Crohn's Rides?

[Aggie_Ama]

I did find that CCFA does receive money from Centocor, the people who developed Remicade. I am still not sure CCFA is the worst organization to back though. I did find some other people working on research in Crohn's. Off to ride, I will bookmark my search for the rainy day forecasted tomorrow!

One group, Paratuberculosis Awareness & Research Association (PARA), is doing research on the correlation between Mycobacterium avium subspecies paratuberculosis (MAP) and crohn's.

It appears Johns Hopkins has a large area devoted to research on digestive disorders, but seem to be focused on colon cancer more than Crohn's. They also have research focused on autoimmune disease.

Cedars-Sinai Medical Center has a group dedicated to researching IBD.

[pyxichick]

Amanda,

I'm not sure who I'd give money to. I sort of stopped doing a lot of research on the topic once my own drugs (6MP for about 10 years now) started keeping my symptoms at bay.

But it's a great idea to do your own fundraiser. Crohn's and Colitis seem to be way more prevalent than one would think, once you start talking to people about it.

I'd love to take part in some sort of ride where I knew the money would go toward finding a cure!

I wish your DH good luck in dealing with his Crohn's. You're a great partner for wanting to do something positive in response to his diagnosis.

Take care,
Kate

[paigette]

It may be a good idea to contact your alma matter--A&M--and see if they can help out. They already sponsor the Tri-County Hill Hopper Bicycle Ride which helps out an organization for children with special needs, but there may be another Aggie organization interested in creating another ride.

P.S. I have IBS & get tested for Crohn's every year, so if you get something started, let me know.

[Aggie_Ama]

Have you done the Hill Hopper in the past. We have rode it 2005 and 2006, it is my nemesis!! I cannot think of a harder 76 miles for me. We plan to try it again this year.

I am trying to figure out the best time to organize anything. My DH and I were kicking around the idea of doing the Get Your Guts in Gear and seeing if the Capitol City A&M Club will assist in a fundraising effort. I am still thinking about something to do

We were also members of Ol' Army Cycling for the MS150, I may see if they have any interest in creating a ride. Their primary focus is the MS150, but they might. I think one of the guys is already behind the Mayday Challenge. There is some good riding in College Station area, I could see there being room for another ride. Maybe next fall?

[paigette]

I'd be willing to help, so let me know after you've given it more thought!

I'm hoping to do the Hillhopper(with coworkers) & Houston MS150(with cousin & uncles) in 2007.......lofty goal with them being so close, but we shall see.

[Aggie_Ama]

The Hillhopper has been the start of my MS150 training the last two years. I usually am a little wimpy about cycling in the cold and the Hillhopper reminds me to get it in gear. It is great way to convince yourself to train harder. I trained hard for the MS150 both years and didn't hurt nearly as bad as most people did Monday.

The MS150 is the best ride out there. Don't skip the park- it is painful but so worth it. We decided to skip doing the MS150 this year, but I know we will miss it come April.

[paigette]

Are you still doing the HillHopper?