Help! I hate to admit this

[LBTC]

Well, ladies

I hate admitting this, but I am feeling sorry for myself tonight.

It's difficult adjusting to this new restricted diet. It's hard knowing that I have a disease that could be very serious at some point. I feel bad feeling sorry for myself when so many others are having worse things happen in their lives.

But if I ignore this feeling it won't just go away, so I'm trying to release it by writing it. Maybe it will dissipate?

I ask the question why me? Why is it that there are people who eat fast food, donuts, gravy, gallons of cows milk, artificial sweeteners and drink loads of coffee that don't have this??? I don't do those things. I haven't been perfect, but I have always been careful about what I eat, I have been reading labels for 20 years!!

It's frustrating. Tonight I came home from work with a headache and exhausted. I took my medication, then layed on the couch huddled in a blanket. My cold hands and feet would wake me up with a shiver, then I'd fall asleep again. When I finally woke up I felt like I'd slept a long time but wasn't really rested.

Argh. I'm embarassed to admit that I can be so self-centered and so pathetic. I hope I wake up with a song in my heart and butterflies around my head....

Thanks for listening.

Hugs and butterflies,
~T~

[margo49]

Having faced cancer and a life-threatening accident I would give you this advice fwiw:

Remember that your body itself is always managing itself towards wellness and balance on all fronts. We help it along by acting on medical advice.
But it is still a process that takes *time* and has its moments of crisis - physical and mental.
However the *direction* is always towards health and wholeness.

I think it is very important to try and keep as calm as possible (not always easy) and to concentrate on positive and beautiful things.
And keep an eye out for those wonderful moments that are all the time there in our life but we don't always pay them particular (enough) attention eg sunrises, sunsets, small acts of kindness that we receive, see or even hear about (like at the very end of the tv news).

Thinking of you...

[uk elephant]

Don't feel guilty about feeling down! I totally understand, as I tend to do the same thing. It's taken me years to come to terms with being chronically sick. I still occasionally curl up under a warm blanket feeling sorry for myself. What I've found is that I usually feel much better in the morning. I'll allow myself the occasional evening at home under a warm blanket on the couch with some yummy treats (whatever I feel I can handle at the time, regardless of calories) and a hot cup of tea and something comforting on tv. Maybe even a sad movie to cover up the fact that I'm sad for a very different reason. Then I go to bed, wake up the next morning feeling tons better. Other things I find helps is to look for signs of progress. Stablilising a chronic illness and brining it into remission isn't done over night. But little steps of progress are evident along the way. For instance, having a whole day without running to the bathroom (or more hours between runs than previously), or noticing that my joints aren't aching so much anymore. Or realizing that I just ran half a block to catch the bus and my stomach didn't revolt (which is usually does when I try to run which is why I gave up running for exercise). Or any other number of little things. Or something completely unrelated to my own health like seing wildlife on the bike path coming home from work or a beautiful sunset, or a good song on the radio (no matter how I feel, I cheer up and start dancing whenever MaisQueNada by Sergio Mendes & Brazil66 comes starts up).

Whatever you do, remember that it is perfectly normal to feel sorry for yourself occasionally. The feeling does pass. Just make sure to take care of yourself!

(((((big hugs))))

[koala]

Fight it! Fight it hard, like you really mean it! Don't let it drag you down into a cycle of depression. It's winter, which makes it harder to be positive because it's cold & dark. So try hard to get some sunshine on you every day, and keep physically active. Keep those endorphins hopping around. If you can't ride right now, do something else to raise that heart rate & get the blood pumping.

Go ahead & curl up under the blanket with a hot tea or cocoa. But don't do it if you are feeling sorry for yourself, do it after you've worked hard at something to reward yourself. And pick up a book, keep the mind active, too.

Every single person who posts on this forum is a fighter. We wouldn't go out & ride day after day in all kinds of conditions if we weren't (either that or we're all insane!). So now it's your turn, & fight 'em good! Write whenever you want us to listen. But be warned -- we just might write back!

Hugs & butterflies to you,
and thanks for sharing your photos, they are so beautiful...I will be checking back to see more of them.

[KnottedYet]

hang in there!

Food is so tied up with comfort and cozy emotions, that it's very hard (at least for me) to accept that I'm cut off from a huge portion of it. But over time whatever you find to substitute for the previously meaningful foods takes on that same value and comfort.

Your diet is VERY restricted right now, but the ND only wanted you doing that for a few weeks, right? Then he was going to let you start adding things in? Can you look at it from an injury metaphor? Say you'd sprained your ankle, and the doc told you to rest it and heal for a few weeks. Wiggle your toes, swim, but no biking or walking. Then later he'd let you start adding activities.

It's sort of the same with your gut. Limiting it's "activities" for a few weeks so it can start healing, then adding things back in.

I've had years to figure out what I can and can't handle and the various behaviours my gut performs. Some days I can drink milk and eat peanuts, some days I can't. Some days I can lick envelopes (gluten in the glue) some days I can't. After your gut has some time to catch up, you will be able to get a better idea of it's behaviours. Give it these weeks of rest and it will likely be in a better mood!

I'm not a patient person, so I won't tell you to be patient. Do whatever you need to get through the restricted phase. Just don't "cheat" if you can possibly help it. When things have calmed and settled down in your gut you and your doc will be able to get a clearer picture of the next steps.

Meanwhile I'll drink all the coffee you aren't drinking!

Edit: By the way, I think self-pity has a useful function. I think it's a form of perspective-gathering and venting. My tendency is to wallow in it (I even sing "The Worm" song and REALLY wallow) and get it over with. The more ridiculous, the better. Once I've gotten my self-pity satisfied I feel so much better!

[LBTC]

Thank you, ladies

This morning I still feel melancholy. I know that the weather doesn't help and that having to go to work today isn't great, but, hey, if I were to stay home I'd just wallow, so hopefully I'll get over it quicker this way, right?

Margo, thank you for the reminder. I've been sharing lots of hugs with my DH and my dog; and I'm going to go look at some of my photos of flowers and sunsets and bugs and stuff before I go to work.

Uk, thank you for understanding. This morning isn't much better, but I know I won't let this last. If tonight isn't better all by itself, I'll find some fabulous movie or music to help.

Koala, thank you! You're right, I will fight this. I've decided, though, that the extra support I get here helps in the fight. If I just pretend I haven't felt sorry for myself, it doesn't really heal it. So, now it's out there and I'm working on it. Tonight I will do kickboxing when I get home. If that seems too hard, I'll spin on the bike. Yes, I need to get more endorphins.

Knotted, thank you! What a great analogy. I was comparing this whole thing to injury before, but only focusing on the differences. When I had a broken shoulder the path to healing was clear, and took time. I hadn't thought about the similarities, so this is a really helpful thought process for me! The severe restrictions of the diet will go on for at least a few weeks, but probably months; but, you are right, there will be a time when I will be able to eat a greater variety of things.

Well, the feeling's not quite gone yet, but your thoughts are helping. Please keep them coming!

Hugs and butterflies,
~T~

ps - Koala, if you PM me your email address I'll add you to my pictures list - I send a picture out to a list of people virtually every day.

[bouncybouncy]

In a backwards way I, too, am doing my own wallowing. I have not figured out why I feel the way I do but the wallowing seems to help seek inside and figure things out.

It is comforting to know that the feelings are normal and that you are not alone...at least for me.

Sending you Butterflies and may you find peace and health soon....


btw: I am a photographer lost in the cave of doing photoshop for others, not able to find the time or motivation to do my own...looking at your website gives me bits of inspiration that is slowing building to the point of longing to produce my own images....Thank You!

[LBTC]

Thank you, Bouncy! It does help to feel less alone! But I'm sorry for the situation you're in and hope that you can find a way to a better place for yourself!

I've lived in a negative town, worked in an office with terribly low morale, tried to keep biking in a horribly fractured community, and finally DH and I decided to move. It's been a huge change and the only negative is this health issue. On the other hand, the health issue would probably still exist, but the town I was in before didn't have the same facilities so I would probably not yet have a diagnosis!

I think what I'm trying to say, bouncy, is that you owe it to yourself to explore some options and see what you can change so that you can love life again! Even if the only change is to find an hour a week with your camera and your eye and no other distractions.

Good luck!

Hugs and butterflies to you,
~T~

[singletrackmind]

Diagnosed at 28, large bowel removed at 48. She waited almost too long for that and felt better than she had in years after she healed. That was mom. She didn't like what was going on, obviously, but she accepted what was handed to her and didn't dwell...most times. She just kept doing the things she wanted to do despite the compromises and found pleasure in that. It sucks, it really really does. Writing stuff down and receiving support is therapeutic indeed. Don't feel bad about feeling bad, it's ok even if there are people in worse condition. Just try not to spend too much time dwelling because life is too darned short to concentrate on something you can't change. Geez, easy for me to say, huh?

My favorite movie is Life is Beautiful (sub-titled). I wish I were more like the main character. It's a terribly sad movie in some ways. The way Guido embraces life is very inspiring. Highly recommended for a wallow fest.