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  1. #1
    Join Date
    Dec 2006
    Posts
    1

    living with celiac

    It is not the end of pasta, bread, pancakes, waffles etc! Hardly!
    Replace those beloved foods with rice & other starch based ingredients.
    Go to Whole Foods if you can, check out their freezer section, GF foods. Excellent breads, scones, cookies, muffins.
    Find health food stores in your area.
    Shop online for mixes and foods. Check out shopbydiet.com or glutenfree.com.
    Buy Pamela's baking mixes. These are awesome.
    Glutino is another brand that has great snack (carb) items.
    Pick up the current Living Without magazine (or order online). They have a list of great restaurants - both chains nationwide and local states/areas - that know how to serve GF customers.
    This will get easier and you may be surprised at the amount of food out there, and how good it is. Your tastebuds will adjust and you will feel unbelievably better.

  2. #2
    Join Date
    Jun 2002
    Location
    Mrs. KnottedYet
    Posts
    9,152
    You are not alone. Knotted has it, and she has not eaten wheat in about 6 years. It's not that hard to do, you just have to be alert.

    Knott says to send her a PM, she's giving me a massage right now and says she'll get back to you soon.
    Fancy Schmancy Custom Road bike ~ Mondonico Futura Legero
    Found on side of the road bike ~ Motobecane Mixte
    Gravel bike ~ Salsa Vaya
    Favorite bike ~ Soma Buena Vista mixte
    Folder ~ Brompton
    N+1 ~ My seat on the Rover recumbent tandem
    https://www.instagram.com/pugsley_adventuredog/

  3. #3
    Join Date
    Jan 2005
    Location
    Vernon, British Columbia
    Posts
    2,226
    Hi, OTG

    I'm sorry about your diagnosis, but glad for you at the same time. I, too, have had a recent diagnosis. In retrospect, I may have preferred celiac, as at least I would know immediately what to not eat. With Crohn's it's anyone's guess. It's going to take me some time to figure out what I can and can't eat and to understand this disease!

    I know people who eat gluten-free, and often, I've surprised myself by choosing, based on flavour, gluten-free products myself. You'll do okay, really! There are lots of sources of carbs, including rice, corn, potatoes, and some interesting grains like quinoa.

    As for carbo-loading - well, it's never really worked for me. Pasta, I think, has never gotten the energy to me when I wanted it. Potatoes, along with some kind of protein, has been the most fabulous energy food for me, for years! It was my favourite meal between laps during 24 hour racing, and also my favourite after-heavy-workout recovery food - whether that was after a long hard ride, or kickboxing.

    If you want to chat about how you feel about your diagnosis, feel free to PM me. I'm new to this, too, and you may be surprised at some of your emotions!

    Hugs,
    ~T~
    The butterflies are within you.

    My photos: http://www.flickr.com/photos/picsiechick/

    Buy my photos: http://www.picsiechick.com

  4. #4
    Join Date
    Apr 2006
    Location
    I'm the only one allowed to whine
    Posts
    10,557
    Are you on B12 shots or B12 sublingual?

    I'm on sublingual, mainly because it's a whole lot cheaper than the shots. Methylcobalamine works better for me than cyanocobalamine (both are variants of B12, but methyl costs about 2x as much) If I accidentally eat some wheat and start getting sick I take an extra one. Maybe it's my imagination, but the extra one seems to help.

    Once you know what to look for, it's second nature to keep away from the wheat. Especially once your tastebuds learn the association between that yummy garlic bread and being sick for days afterwards!

    Eating out is a little harder, but oh so doable. Thai food is my favorite, and luckily wheat isn't an issue there.

    I'm willing to suffer for beer... Suffering right now with a Boont Amber Ale!

    My favorite brownie mix is Cravings Place Oooey Gooey Brownies. Their chocolate chip cookie mix is good, too. Best pizza dough mix I've found is Namaste Foods. (actually, Namaste's brownie mix isn't bad, either.) They've got a pancake mix I want to try.

    You can still eat pasta to carbo load, just make sure it's rice pasta. I get mine in the asian foods section of the store, it's about 1/10 the price for the same noodles as in the GF/health food section.

    Rice crackers instead of wheat crackers. Rice cakes instead of toast. Rice bread s*cks in my opinion, but there is a bread company <Ezekial Bread?> that makes a GF bread with ground pecans that is really good. It comes frozen, so you just toast a piece when you want it and it lasts in the freezer for weeks.

    For energy on the bike I eat Clif Shot Bloks and Lara Bars. (Clif bars have oats, and oats do make me sick.) I usually keep a couple Lara Bars with me in case I get hungry.

    PM me if you'd like!
    "If Americans want to live the American Dream, they should go to Denmark." - Richard Wilkinson

  5. #5
    Join Date
    Jun 2005
    Location
    UK
    Posts
    373
    I don't have coeliac (my aunt had something similar as a child but outgrew it apparently) and the advice given above is what would immediately spring to mind anyway. As she couldn't eat wheat she used to get a lot of wheat free stuff on prescription (free I think). She absolutely hated the bread with a passion, my mother on the other hand (not wheat intolerant) loved it.

    I have a breadmaker as I think shop brought bread is crap (and full of god knows what) and it has a setting to make gluten free bread. It mentions some gluten free breadmixes that you can buy (at least in the UK) though I have never tried them. A friend of mine was avoiding wheat for quite a while and I'm sure she used to eat rye bread and was investigating using spelt flour to make bread. Both rye and spelt flours seem to be easily available in large supermarkets in the UK.

    Edit: was in supermarket at lunchtime to pick a few things up and looked at the various flours on offer. Spelt is made from an ancient wheat variety, didn't say anything about gluten levels (the rye is apparently low gluten). I'm quite shocked at that as my wheat avoiding friend was going on about it. They had gram flour which was wheat free but not sure what you could do with it.
    Last edited by tattiefritter; 12-14-2006 at 04:11 AM.

  6. #6
    Join Date
    Oct 2006
    Location
    Allentown, PA
    Posts
    587
    I ordered a bunch of gluten-free products today, and I'm going to a grocery store tonight so I have something to eat. But, no, can't have rye or barley or oats, either.
    ~ Susie

    "Keep plugging along. The finish line is getting closer with every step. When you see it, you won't remember that you are hurting, that anything has gone wrong, or just how slow or fast you are.
    You will just know that you are going to finish and that was what you set out to do."
    -- Michael Pate, "When Big Boys Tri"

  7. #7
    Join Date
    Feb 2006
    Posts
    112
    My husband has been off gluten for almost 20 years, he cheats some but really likes rice. He's not a celiac, I don't think you will be able to cheat as much as he does. Anyway, good health food stores have almost everything, it's more expensive, but easy enough to find good stuff. Plus will all the low carb diets, people don't even ask anymore when ordering a burger without a bun. We recently tried some Italian gluten free pasta that was exellent, is was about $8 a box, where most corn/rice pastas are $2, and I think wheat based pastas are $1. Anyway, don't be discouraged, just try to adapt, it's easier then you think.

 

 

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