Help! I hate to admit this

[KnottedYet]

hang in there!

Food is so tied up with comfort and cozy emotions, that it's very hard (at least for me) to accept that I'm cut off from a huge portion of it. But over time whatever you find to substitute for the previously meaningful foods takes on that same value and comfort.

Your diet is VERY restricted right now, but the ND only wanted you doing that for a few weeks, right? Then he was going to let you start adding things in? Can you look at it from an injury metaphor? Say you'd sprained your ankle, and the doc told you to rest it and heal for a few weeks. Wiggle your toes, swim, but no biking or walking. Then later he'd let you start adding activities.

It's sort of the same with your gut. Limiting it's "activities" for a few weeks so it can start healing, then adding things back in.

I've had years to figure out what I can and can't handle and the various behaviours my gut performs. Some days I can drink milk and eat peanuts, some days I can't. Some days I can lick envelopes (gluten in the glue) some days I can't. After your gut has some time to catch up, you will be able to get a better idea of it's behaviours. Give it these weeks of rest and it will likely be in a better mood!

I'm not a patient person, so I won't tell you to be patient. Do whatever you need to get through the restricted phase. Just don't "cheat" if you can possibly help it. When things have calmed and settled down in your gut you and your doc will be able to get a clearer picture of the next steps.

Meanwhile I'll drink all the coffee you aren't drinking!

Edit: By the way, I think self-pity has a useful function. I think it's a form of perspective-gathering and venting. My tendency is to wallow in it (I even sing "The Worm" song and REALLY wallow) and get it over with. The more ridiculous, the better. Once I've gotten my self-pity satisfied I feel so much better!

[LBTC]

Thank you, ladies

This morning I still feel melancholy. I know that the weather doesn't help and that having to go to work today isn't great, but, hey, if I were to stay home I'd just wallow, so hopefully I'll get over it quicker this way, right?

Margo, thank you for the reminder. I've been sharing lots of hugs with my DH and my dog; and I'm going to go look at some of my photos of flowers and sunsets and bugs and stuff before I go to work.

Uk, thank you for understanding. This morning isn't much better, but I know I won't let this last. If tonight isn't better all by itself, I'll find some fabulous movie or music to help.

Koala, thank you! You're right, I will fight this. I've decided, though, that the extra support I get here helps in the fight. If I just pretend I haven't felt sorry for myself, it doesn't really heal it. So, now it's out there and I'm working on it. Tonight I will do kickboxing when I get home. If that seems too hard, I'll spin on the bike. Yes, I need to get more endorphins.

Knotted, thank you! What a great analogy. I was comparing this whole thing to injury before, but only focusing on the differences. When I had a broken shoulder the path to healing was clear, and took time. I hadn't thought about the similarities, so this is a really helpful thought process for me! The severe restrictions of the diet will go on for at least a few weeks, but probably months; but, you are right, there will be a time when I will be able to eat a greater variety of things.

Well, the feeling's not quite gone yet, but your thoughts are helping. Please keep them coming!

Hugs and butterflies,
~T~

ps - Koala, if you PM me your email address I'll add you to my pictures list - I send a picture out to a list of people virtually every day.

[bouncybouncy]

In a backwards way I, too, am doing my own wallowing. I have not figured out why I feel the way I do but the wallowing seems to help seek inside and figure things out.

It is comforting to know that the feelings are normal and that you are not alone...at least for me.

Sending you Butterflies and may you find peace and health soon....


btw: I am a photographer lost in the cave of doing photoshop for others, not able to find the time or motivation to do my own...looking at your website gives me bits of inspiration that is slowing building to the point of longing to produce my own images....Thank You!

[LBTC]

Thank you, Bouncy! It does help to feel less alone! But I'm sorry for the situation you're in and hope that you can find a way to a better place for yourself!

I've lived in a negative town, worked in an office with terribly low morale, tried to keep biking in a horribly fractured community, and finally DH and I decided to move. It's been a huge change and the only negative is this health issue. On the other hand, the health issue would probably still exist, but the town I was in before didn't have the same facilities so I would probably not yet have a diagnosis!

I think what I'm trying to say, bouncy, is that you owe it to yourself to explore some options and see what you can change so that you can love life again! Even if the only change is to find an hour a week with your camera and your eye and no other distractions.

Good luck!

Hugs and butterflies to you,
~T~

[han-grrl]

Having a ruptured ulcer, and surgery and giving up my favorite flavors, i totally understand.

Remember to eat to live not live to eat. I try to keep things in perspective.

[Bikingmomof3]

T,
I have lived with chronic pain for quite some time and I still have pity parties for myself. I find them actually healing in a way. I like the way Knot described them.
When I had my stroke I had a lot of issues and frustration. Why me, why at my age, etc. The limitations placed on me where not food restrictions, rather I was told I could not drive, ride my bike, swim, etc...and the medications just made me feel even worse. It took me quite a while to get over the anger/denial phase.
I think for a lot of us, when told we have something that is forever going to change us, we need to go through the stages of grieving until we come to acceptance. I accept what has happened to me, but that does not mean I give up! I ride my trainer on occassion-it is a lot harder than I thought it would be, but I do it. I do not drive-yet-as I would not want to be the cause of an accident, ever! I do run, but never alone. I could go on and on, boring everyone.
My point is a simple one, we all learn to deal with the hand we were dealt. And it is very normal to go through various emotions and it is good to reach out to others, to help ground us. You too will become a survivor and rise up inspite of your disease. *Hugs*

Hopefully, this made sense.

[Duck on Wheels]

I agree with UK and BMo3. Very few go through life without any hardships whatsoever. Crohns is a tough one, but to live with. Still, your emotions are going to yo-yo over this, especially so early with the diagnosis while you're still working out how to manage it. Think of this like breathing -- out with the bad air, in with the good. Don't deny your emotions. Allow yourself to wallow when you need to. Let yourself have a good cry. Then when you sense you're bouncing back, draw those good feelings in deep. Congratulate yourself on finding that recipe for -- oh, say banana marengs -- that tasted so delicious and slipped through your guts with no pain. Be proud of how you managed to find a toilet in the nick of time. Be super proud of how much you're biking and working out!!! In other words, give the positive feelings all the boost you can when you sense them easing back in. But don't waste energy denying the bad ones when they're there; better to find a good warm blanky and a weepy movie and let them out.

Hugs and ... well, the butterflies are all hibernating here now, but I have pictures to remember them by.
Duck with Crohns.

[LBTC]

ICongratulate yourself on finding that recipe for -- oh, say banana marengs -- that tasted so delicious and slipped through your guts with no pain.

Hey, do you have that recipe?? Maybe I can start congratulating myself tonight!

Thanks again for your words of wisdom. I'm going to read through all of them again tonight and try to "digest" all of these wonderful thoughts. At the moment, the headache is starting again. I'm off to get another tall glass of water and something "yummy" to eat. Oh, it would be nice to not be at work today!

Hugs and butterflies to you all (my butterflies are virtual, so they don't hibernate at all, and they come in the best colours - all of your favourite colours and patterns, not just the silver and brown ones I see all of the time)

~T~