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  1. #1
    Join Date
    Jan 2006
    Location
    Pacific Northwest
    Posts
    3,436

    Update on Sheldon Brown

    For those of you who know of and love Sheldon Brown, I thought you might want to know he finally did get a diagnosis: primary progressive MS. You can read his health blog at this link:

    http://sheldonbrown.org/journal/health.html

    And he is still relishing life and posting regularly about it at this link:

    http://sheldonbrown.org/journal/journal-0709.html

    And I am really sure he is the Sheldon who plays scrabble on the online Pixie Pit website. With a Hall of Fame game where he scored over 700 points (against his daughter Tova).

    What an extraordinarily cool guy. And has given us so much great bike counsel!
    "My predominant feeling is one of gratitude. I have loved and been loved;I have been given much and I have given something in return...Above all, I have been a sentient being, a thinking animal, on this beautiful planet, and that in itself has been an enormous privilege and an adventure." O. Sacks

  2. #2
    Join Date
    Aug 2003
    Location
    Bendemonium
    Posts
    9,673
    Thanks for letting us know. I was thinking about him the other day and wondering what was up.
    Frends know gud humors when dey is hear it. ~ Da Crockydiles of ZZE.

  3. #3
    Join Date
    Dec 2003
    Location
    Folsom CA
    Posts
    5,667
    Sheldon is so cool.

    As is his wife. She wrote one of the best PBP reports, ever.

    I had a rain cape, two sewups, rim tape, spare batteries and bulbs, tools including a spoke wrench, freewheel remover, and a big adjustable wrench. I had glucose tablets, something like Gatorade powder, pātes de fruits (fruit jellies), a kilo of prunes (to combat one of the problems during the 600 km brevet that I forgot to mention), and . . . a chicken, whole and roasted.

    What can I say, she's my hero.

    2009 Lynskey R230 Houseblend - Brooks Team Pro
    2007 Rivendell Bleriot - Rivet Pearl

  4. #4
    Join Date
    Sep 2007
    Location
    orygun
    Posts
    1,145
    Quote Originally Posted by jobob View Post
    Sheldon is so cool.

    As is his wife. She wrote one of the best PBP reports, ever.

    I had a rain cape, two sewups, rim tape, spare batteries and bulbs, tools including a spoke wrench, freewheel remover, and a big adjustable wrench. I had glucose tablets, something like Gatorade powder, pātes de fruits (fruit jellies), a kilo of prunes (to combat one of the problems during the 600 km brevet that I forgot to mention), and . . . a chicken, whole and roasted.

    What can I say, she's my hero.
    I can see why!!!

  5. #5
    Join Date
    May 2007
    Posts
    317
    Ouch. MS is not a nice disease at all for an active person. Hopefully the diagnosis means he can find a medication that will slow the progression. Still... ouch.

    (A close family friend has MS, and has degenerated very quickly.)

  6. #6
    Join Date
    Aug 2003
    Location
    Bendemonium
    Posts
    9,673
    Torrilin, yes, MS is not a nice disease, but realize it has many, many types and presentations. It doesn't alway mean inactivity or disability. I have it and, so far, it has made little difference to my physical activity level. I've had one flare brought on by a bunch little simultaneously occuring events. The flare taught me a lot about the disease but that's it. I have to pay attention to heat, fatique and stress all ocurring at the same time but really it only means that I've learned to say "No" when I wouldn't have before. That's a lesson probably most of us need to learn. I bet you are acquainted with many people who have the disease and you don't know.

    OK, I'll get down off my soap box. I just don't want people to think MS is always disabling.

    -- SK (in far better shape than the average couch potato Amurcan)
    Frends know gud humors when dey is hear it. ~ Da Crockydiles of ZZE.

  7. #7
    Join Date
    Jan 2006
    Location
    San Francisco, CA
    Posts
    1,080
    gosh! this seems so late in life for him. most of the folks I've known with MS were first diagnosed in their 20s or 30s.

    Sheldon is a good man and has contributed so much to the cycling world. I'm glad to see he's sharing his health experience through his blog.

  8. #8
    Join Date
    May 2007
    Posts
    317
    Quote Originally Posted by SadieKate View Post
    It doesn't alway mean inactivity or disability.
    Nope. But it's easy for a seemingly minor MS symptom to take away an activity that someone loves. Dan, the family friend with MS, was an organist. He's still a great musician, but he'll never play the organ again. He started out playing with superhuman perfection. He slowly started making mistakes, and then suddenly, it was more mistakes than music. I'll never get to hear him play again. I'll still get to hear choral music that he directs, but a choir isn't the same, and it's not the instrument he loves best.

    Unlike a lot of other chronic diseases, there's no good treatment for MS. There's not even a way to reliably slow the progression of symptoms. People can live for many years with no real trouble from the disease, and then suddenly need a wheelchair.

    I really hope you and Sheldon don't go through anything like what Dan did. It's awful to watch, and it's got to be worse to live through it.

 

 

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