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  1. #1
    Join Date
    Feb 2007
    Location
    Southeast Idaho
    Posts
    1,145

    Unhappy Gallbladders and Children

    Hello, I need some advice please.
    My daughter who is 11 years old has been having stomach pain off and on for about a year. We tried eliminating nuts, milk products, and treating her as if she had an ulcer. Finally, we relented and went to the pediatrician.
    DD had an upper GI - negative, an ultrasound - negative (NO gallstones), and a chem 14 - perfect.
    A little over a week ago she had a gallbladder scan. Her gallbladder is not emptying. Any empty rate of 35% or less is an indication for surgery, her empty rate was 0%.
    Since the scan we have eliminated fat entirely from her diet which has helped immensely. She still has an episode of pain nightly around 11:00, but other than that has been doing well. (She was in so much pain before this that she was throwing up occasionally and has missed about 12 days of school; the pain so bad she couldn't get to sleep).
    She is not obese by any stretch of the imagination - in fact she is in the 110th percentile on height and 40th percentile for weight. I consider us pretty healthy eaters compared to the general population. None of us are above our BMI range.
    We have a surgical consult on Monday at 3:45. I have so many questions before we proceed with surgery.
    Herein lies where I would like some advice -
    Have any of you been diagnosed by a physician with a gallbladder that is not functioning and tried remedies other than surgery? Cleanses, etc. How successful or unsuccessful? Any other advice?
    I absolutely hate the thought of putting her through surgery if there is another remedy. I also am not optimistic that if her gallbladder is not functioning that it can start working again. She is in so much pain.

    Thanks for your input.

  2. #2
    Join Date
    Apr 2006
    Posts
    3,867
    Aww, I'm sorry about the little darling. A whole year of pain is rough.

    I've never heard of this before, so I don't have any advice. I will say that the gallbladder surgery is pretty routine, and the surgery itself will be a piece of cake. I don't know that I'd rush into it without quite a bit of research. She is, after all, only 11.

    Sending good vibes your way.

    Karen
    ~~~~~~~~~~~~~~~~~~~~~~~~~~
    insidious ungovernable cardboard

  3. #3
    Join Date
    Dec 2003
    Location
    Folsom CA
    Posts
    5,667
    No advice alas, but my best wishes for your daughter!

    2009 Lynskey R230 Houseblend - Brooks Team Pro
    2007 Rivendell Bleriot - Rivet Pearl

  4. #4
    Join Date
    Aug 2005
    Location
    Perth, Western Australia
    Posts
    5,316

    T

    Flybye, I think LBTC went through something similar a few years back. She may have mentioned something in the health section? If not, send her an email.

    I hope she's pain free soon!!

    Take care

  5. #5
    Join Date
    Sep 2008
    Location
    San Diego, CA
    Posts
    1,316
    As the mother of an 11-year-old daughter myself, I'm sending yours all the healing energy I can. I hope you can find a solution for her soon.

    Roxy
    Getting in touch with my inner try-athlete.

  6. #6
    Join Date
    Feb 2006
    Location
    DE
    Posts
    1,210
    Keep in mind that to a surgeon, every problem has a surgical solution.

    I'd do a lot of research online before the consultation and ask a lot of questions before I consented to any surgery. If the Dr. is uncomfortable with the questions, look for another one.

    I'd want to know how common this condition is, and what the success rates are after surgery. What happens to young children after this kind of surgery? Does it make them more prone for other conditions down the road? What are the suggested treatments if you don't have surgery? Will she still have to have a restricted diet or take medications afterward? For how long? What are the side effects from the medications? Might this be cured with dietary changes alone? If she has some improvement with a low or zero fat diet how much fat would you estimate she had been consuming before the change. Could there be particular trigger factors that exercabate the condition. Have you kept a food diary to see any patterns? Could you?

    I could probably think up a lot more questions but I think you get my drift.

    Of course you want to have your daughter treated quickly and efficiently, and most of all, safely. But surgery is still considered by many to be a pretty drastic measure. Yes, it has it's place, but you really want to consider all the aspects of such a step. (My father was a surgeon, and he always advised us never to have surgery unless it was absolutely necessary and that we fully understood what would be done, why, and really understood what the limitations or other effects afterward might be).

    Keep in mind that a doctor is a businessman/woman just like any other and he wants your business. We'd all love to believe our doctors are just like Marcus Welby and that they really care about us, and some of them do, but I think in many cases they are just too hamstrung by insurance companies requirements and have to see more and more patients each day just to break even (there's that business problem again) thus we just don't get the care and attention that we should any more.

    Good luck. This is a decision that no parent should ever have to make. Let us know how it turns out.

  7. #7
    Join Date
    Apr 2006
    Location
    somewhere between the Red & Rio Grande
    Posts
    5,297
    I don't have any advice but my Dad and college roomate had their gallbladders removed. Both laprascopically and were out of the hospital same day or next day. My college roomie had to stay overnight because she had a baby by c-section a month before the docs just wanted to be careful with her. Anyway, I hope there is another remedy but if not the surgery is relatively routine (but scary as any surgery is) and the scar for most people is small. Oh and both of those two feel tons better after electing to have the surgery after several years I do not know that either has issues because of not having a gallbladder. ((HUGS))
    Amanda

    2011 Specialized Epic Comp 29er | Specialized Phenom | "Marie Laveau"
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    You don't have to be great to get started, but you do have to get started to be great. -Lee J. Colan

  8. #8
    Join Date
    Sep 2007
    Location
    Uncanny Valley
    Posts
    14,498
    Quote Originally Posted by withm View Post
    Keep in mind that to a surgeon, every problem has a surgical solution.
    +1 to this, and I was REALLY glad to hear the same thing from my psychiatrist. It's not just my anti-doctor "bias" if you want to call it that, it's a way that surgeons think that even other doctors recognize.

    Other than that, I don't have anything to offer. I know my sister had good luck with a GB cleanse last year, but she's an adult, and I don't know how bad hers was before the cleanse. When I had GB problems it was all diet and stress - once I cleaned that up, I haven't had another attack in almost 30 years.

    Sending healing vibes to your daughter and serene ones to you.
    Speed comes from what you put behind you. - Judi Ketteler

  9. #9
    Join Date
    Jul 2007
    Location
    foothills of the Ozarks aka Tornado Alley
    Posts
    4,193
    Keeping you and your daughter in my thoughts and prayers.

  10. #10
    Join Date
    Jul 2005
    Location
    WA, Australia
    Posts
    3,292
    Quote Originally Posted by Flybye View Post
    Hello, I need some advice please.
    My daughter who is 11 years old has been having stomach pain off and on for about a year. We tried eliminating nuts, milk products, and treating her as if she had an ulcer. Finally, we relented and went to the pediatrician.
    DD had an upper GI - negative, an ultrasound - negative (NO gallstones), and a chem 14 - perfect.
    A little over a week ago she had a gallbladder scan. Her gallbladder is not emptying. Any empty rate of 35% or less is an indication for surgery, her empty rate was 0%.
    Since the scan we have eliminated fat entirely from her diet which has helped immensely. She still has an episode of pain nightly around 11:00, but other than that has been doing well. (She was in so much pain before this that she was throwing up occasionally and has missed about 12 days of school; the pain so bad she couldn't get to sleep).
    She is not obese by any stretch of the imagination - in fact she is in the 110th percentile on height and 40th percentile for weight. I consider us pretty healthy eaters compared to the general population. None of us are above our BMI range.
    We have a surgical consult on Monday at 3:45. I have so many questions before we proceed with surgery.
    Herein lies where I would like some advice -
    Have any of you been diagnosed by a physician with a gallbladder that is not functioning and tried remedies other than surgery? Cleanses, etc. How successful or unsuccessful? Any other advice?
    I absolutely hate the thought of putting her through surgery if there is another remedy. I also am not optimistic that if her gallbladder is not functioning that it can start working again. She is in so much pain.

    Thanks for your input.
    Flybye I hope your daughter will be feeling better soon. Two of my sons had surgery for Hernias (apparently boys can be born with them) at the end of last year and it was a scary thing for us all. What I did notice was that children seem to bounce back quickly from operations and my boys were no different. The hardest part was keeping them from doing too much for the required time after the operations. My boys were 11 and 9 years of age when they had their surgery. Sending healthy vibes your way.
    Last edited by Trekhawk; 04-28-2009 at 06:27 AM.
    The most effective way to do it, is to do it.
    Amelia Earhart

    2005 Trek 5000 road/Avocet 02 40W
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  11. #11
    Join Date
    Feb 2007
    Location
    Southeast Idaho
    Posts
    1,145
    I thank everyone for the advice so far.
    We are headed to a pediatric doc of internal medicine (Tokie you may know him - Dr. McInturff, and yes, Blackfoot is a small town) for a second opinion and from there hope to be referred to a gastro doc.
    DD is exhausted from dealing with the pain. We are too. Fortunately she has the advantage of being able to sleep in - we don't have that luxury and are EXHAUSTED.
    I am going to run the cleanse idea by the doc tomorrow, following suggestions that all of you have offered. Also I will include suggestions for things to ask the doc that were offered.
    Again, thanks and I will keep you posted.

  12. #12
    Join Date
    Nov 2006
    Location
    Bristol, TN
    Posts
    360
    I am also a great believer in the 2nd opinion route and a believer in that going to a surgeon nets you surgery. One of the questions my husband, a physician, would have you ask. "If this was YOUR _____ (child, mother, husband, father etc...insert proper person), what would you do?" He often recommends that to people who ask him, as a friend, what to do in a certain medical situation (no particular situation). If there is any hesitation, then get ANOTHER opinion. I think the suggestion to go to a pediatric gastroenterologist was very good. This seems to be a problem that needs further work-up and expertise.

    Good luck and I send good karma and healing thoughts your way.

  13. #13
    Join Date
    Feb 2007
    Location
    Southeast Idaho
    Posts
    1,145
    Just wanted to take a second and update everyone.
    DD goes in tomorrow, Wednesday am, for surgery to have her gallbladder removed.
    We have had more doctors visits than I can count but we have ruled out so many other things that we are now comfortable (okay that is a lie, really, how can you be comfortable with surgery on a kid) with the surgery.
    Thanks for all your imput.
    Now I covet your prayers.....

  14. #14
    Join Date
    Jan 2006
    Location
    Pacific Northwest
    Posts
    3,436
    You got it, Flybye. In 24 hours, you all will be coming out the other side and this and starting to get better.
    "My predominant feeling is one of gratitude. I have loved and been loved;I have been given much and I have given something in return...Above all, I have been a sentient being, a thinking animal, on this beautiful planet, and that in itself has been an enormous privilege and an adventure." O. Sacks

  15. #15
    Join Date
    Nov 2007
    Location
    Western Canada-prairies, mountain & ocean
    Posts
    6,984
    Best wishes for good recovery for DD!
    My Personal blog on cycling & other favourite passions.
    遙知馬力日久見人心 Over a long distance, you learn about the strength of your horse; over a long period of time, you get to know what’s in a person’s heart.

 

 

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