Diagnosis: Chron's disease

[Bruno28]

Can any of the crohnie cronies tell me how long a flare up can last? I'm wondering if previous issues in years past have been crohn's the whole time....

How long is a piece of string? Hopefully you'll get a meds regime that will bring flare ups under control. I'm afraid it's a bit of an unpredictable disease but the best thing you can do is listen to your body and get to know the signs and symptoms. And if your body tells you to rest, rest or you'll pay for it. I've had Crohn's for about twenty years and probably for sometime before that - it can take ages to be diagnosed. My symptoms were put down to stress til a smart GP sent me to a specialist.

In my experience stress is a factor. It doesn't cause the disease and I don't think it makes the underlying disease worse but it can precipitate a flare up and make things seem worse, in my opinion.

I recognise the feeling of being relieved when you got a definite diagnosis. Plus it means you can actually research it. As others have said there's good info on the web.

This UK site is good -

http://www.nacc.org.uk/content/home.asp

You may have to be persistent with your docs until you get a treatment regime that suits you, but keep going. Mine is reasonably well controlled by drugs with only occasional flare ups. Because of fatigue issues you are best to try and eat a normal diet unless you can identify foods that are causing problems - for me onions, fatty foods and cream are the main culprits. But I still eat them from time to time - I just plan ahead!

Good luck and take care.

[SadieKate]

Boy, LBTC, you two have certainly had more than your share of issues this year. I think relief is a very normal feeling with any diagnosis. It's a milestone that lets you make decisions about the future and make constructive changes - less whirling in circles. Always a good thing in my book.

Just going to offer my 2 cents about stress. All diseases and disorders can be reactive to stress. We're a whole integrated body, mind over matter and all that jazz, but immune system disorders are especially senstive to it. You've heard it before. When I get wound up over things, the buzzing in my face starts. It's a very minor but effective reminder that "Hey, stupid, you've got MS. Let it go." Yellow has a great handle signal that she waves in the air at me when I forget (what are friends for ).

I've became much more active at not being reactive. Dealing with the things I can control and walking away from the things I can't -- even if that means limited contact with family members. I weigh my options before saying yes to others' requests and focus on what I need to do for fitness and proper rest. My one and only flare last winter made me realize that tons of little stressor can trigger an event -- it isn't just the big stuff.

I know there are lots of people out there with Crohn's leading very active and normal lives. But like MS, we tend to hear only about the extreme cases. Stay positive and look for what works for you -- and say no to the guilt-imposed yes. Your main obligation is to you.

[Duck on Wheels]

Speaking of stress hormones ... You may also find that your Crohns flares in synch with your reproductive hormone cycle. For me, I'd start to flare each month a day or two ahead of my period, have to up the drug doses, and then could gradually get the doses down again a week or so after my period was over. This makes sense when you think about it. The cycle has among its many functions the one of making sure you have an infection-free environment in case you start a pregnancy next month, then backing off from "overkill" in case you start a pregnancy this month(that little foreign body you want to keep in there). And since no bodily attribute has only one function ... the reproductive hormone cycle is also stress-related (as in the occasional skipped cycle due to stress, or the mood swings that have some of us edgy that same day or two ahead, right?). Soooo, if this does prove to be a pattern for you too (as for most female Crohnies I've known between 15 and 50) and if you're taking an oral contraceptive, you might want to try going non-cyclical and see if that helps.

[LBTC]

Hi, Duck

That's very interesting. I've been on a non-cycle BC for a few years now. I love the no downtime thing. I had no idea it might actually help something like this, too! Good news.

Thanks for the tip!

Hugs and butterflies,
~T~

[uk elephant]

I switched to non-cyclical pills about a year ago and found it a huge relief. I find that it takes away the extreme monthly fluctuations letting me regulate the drugs better.