update on my niece.

[Brandi]

Baby has been diagnosed with a very rare cancer. I do not know much more then that at this point. They are doing a bone biopsy to confirm it. I can not seem to get a hold of my sister at this point.
When she called we were at the hardware store and i started feeling weird and almost panicky. You know I am standing in the middle of a store surrounded by strangers while getting bad news over my phone. I told her I had to get home and would call her when I got there.
Well before I did that I needed to get permission from a friend who has gone through this with her little girl to give my sister her #. She offered last year when the baby was sick if something came up. She is a support person now with parents with sick kids.
We talked for awhile about how I felt and she gave me some good insite on how my sister is feeling as well. and she made me feel better about being on this side of things and said to give my sister her # and email. Email incase she feels wierd about talking to a stranger at first then work up to the phone call.
This is really weird for our family. We don't have things like this happen.
This is the clinical name Langerhans' cell histiocytosis. Thank you for all the positive thoughts from all of you. I just wish i could have given better news.

[LBTC]

{{{{{{{{{{{{{{{{{{{{Brandi}}}}}}}}}}}}}}}}}}}}}}

I'm so sorry that you couldn't have heard better news. You will all get through all of the ups and downs of this together, and we'll be here for you whenever you need us. I believe that healing can be helped by purposefully finding and pondering beauty and joy, so I send a pretty picture out daily to a long list of people. If you and/or your sister would like to be added to that list, PM your email to me and you'll start getting them right away. (click on my link below to see what the pictures are like)

peace, hugs and butterflies,
~T~

[Flybye]

Brandi - I am so sorry to hear about your niece. Cancer is so hard on the family and when it happens to children it seems so unfair and unbearable. How are you holding up? If I can offer some advice it would be to make sure you can scrap together the money and time to see your sister and your niece - they will need a lot of family support to get through this. Not only that, it will be easier on you, too. Sometimes the hardest thing about illness is being far away and not being able to see the ones you love.

I don't know where you live or where she lives, but if I am somewhere in the middle and you need a place to stay and a meal - I would love to support you in that way.

I know how you feel getting a call like that in the midst of people -I received a call that my grandfather had a stroke while I was at my husbands Christmas party - all I wanted to do was get out of there and fast.

I will continue to keep your family in my prayers.

[Mr. Bloom]

((((((((Brandi)))))))))))

Here's a site regarding this in kids:

http://www.histio.org/site/c.kiKTL4P...m?src=overture

Quote:
Over the years, cancer treatments have been used in patients with histiocytosis. Consequently, hematologists and oncologists, who treat cancer, also treat children with Langerhans cell histiocytosis. However, the disease is not cancer. Radiation therapy, if used, is given in much lower doses than that which cancer patients receive.

The vast majority of patients will survive the disease.

Prayer flares going up! I'm really hoping for the best to come out of this

[OakLeaf]

((((((((Brandi, baby & family))))))))

[Brandi]

((((((((Brandi)))))))))))

Here's a site regarding this in kids:

http://www.histio.org/site/c.kiKTL4P...m?src=overture

Quote:
Over the years, cancer treatments have been used in patients with histiocytosis. Consequently, hematologists and oncologists, who treat cancer, also treat children with Langerhans cell histiocytosis. However, the disease is not cancer. Radiation therapy, if used, is given in much lower doses than that which cancer patients receive.

The vast majority of patients will survive the disease.

Prayer flares going up! I'm really hoping for the best to come out of this

Thank you for that Silver family most sincerly for the link. It gave me a much better outlook on it. We just need to find out exactly what type she has I guess. I don't feel as shocked now that i have more knowledge of what it is about. Something to say for knowledge is power.

[Wahine]

Brandi - I'm sorry to hear about your news. It will be a tough go for your family. Try to hold onto the fact that the prognosis is good. Now that you have a definite diagnosis, things can move ahead. Acupuncture in conjunction with standard treatment can help lessen side effects and boost the immune system. If a times comes when you'd like more information about this please feel free to PM me.

You and the family are in my thoughts.

[Brandi]

Brandi - I'm sorry to hear about your news. It will be a tough go for your family. Try to hold onto the fact that the prognosis is good. Now that you have a definite diagnosis, things can move ahead. Acupuncture in conjunction with standard treatment can help lessen side effects and boost the immune system. If a times comes when you'd like more information about this please feel free to PM me.

You and the family are in my thoughts.

If it comes up I will know where to go for infonow. Thank you. She is 2 though i don't knw how well she would take that kind of treatment?

[luv'nAustin]

(((((((Brandi & Family)))))))

I am sorry to see that your update isn't the good news that we were hoping to hear. I'll be keeping you all in my prayers.

[Brandi]

(((((((Brandi & Family)))))))

I am sorry to see that your update isn't the good news that we were hoping to hear. I'll be keeping you all in my prayers.

Thank you and I am sorry i don't have better news as well.

[Brandi]

Brandi - I am so sorry to hear about your niece. Cancer is so hard on the family and when it happens to children it seems so unfair and unbearable. How are you holding up? If I can offer some advice it would be to make sure you can scrap together the money and time to see your sister and your niece - they will need a lot of family support to get through this. Not only that, it will be easier on you, too. Sometimes the hardest thing about illness is being far away and not being able to see the ones you love.

I don't know where you live or where she lives, but if I am somewhere in the middle and you need a place to stay and a meal - I would love to support you in that way.

I know how you feel getting a call like that in the midst of people -I received a call that my grandfather had a stroke while I was at my husbands Christmas party - all I wanted to do was get out of there and fast.

I will continue to keep your family in my prayers.

I am ok.....have a lot of guilt. Not knowing what to say or do. Wanting it to me,not them. My sister is not talking to anyone right now which is strange for me. She always wants to talk. But I am giving her her space right now.
We live abut 5 hours away from eachother. i normally would go see her by taking a train. We only have one car. Right now I don't think is the best time to go see her. I am not sure when the right time willl be even. We will see. I have cried a lot today. But I have looked up the cancer (thanks to Mr. Silver's link. It is a high survival rate so that is good of coarse as long as it hasn't spread. Just taking it one day at a time at this point.
Thank you for your sincere thoughts. You are all so wonderful to have as support!

[RoadRaven]

Hugs from here too Brandi... at least you have an answer and a name for the monster you will be battling.
You'll all be in my thoughts when I light my evening candle...

[Brandi]

Hugs from here too Brandi... at least you have an answer and a name for the monster you will be battling.
You'll all be in my thoughts when I light my evening candle...

Thank you very much.