Oh, Brandi,

What a roller coaster of emotions you all must be experiencing...

It's got to be very frustrating to get changing answers on the diagnosis, but try to remember that it's a very good thing that they did these further tests to confirm before starting any treatment. Her best outcome will come from an accurate diagnosis, so she gets just the right treatment. That place of not knowing is very difficult to sit through, I know.

Hang on to the HOPE. I have 2 friends whose babies had congenital problems that required cranial (skull) and brain surgery as infants, and another friend whose daughter had a cancerous brain tumor as a toddler. All 3 of those children are happy, healthy teen-agers now who don't remember their early medical traumas at all. Their moms won't ever forget, though.

It's a very helpless feeling to see a child going through these things. My heart goes out to all of you.

(((More hugs)))