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  1. #1
    Join Date
    Jul 2006
    Location
    Mississippi Delta
    Posts
    218
    Well, not so well- He got a neutral report at the doctor's office- not good, but not bad- he is not responding to the maintenance treatment the same way most folks do-so doc took him off the metyltrexate, mercaptopurine &
    vesenoid for the next 2 weeks. He did another bone marrow biopsy- and we should have the results today or tomorrow- He had to have a transfusion as well. SO instead of shopping for a sofa like we planned- he stayed in the clinic all afternoon.
    We spent the trip home talking about why doc did the biopsy & asking what if the cancer is back. - I just didn't get around to asking him to cook.
    I plan to try again after the report.
    A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.

  2. #2
    Join Date
    Jul 2007
    Location
    way down South
    Posts
    1,114
    Hub, do you have some sort of support system? Are there any groups in your area for spouses of people dealing with cancer? I know I would need one or at least a good friend to talk with about all that you are going through.

    Hugs to you.
    "Chisel praise in stone; write criticism in sand."

  3. #3
    Join Date
    Dec 2006
    Location
    Blessed to be all over the place!
    Posts
    3,433
    Hub, it sounds like this is a tough time for both of you.

    I really wish I knew how to advise on finding a hobby, but there's a lot of complexity in your lives right now...magnified by an uncertain prognosis. I do think that some level of light physical exertion would help his depression...

    As a man, I want to say "Is it possible that he's lonely and scared...and using the idea of a hobby as a 'red herring' for more companionship." BUT, your "bossing around" comment really bugs me about whether he's being sincere or not...and that's why I don't know what to say...
    If you don't grow where you're planted, you'll never BLOOM - Will Rogers

  4. #4
    Join Date
    May 2006
    Posts
    225
    When my husband was on dialysis, we played games. Nintendo, Phase 10, etc. We liked to play Tetris a lot, and Phase 10 (card game). He often did not have the energy to go walking, and by the time his transplant came around, he should have been in a wheelchair, so walks that were once taken were no longer an option. We are both competetive, so Tetris was a good avenue for us. It satified the need to compete, yet gave us quality time together. As far as your need to ride your bike, have you tried to explain that when you are on your bike, that is when your problems, ie. stress, leave even for a short time? I am fortunate that my husband understood this about my exercise (I was not riding at the time, but was exercising). I tell people that the reason that I do not have to take purple happy pills, is that I exercise.

  5. #5
    Join Date
    Jul 2006
    Location
    Mississippi Delta
    Posts
    218

    Smile

    Quote Originally Posted by Mr. Silver View Post
    Hub, it sounds like this is a tough time for both of you.

    As a man, I want to say "Is it possible that he's lonely and scared...and using the idea of a hobby as a 'red herring' for more companionship." ...
    That's part of it- he depends on me for his emotional support and entertainment- I know that he is trying to get more of my attention
    and time. As far as being bossy- that's his nature- not a new development. The deal is that since I'm the one responsible for more and more stuff- I'm less inclined to be told what to do and how to do it.
    I did mention the cooking and HAM stuff this morning . . . told him just to think about it- Right now we're still waiting for the info from his bone marrow biopsy.

    thanks y'all

    Of and for support - I have my mom & my sis - I talk to them almost every day- and I work with a great bunch of folks- and then there are my neighbors- that keep the little one during the day
    shown here with her poppa.
    Attached Thumbnails Attached Thumbnails Click image for larger version. 

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    Last edited by Hub; 10-16-2007 at 07:46 AM. Reason: attach photo
    A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.

  6. #6
    Join Date
    Apr 2006
    Posts
    3,867
    They're having a little tete-a-tete there, eh?

    Cute picture.

    Karen

 

 

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