Baby back in the hospital!

[bikerchick68]

wow.... I hadn't heard what was going on Brandi... that's a lot for a family to handle. It's gotta be scary for the Noele as well... I like the idea of her having short "getaways" with the family. Kids process trauma differently than adults and some escape time could be good and healthy for her too. Your poor sis... having a sick child is every parents nightmare. I feel for her... glad you have a supportive family to be there for her and her DH too.

[Bad JuJu]

That poor kid--and poor family, too.
Hugs and positive thoughts coming your (and their) way.

[blueskies]

Oh, Brandi,

What a roller coaster of emotions you all must be experiencing...

It's got to be very frustrating to get changing answers on the diagnosis, but try to remember that it's a very good thing that they did these further tests to confirm before starting any treatment. Her best outcome will come from an accurate diagnosis, so she gets just the right treatment. That place of not knowing is very difficult to sit through, I know.

Hang on to the HOPE. I have 2 friends whose babies had congenital problems that required cranial (skull) and brain surgery as infants, and another friend whose daughter had a cancerous brain tumor as a toddler. All 3 of those children are happy, healthy teen-agers now who don't remember their early medical traumas at all. Their moms won't ever forget, though.

It's a very helpless feeling to see a child going through these things. My heart goes out to all of you.

(((More hugs)))

[bmccasland]

(((((((((Brandi & Lorelei))))))))))))

Unfortunately wee ones can't point to something and say it hurts here, or describe very well what's going on, how long it's been going on, or if things have changed. That's what makes pediatric medicine so difficult - according to my cousin the FP Doc.

Do you feel like your neice's life is a episode of "House" and you want it wrapped up at the end of the hour?

[Brandi]

(((((((((Brandi & Lorelei))))))))))))

Unfortunately wee ones can't point to something and say it hurts here, or describe very well what's going on, how long it's been going on, or if things have changed. That's what makes pediatric medicine so difficult - according to my cousin the FP Doc.

Do you feel like your neice's life is a episode of "House" and you want it wrapped up at the end of the hour?

yes! We need to find a House Dr. And believe it or not. We just found out there was an episode just this past christmas Called Merry Little Christmas that was about a littel girl who was hard to figure out and she had what we thought my niece had! But sadly now it is not we think. The final test has not come back yet. But they are pretty sure about it.
The baby is doing good this morning. She is eating and being a butt! All good signs at this point.

[RoadRaven]

Well... still holding you all in my thoughts...
Great news that she is feeling bouncy after the ops and is eating
Children are remarkably resilient
AwhiAwhi to you all

[Brandi]

Ok they are heading home!
Thank goodness, ,my sister called me today crying her eye's out. She was just so frustrated with everything. By the time we got off the phone I had brought her back down to earth. She got set off becuase the baby didn't want to eat good food. She wanted junk food. Well kinda chocolate milk and strawberries. But the Dr was saying how she needs to eat more protien cause of how skinny she is etc....
Well my sister was struggling trying to get her to eat eggs and other things. The baby would hold the same bite of food in her mouth for like an hour at a time. The baby eats anything and everything. Except for today. And my sister was taking it to to heart. So I told her to have the baby spit out the food. Give her her peanut butter crackers, turn the tv back on and breath. Took a bit to get her to that but once she did my sister felt better. And then the baby went to sleep. probably tired from holding the food in her mouth. Anyway they are going home. With again no answers but I guess they are going to put the baby on steroids (yuck) and monitor her. Do another ultra sound in a few weeks etc....Boy what a ride this has been!
Going to a birthday party tonight I am going to just have a good time!
Thank you everyone for just listening. I would like to stop writing in this post!