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  1. #1
    Join Date
    Apr 2006
    Location
    somewhere between the Red & Rio Grande
    Posts
    5,297
    I do not have epilepsy, but I have movement disorder that requires epilepsy meds. I cannot encourage you enough to get in the care of a good neurologist that will listen to you; maybe you can even find a clinic deditcated to epilepsy. They will understand you desire to live your life and work to make that happen.

    My first neurologist had me doped up on a medicine that made me seriously depressed and refused to take me off because "it was working". Yeah, I wasn't shaking but I didn't want to get out of bed either. Anyway, I know a couple of epiletics and they are able to do the things they want with minimal restrictions. It definitely is not the best or worst diagnosis.
    Amanda

    2011 Specialized Epic Comp 29er | Specialized Phenom | "Marie Laveau"
    2007 Cannondale Synapse Carbon Road | Selle Italia Lady Gel Flow | "Miranda"


    You don't have to be great to get started, but you do have to get started to be great. -Lee J. Colan

  2. #2
    Join Date
    Feb 2006
    Location
    the foggy wetlands,los osos,ca
    Posts
    2,860
    I am epileptic. But I have not been on the medication or had a seizure in years. They said mine was due to stress and bad sleeping habits. I went through a lot test and they never found anything like a leasion on my brain or anything like that.
    But I thought I was going mad when it was happening. People would be talking to me then all of sudden it was like they were talking backwards and i could not respond no matter how hard I would try. Then the people who were talking to me would say I blacked out. The strange thing is I don't remember ever blacking out. I woke up with awful headaches in the morning. Turned out I would have grand mal seizures in my sleep.
    I found the the medication did help. Eventually my life changed and the stress lessend I also learned to deal with the stress. yoga helped a lot!
    I would still ride as long as your Dr says it's ok. And the medication is controlling it. Get plenty of sleep and try and not stress. If you need to talk pm me. it can be scary I know.
    Blessed are the flexible, for they shall not be bent out of shape.
    > Remember to appreciate all the different people in your life!

 

 

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