've felt fine during periods of high stress, and have had big flare-ups during very happy times. It doesn't vary predictably with weather. Some things can set it off, including upper-body twisting and pushing muscle groups against one another (e.g, arabesque work. I am sure that the furious ivy-pulling I did last weekend has NOTHING to do with this current flare-up
). Massage (except for a myofascial, stretching massage) and heat can also make it worse (so sad!). Trying to stay in good shape helps, but it does not prevent the flare-ups. Luckily, the severe chronic stage seems mostly to have burned itself out, but I do get the occasional serious flare-up and then get pretty concerned about making it cool down before it DOES become chronic again. Interrupting the pain spiral is really important for me.
The few things that have worked for me include ice bags, CAREFUL stretching, and acupuncture. Neither work perfectly or for long, but they're the best non-chem approach I've been able to find so far.
Thanks again, you all.
Funny, Wahine, I've been craving rice in the last day. Think I will have some for dinner.
"My predominant feeling is one of gratitude. I have loved and been loved;I have been given much and I have given something in return...Above all, I have been a sentient being, a thinking animal, on this beautiful planet, and that in itself has been an enormous privilege and an adventure." O. Sacks