tips for better mammogram? [Archive] - Women's Cycling Discussion Forums

KnottedYet

11-01-2011, 05:09 AM

Imagine lying on your stomach (nekkid) on a cold tile floor.

Imagine rolling onto your left boob and squishing it for about 15 seconds, then rolling onto your right boob and squishing it for about 15 seconds. Then do it again.

If that sounds like agony just before your period because your boobs always hurt then, don't schedule the mammo for that week.

If the thought of a mammo utterly freaks you out, don't be shy about asking your doctor to prescribe you a valium to take beforehand. (one of my coworkers used to be a mammo tech, and the freak-out stories she tells.... whoa!)

It's not the most pleasant experience in the universe, but if you've ever struggled into a sports bra that was too small and then gotten stuck with the band halfway across your boobs and survived, you'll do fine.

redrhodie

11-01-2011, 02:20 PM

Knot, thanks so much for that image. :D It really helps. I never get tender breasts, so it makes me think it might not be so bad for me. I think I'll still take a painkiller, jic.

redrhodie

11-07-2011, 12:23 PM

I did it. It wasn't bad. For anyone who is wondering what it's like, it's like sticking your boob in a photocopier, and closing it really tight. Then doing it again sideways. It didn't hurt, even though there was a lot of tugging. My tip, wear a front closure bra. I had to dress and undress a couple of times, and was regretting my Ibex sports bra choice.

The lump is a calcification, and they recommend a biopsy. There's a 95-97% chance it is not cancer, or, as the radiologist put it, a 3-5% chance it is. :rolleyes: My glass is always half full. Since I've never had a mammogram before, they have nothing to compare it to, so would rather be cautious and biopsy. Part of me is inclined to wait and recheck it in a few months, but I've been read the riot act by a few who care, and will be getting the biopsy, and calling it done. I guess that actually might be better than getting more mammograms this year, and always wondering about it in the back of my mind.

It's very near the surface, so I'm hoping that will make it easy. He also said it was in a place that would suggest it would be a non invasive type of cancer, if it is that, which it's not.

Thank you all for your concern. I know a lot of you have been through this, and know what it's like. I also know this is pretty normal, not something to freak out about. I have gained a lot of courage, knowledge and strength from you.

OakLeaf

11-07-2011, 01:21 PM

Hang in there red.

You didn't ask, but tips for a better stereotactic needle biopsy:

Ask for a sedative. And ask for a dosage that's strong enough to do more than keep you from chewing your b00b off to get out of the machine. If you're prone to back pain, it's even more important, since the sedative will act as a muscle relaxer, too. You'll be locked tightly into spinal extension for about two hours.

Bring an mp3 player with some soothing music on it. I can't guarantee they'll let you use it, but they let me, and I was hugely glad of it.

Don't believe what they tell you about pain and recovery. Compared to some of the surgeries they have to do, obviously a needle biopsy is quite minor, and that's the standard they compare it against in their minds; but it's still an invasive procedure on a very sensitive part of your body. Depending on how sensitive you are, expect it to be a day or two before you can wear a bra; maybe 3 days to ride a bike on smooth flat surfaces; a week to ride steep hills or major bumps, or to run; a good two weeks to do anything that requires a lot of reaching or rapid arm movements like aerobic classes. Don't let them send you home without a day or two's dosage of some decent pain pills.

The volume of your breast won't come back, but there won't be such a noticeable divot after a couple of years.

And please have a plan for what you will do if the biopsy comes back anything but clear. Hopefully you made those plans before you agreed to the mammogram ... basically the less emotional pressure you're under when you have to absorb a whole lot of medical literature, the better. Be aware that the results won't necessarily be binary; there are many types of abnormalities considered "pre-cancerous" that you might need to make decisions about.

Good luck - wishing you the best. ((((((red))))))

redrhodie

11-07-2011, 02:49 PM

Thanks, Oakleaf. I remember your situation, and that it was really traumatic and painful, and that is part of why I'm reluctant to have this biopsy done, when it's pretty likely to be benign. I was hoping I wouldn't have to go down this road, but here I am. I think mine will be a fine needle biopsy, and the radiologist told my NP an MRI or ultrasound is not needed to guide the procedure, since it's so close to the surface they can feel it. He even said it could be done in my Drs office, but I'll have it done in the hospital. All of that leads me to believe it won't be that bad, but I'll plan on being laid up for a while, and it not being fun.

A friend of mine had a very painful biopsy last year, and a painless one this year, 2 different surgeons at the same hospital I'm using. I'll be opting for the second guy.

If it is something I have to deal with longer term, I will do whatever it takes, one step at a time. I watched 2 friends go through different treatments for different stages this past year, and I know that it's a huge thing to get it EARLY, which this is. I'm not giving this anymore thought than that right now, since it's too soon to worry.

indysteel

11-07-2011, 03:01 PM

(((red))). I'll be thinking of you and hoping for a positive result and a speedy recovery.

And, Oak, thank you for your thoughtful insight as someone who may be in red's shoes sometime.

Crankin

11-07-2011, 03:16 PM

Thinking of you, Red.
For what it's worth, I had a very similar situation when I was 32 years old! I had a fine needle biopsy done right in the surgeons' office, and I don't remember any pain or terrible after effects. I also had my first mammogram done at that tender age and the calcification ended up just going away. I know this was back in the dark ages of breast cancer care, but I was quite freaked out (my youngest son was only 1 year old) that my 2 little kids would be motherless, and it turned out fine.

redrhodie

11-07-2011, 03:55 PM

Thanks, Indy. That means a lot to me.

It helps to hear that, Crankin. I like hearing incidents where it turned out to be nothing. My mind keeps going to that "what if" place, and that story keeps it in perspective.

I think things like this happen to make you appreciate life in a more focused way. I feel very loved right now, so that's the good that's come from this. It's almost tangible.

indysteel

11-07-2011, 04:03 PM

I'm so glad you feel loved. How wonderful. You've had a tough year it would seem; your positivity shows a lot of grace.

Grits

11-08-2011, 06:48 AM

Here is another "turned out fine" one, since they make you feel better! I had micro calcifications turn up in a routine mammogram. Radiologist recommended watching and waiting for six months, MD recommended going to see a surgeon, surgeon recommended a biopsy since the calcifications were in a duct and branched out. They did an image guided Mammotome (brand name!) needle biopsy since my calcifications were quite deep and could not be felt. I was told to wear a tight bra, which helped a lot, and only needed tylenol or advil after the procedure. I'm sure if a lump had been excised, I would have needed stronger pain relief.

The thing that bothered me the most was that I was lying face down on a table (which was raised HIGH and had a cut out in the appropriate place, sorry, TMI and unnecessary mental image), with my head turned to look right. I have some mild neck issues, and that position really started to bother me after a while, but they don't want you to move, and I kept thinking they were almost done, so I just suffered through it. The biopsy itself involved very little discomfort. Just the initial numbing.

I wish I had taken my ipod. That would have helped make the time pass faster.

redrhodie

11-08-2011, 02:04 PM

Glad yours turned out so well, Grits! They mentioned that face-down option, and it didn't sound fun to me. I'd rather be on my back or side, if given the choice.

Mine is scheduled for Mon. I got a call from the Breast Center, and they made the appt for me with a female surgeon, which I'm very happy about. They said she may or may not biopsy it, based on what she feels in the exam. So, fingers crossed she thinks it's okay, but either way, I'll have an answer soon.

Catrin

11-09-2011, 04:40 AM

Good luck Red! Sending good thoughts and prayers your way.

pll

11-14-2011, 05:23 AM

Red: we will be thinking about you today. Best of luck!

redrhodie

11-14-2011, 06:16 AM

Thank you! My appt is late this afternoon, and I know already that even if a biopsy is done, I won't get results for a while, but I'll post them here as soon as I know. My friend who just had another biopsy said based on the location and other things I've told her, mine should be a piece of cake. Hers came back benign this time. I'm so happy about that!

She explained that the worst thing about all of this is the waiting. I have issues with patience anyway, so this has been a test for me. I had a strange reaction to the stress the other day, which I was a very aware of happening, but I couldn't stop it until my friend calmed me down with her level headed-ness. I spent a good deal of my time at work cleaning my bench, and all my clothes felt wrong, and my hair felt awful on my neck. I was very uncomfortable and needed all my tools to be aligned. It was maybe something like mild OCD. I'm since back to my slightly less neurotic self. :rolleyes: It will be nice when this is over.

indysteel

11-14-2011, 06:26 AM

I'll be thinking of you, Red! I hope it all turns out to be nothing.

OakLeaf

11-14-2011, 08:10 AM

Thinking of you.

GLC1968

11-14-2011, 08:26 AM

I'll be thinking of you too, red!

Here's another 'nothing' story for you. I was 20 when we found a rather large lump in my breast. My doc kind of joked that if it was cancer, we'd both be famous. They tried a needle biopsy but got nothing out of it. We opted to just watch it for the time being. A little over a year later, my mom was diagnosed with breast cancer, so I opted for a lumpectomy on mine...just to be certain. I was 22.

Turns out, it was a large fatty mass (doc showed it to me during surgery!) and I've been lump-free since then (that was 21 years ago). The only downside (besides having to wear two sports bras for a few months after surgery when exercising) was that this all occurred in my already naturally slightly smaller breast, so when it was all over, my breasts ended up almost a full cup size different from each other. Annoying, but certainly not the end of the world.

Oh, and my mom is a 23 year + cancer survivor, too. :)

pll

11-14-2011, 02:40 PM

I have issues with patience anyway, so this has been a test for me.

You are not alone! Whenever I am in a waiting area or waiting for some test result, I always get miffed we are called "patients". "Patient" is the last thing I am!

spokewench

11-14-2011, 02:43 PM

Trying to send some patience your way Red. I'm sure it will turn out just fine.

I'll be thinking about you till you find out!

redrhodie

11-14-2011, 03:53 PM

So, today's visit turned out to be just a consultation. Core needle biopsy is on Wed, with ultrasound imaging, so not in office/fine needle as I was hoping for. My other option was to get it excised (a surgery), but then based on the biopsy, it could require another surgery after that to remove more, so I opted for the less invasive procedure, which she (the surgeon) recommended.

The surgeon was very nice, and said she's not convinced it's cancer...yet. I wish she left the yet off. But I feel very informed now. The Breast Center sends in a person to walk you through each step. Literally, they will be coming with me to my next appt. There are lots of hugs and they are very supportive. I'm a hugger to begin with, so I'm okay with it, but I'm sure it would be overwhelming to some, to be hugged by total strangers, who consider you part of this exclusive club no one wants to join. Hopefully, my membership is limited. Remember that Groucho Marx quote about clubs? I feel like that.

Crankin

11-14-2011, 03:58 PM

Hoping you have a relaxing evening tonight and can stay calm for the next 1.5 days.
Really no other words of wisdom, except that I am thinking of you.

redrhodie

11-14-2011, 04:07 PM

Thanks! I'm feeling much better. Definitely back to feeling like I'm going to be okay.

OakLeaf

11-14-2011, 05:15 PM

It's great that they're so supportive. Did you get to meet the radiologist (or I guess ultrasonographer) who will do the biopsy? Hang in there... keeping my fingers crossed for you.

indysteel

11-14-2011, 05:26 PM

Well, since you're a hugger: ((((red))))! Please keep us posted.

pll

11-14-2011, 05:44 PM

Red -- a virtual hug!

marni

11-14-2011, 07:47 PM

The thing that bothered me the most was that I was lying face down on a table (which was raised HIGH and had a cut out in the appropriate place, sorry, TMI and unnecessary mental image), with my head turned to look right. I have some mild neck issues, and that position really started to bother me after a while, but they don't want you to move, and I kept thinking they were almost done, so I just suffered through it. The biopsy itself involved very little discomfort. Just the initial numbing.
.

I had similar situation only then they all left the room for about 15 minutes while they examined the x rays - I kept calling out hello and asking if I could move. After about 15 minutes one of them wandered back in, told me not to move and wandered out again for another 5 minutes, til they all came back, did the whole thing over again except the numbing and then sent me home. I had a stiff neck that hurt more than anything in the boob for about a week. Wish I had thought to take a sedative and brought my ipod. Both would have helped, but some consideration from the biopsy people would have made a big difference- like just mentioning that they were leaving the room to take a look at the results or something.

opefully no one else has it as bad.

marni

redrhodie

11-15-2011, 12:45 PM

No, I didn't get to meet the radiologist. It sounds like they travel between hospitals, so you get who is working on that day. So far, everyone has been super nice and very conscientious, and every minute detail has been explained, with diagrams, maybe more than I'd like to know:o.

I've been told that I shouldn't feel anything, and if I do, tell them to stop and give me more lidocaine. This should not hurt at all. If it does, they will stop. I'll be on my back, which I'm relieved about. Being face down sounds pretty uncomfortable. I got a detailed packet explaining what to expect during and afterward. I'm bringing a couple of bras for afterward. Not knowing exactly how I'm going to feel, how large the bandage is, how the ice packet will fit in there, I want options. No advil (for 5 days prior), only tylenol afterward for pain, which I'm pretty bummed about. No aspirin, either. There were also some supplements that you're supposed to avoid for a few days before, but I don't take them, so I can't remember which. I think fish oil was one. No heavy lifting the following day or 2, but okay to drive. Anyway, I hope documenting this here helps someone someday. There's a lot of unnecessary stress involved, but I think information, knowing what to expect, is key to feeling okay. I really don't feel worried at all right now, and I got a good night's sleep last night.

Thanks for the hugs! Right back at you!

Blueberry

11-15-2011, 12:54 PM

Yay, Red. I'm so glad that you're calm about this. I think that makes a world of difference. Will keep sending hugs and positive vibes your way. The statistics are definitely on your side!

redrhodie

11-15-2011, 01:25 PM

Yay, Red. I'm so glad that you're calm about this. I think that makes a world of difference. Will keep sending hugs and positive vibes your way. The statistics are definitely on your side!

Definitely! This thing is most likely benign, but if it isn't, I'm really glad I found it and got it checked out right away. I'm a huge procrastinator (have to be, it's in the slacker handbook) but if it is malignant, waiting is really bad. I've read enough of your stories, and been impacted by them, Marni's for example, to know that this could happen to me, or any of us. Even though I "do everything right" :rolleyes: better people than me get cancer.

emily_in_nc

11-15-2011, 04:22 PM

Will be thinking of you tomorrow, Red. You will be so relieved just to have the biopsy over with, and hopefully will get negative results soon thereafter!

redrhodie

11-16-2011, 12:07 PM

Well, I didn't get the biopsy today. After the radiologist looked at it, he determined there was a possibility he wouldn't be able to get a good sample. He didn't want to put me through the procedure (it's in a very sensitive area) if he wasn't sure he could get to it. He was very kind and gentle. I could feel his hesitation, so I decided to go with his gut. I'll be having a surgical biopsy instead.

indysteel

11-16-2011, 12:17 PM

I'm glad that he was honest about it, but I'm sorry you keep gearing up for this only to have it put off. Are you still doing okay? What will a surgerical biopsy entail?

redrhodie

11-16-2011, 12:38 PM

I'm still good.

The surgeon will excise the whole lump. It will be a local anesthetic, but I'll be sedated. There will be an incision and stitches. My friend just had this surgery 2 weeks ago, so I know what to expect (she slept through the whole thing). She said it hurt afterward, but she doesn't believe in pain meds. I do. Why suffer?

At least then it will be gone, and not something I'll always be wondering about. It's probably a good thing.

I have no idea when this will happen. I'll be getting an appt tomorrow.

Blueberry

11-16-2011, 12:44 PM

(((((redrhodie)))))

So sorry you weren't able to get a quick and easy resolution.

redrhodie

11-16-2011, 12:52 PM

Ha! The quick and easy boat has sailed! I'm okay with it, though. My pulse was in the 50s in the office today, so I'm pretty calm still.

I have to say, this hospital is awesome. They never left me alone in the room. They had someone meet me when I got there, and sit with me while I waited to go in. They brought me a towel for over my eyes (my idea). It was almost like being in a spa, minus the great stuff.

Crankin

11-16-2011, 12:58 PM

Although they are drawing this out, it is rare to find someone so honest! That is a good sign.
It sounds like a great hospital. The surgery doesn't sound that terrible, in the total scheme of things. I would take the pain meds, too.

emily_in_nc

11-16-2011, 01:53 PM

Yeah, if the sedation is anything like what I got for my colonoscopy this past spring, you'll sleep right through the procedure. I'd actually prefer that to the alternative! And pain meds, I'd sure take 'em too!

Hoping for a good (negative) result for you!

OakLeaf

11-16-2011, 03:29 PM

Ugh. (((((((redrhodie))))))) Hang in there. It sounds like you have a great medical team, and that's so important. Pamper yourself and try to relax as much as you can.

pll

11-16-2011, 06:50 PM

Argh.

Take the pain meds and stay ahead of the pain. The ones they can put in the IV line make a huge difference in a matter of seconds. And, if you are cold... they have warm blankets. If the sedation is anything like I've received, the 'reboot' of your brain is fun in a weird sciencey way.

redrhodie

11-21-2011, 01:31 PM

Tomorrow is the big day. I find myself mourning my normal old breast. It wasn't anything to write home about, but in retrospect, it was perfect. But, soon the lump will be gone. It may not be perfect after, but it wasn't even when it was, so who cares!

At today's consultation with the surgeon, she said she'll be removing a walnut sized piece, which to a surgeon is tiny. It's huge to me, especially since I'm small. I told her I'd rather she take less, since it's most likely benign, and she agreed to. I'm glad I spoke up. I suppose this means if it is cancer, more will have to be taken later, but I'm willing to risk that. Keep your fingers crossed I'm making the right decision!

Blueberry

11-21-2011, 01:40 PM

((((((((redrhodie))))))))))

Will be thinking about you tomorrow. Your feelings are completely normal and legitimate. All I have is sympathy to offer.

Make sure you get the call numbers just in case anything weird happens - since it'll be a holiday 2 days after.

OakLeaf

11-21-2011, 02:49 PM

(((((((red)))))))

Take good care. Hoping everything goes smoothly for you and that you have whoever you need to take care of you (or leave you alone, whatever you need) over the holiday.

Crankin

11-21-2011, 04:08 PM

Good luck, Red. Keep us posted.

indysteel

11-21-2011, 04:15 PM

More hugs to to you, Red. As a small breasted woman myself, I can relate to your feelings. But perfection can take many imperfect forms. I'll be praying that it's the Big B; not the Big C. We'll be thinking of you. Please keep us posted if you can.

Catrin

11-21-2011, 04:52 PM

Hugs and best wishes for you Red, hope everything goes well!

Owlie

11-21-2011, 05:33 PM

Hugs, Red.

pll

11-21-2011, 05:50 PM

Best wishes, Red!

Red Rock

11-21-2011, 05:59 PM

Hoping that everything goes well for your during and after your surgery. Healing thoughts your way......

Red Rock

margo49

11-21-2011, 10:43 PM

Good luck!
Yeah actually I did the surgeries for my recurrence (2009) under local. You have to be a bit mentally disciplined but it is so good that you are outta there much quicker (than if you were under general).
Good decision on the incision! (Good poetry, huh?). I had multiple surgeries (both in 1996 and 2009) coz I had said "Take out as little as possible" and I would stick with that again even at the risk of more surgery.
Keep us posted
In my thoughts and prayers...

lph

11-22-2011, 01:33 AM

Red! I've missed this thread. Cheering you on today! Go do what has to be done, and move on. No-one gets out of life without scars, but this one will show that you were on top of things and taking control over your own health and wellbeing. Go for it!

redrhodie

11-22-2011, 03:07 AM

Thanks everybody! I slept well, am really thirsty, but so far, managing the fast well. I'm a big eater, so I was worried I'd feel awful by now. So far, so good (it is only 7 am though! :eek: I have several more hours). I'll be in good hands. Might not update until tomorrow.

Margo, thank you so much for your input. It's good to know that you would do it the same again.

pll

11-22-2011, 05:20 AM

Red, if you can, take a scone or something tasty to eat after the surgery! I had two outpatient surgeries and the things they offer you at the hospital are unappetizing (the saddest muffin I've ever seen, crackers...). Best of luck!

redrhodie

11-22-2011, 01:04 PM

I'm back! It went really well. I don't remember the surgery at all, even on just a sedative and local anesthetic. I have no pain yet. I have an ice pack and am taking Vicodine. Everything went completely smoothly. Thanks pll for all the advice. I had 4 heated blankets on me, which I wouldn't have asked for if not for your suggestion. I was freezing.

Post Op, they gave me water, then toast with PB, and coffee, and it tasted so good to me. It was wheat Wonder Bread, which I haven't had in probably 25 years, so I think I was just so ready for food, anything would have been delicious. Or, I must love Wonder Bread. I didn't have any nausea or dizziness, either.

When I asked the surgeon if it would look okay, she, in humble way, said she was really good, and I wouldn't be able to tell anything had been done. The nurses also said she was great (when she wasn't there), and my breast would be a work of art. :D

Time for more pain meds. Thank you all so much for the moral support. It was much easier because of you.

OakLeaf

11-22-2011, 01:17 PM

Glad it went well. Quick healing to you!

pll

11-22-2011, 01:44 PM

Glad it went well! Get some good food and a lot of rest.

spokewench

11-22-2011, 01:58 PM

Sounds like it went well Red! Hang in there; we are all routing (Sp?) for you!

Blueberry

11-22-2011, 03:46 PM

So glad to "see" you checking in and doing as well as could be expected. Here's hoping for speedy healing:)

indysteel

11-22-2011, 04:28 PM

So good to hear from you, Red. I'm relieved it went well and that the surgery part is over. I'm praying for good news.

malkin

11-22-2011, 05:40 PM

Good healing to you.

Catrin

11-22-2011, 05:42 PM

Really hoping/praying for good news and glad to hear that things went so well!

marni

11-22-2011, 07:08 PM

Red, glad it all went well. good for you for being a brave soldier. Drink lots and lots of water to help your body flush the anesthetics and pain meds. Heal fast but don't push yourself.

been through it twice and so glad it went well, I will continue to stomp and wave and sing for good results.

marni

lph

11-23-2011, 01:45 AM

Red, you're a trooper and you will look beautiful, even more so for being well on the inside.

redrhodie

11-23-2011, 04:25 AM

Awww, thanks.

I felt queasy and dizzy after the Vicodin last night, so I took only half of the next one, and then moved on to Tylenol 6 hours later. There is no pain at all in my breast, so I probably don't even need that anymore. I've also stopped icing, which I think helped more than the pain killers. My hand, where the IV went in, is the only thing that's a little uncomfortable, and sleeping wasn't good. It feels too soon to lie on my side, so I tried to stay on my back, which isn't the way I normally sleep. Other than that, I think I'm doing really well.

DBF will be making dinner tomorrow, and the only thing I might do is an apple crisp. Easy. I'm not going on my normal pre-guest cleaning frenzy. I'm sure they don't care and won't notice anyway. I'm just taking it easy until I can't. I'm already thinking about Saturday's ride. It's supposed to be beautiful here. I think I'll be ready for an easy one, based on how I feel now, but I won't do anything stupid.

Crankin

11-23-2011, 05:16 AM

So happy to hear you are doing well! You probably will be able to ride Saturday; just don't push it, if you don't feel like 100%. It's supposed to beautiful this weekend.
Hey, I was thinking, one of these days we should meet and maybe do a ride on the South Coast; probably next spring!

Catrin

11-23-2011, 05:42 AM

I am very glad to hear that you are recovering so well! Enjoy the holiday tomorrow, and the great ride you have planned for Saturday!

redrhodie

11-23-2011, 05:45 AM

Crankin, that would be great!

emily_in_nc

11-23-2011, 02:19 PM

Happy to hear that you're doing well, Red. Isn't it nice that they can give you meds (non general anesthesia) where you don't even remember a medical procedure/surgery?! Loved that when I had my colonoscopy in the spring. No memories except before and after.

Hoping for very good news for you soon!

Emily

goride

11-26-2011, 06:12 PM

I guess I am way behind on reading the forums as I just saw this thread. Hoping that you get a good report and that waiting for the results isn't causing you too much stress.

redrhodie

11-27-2011, 06:14 AM

Thanks!

I'm healing really well. Taking off the bandage was scary. I had this fear it would look like the Bride of Frankenstein's breast, :eek: so I was relieved to see it. It looks better to me than before, which I assume is more emotional than aesthetic. Except for the stitches, you can't tell anything was done, and it feels normal.

I got back on the bike on Fri, and rode yesterday and today, too. I'm just taking it easy, and not overdoing it, but riding feels great. I still feel a bit tired, so I'm relaxing as much as I can. I'm not worried about the results. I know whatever it comes out as, I will be okay.

Except for the nausea from the pain killers, this part was painless.

OakLeaf

11-27-2011, 06:22 AM

So glad it's going well for you. Keep taking care of yourself.

snapdragen

11-27-2011, 07:55 AM

redrhodie

11-27-2011, 12:13 PM

How did I miss this thread? Oh, I know, I had a horrendous mammogram last year and didn't want to add anxiety. Glad I womaned up and read through the whole thing. You've had quite the odyssey Red - it sounds like you've had awesome doctors and nurses.

Thinking good thoughts for you.

Hey, thanks for holding off on that! Now that mine is over, what happened with yours? Was the mammogram itself the problem, or the results?

malkin

11-27-2011, 01:16 PM

Way to go red!
You rock!

snapdragen

11-27-2011, 02:13 PM

Hey, thanks for holding off on that! Now that mine is over, what happened with yours? Was the mammogram itself the problem, or the results?

The last one I had was a problem. The technician had to have been a sadist. At one point I was almost hanging by my boob. I said, "uh, could you lower this a bit, I'm on my toes". Her reply? "But I have you placed perfectly!" I've never had such a painful mammogram, I actually had bruises the next day. :eek:

I thought is was me, but a friend of mine went to the same place and got the same woman. She hurt her too. I'll be sure to let them know I will not allow that woman near me next time I go in.

eta: I've also had a couple with scary results which turned out to be fine -- but the waiting is horrible. Hang in there.

pll

11-27-2011, 02:50 PM

The last one I had was a problem. The technician had to have been a sadist. At one point I was almost hanging by my boob. I said, "uh, could you lower this a bit, I'm on my toes". Her reply? "But I have you placed perfectly!" I've never had such a painful mammogram, I actually had bruises the next day. :eek:

I thought is was me, but a friend of mine went to the same place and got the same woman. She hurt her too. I'll be sure to let them know I will not allow that woman near me next time I go in.

eta: I've also had a couple with scary results which turned out to be fine -- but the waiting is horrible. Hang in there.

I think that technician should not be allowed near anyone. Sounds so brutal and unnecessary. :mad:

goride

11-27-2011, 06:34 PM

Glad to read that the healing process is going well and a bike ride does wonders for the spirit.

redrhodie

11-30-2011, 01:46 PM

Still no word. Thanksgiving is making the process slower. I'm still healing. Been riding almost normally, with a tad less effort (I could be tempted to keep that up!). The bruising is in full glory right now. You should see it. It's spectacular. :rolleyes: Feeling good.

OakLeaf

11-30-2011, 01:48 PM

Glad you're doing well! Waiting is so stressful. Hang in there.

redrhodie

11-30-2011, 02:43 PM

marni

11-30-2011, 07:04 PM

Thanks, oak. I don't feel especially stressed out, but I have been sleeping more than normal. I think it's just part of the healing process. I've also been craving salmon like crazy. My body must need the fish oil.

there are worse things to crave- buy some wild caught norwegian salmon, grill with lemon and butter, you've earned it and you deserve it,plus it is extra yummy.

After my lumpectomy I craved guacamole. Listen to your body, it knows.

heal fast and fingers crossed for a negative ( or good) result.

marni

redrhodie

12-06-2011, 06:51 AM

I was so planning on writing one of those I can't believe they put me through all that for nothing posts, but it turns out it was not for nothing. I finally heard yesterday I have an early form of breast cancer, DCIS. It's non invasive, and I will survive, but I most likely need more surgery, and a mastectomy with reconstruction might be my best option. That was shocking to hear (and I don't know for sure that that's going to happen) but just thinking about it, I've decided I'm not willing to fight for a breast that's trying to kill me. I'm okay if it has to go; I don't need it to pedal my bike. I'm worried about it being painful, though. The next step is an MRI, but I still need to heal more from the biopsy, so it will be at least another week before we know what we need to do.

I have so much literature to read. It's like when you apply to college, and you get the big acceptance packet, only this isn't anyplace I applied to. I would have preferred the letter, but I guess this is where I need to be.

On the bright side, I'm so lucky. I easily could have ignored this lump, and it could have turned into something much worse. I have a wonderful life, lots of people who love me, and a lot of support. I'm also lucky to be in great shape. All that time in the saddle has made me really strong and fit. This will be hard, but it's nothing I can't handle.

OakLeaf

12-06-2011, 06:56 AM

(((((((red)))))))

Read lots. Consider carefully. Take good care.

Catrin

12-06-2011, 07:04 AM

{{{Red}}} I am so sorry to read this, but thankful they caught it early.

indysteel

12-06-2011, 07:07 AM

((((Red)))). I'm really sorry for the diagnosis. Hang in there and, as Oak suggested, read lots and consider carefully.

Blueberry

12-06-2011, 07:18 AM

((((((((((((((((red))))))))))))))))))))

I was so hoping that this thread being active meant there was good news for you. Take your time - it does sound like you have that - in considering your options. Hugs.

Owlie

12-06-2011, 07:38 AM

(((Red)))

I'm sorry about the diagnosis, but I'm glad they caught it early.

Crankin

12-06-2011, 07:38 AM

I am sorry you got this news, but you are correct, it's the best of the bad news.
From what I know, making these decisions can be extremely difficult. Please take your time, and while it sounds like you are at a great hospital, think about getting a second opinion, or third, even. Like maybe at Dana Farber? You're so close, it wouldn't hurt.
Because I have no personal experience with this, anything I can say seems silly. But, feel free to PM if you need to vent.

redrhodie

12-06-2011, 08:54 AM

Nothing anyone's said sounds silly! Thank you all for your concern and helpful advice. I will be weighing all options, but first I need to get the MRI to see what they are. It could be just a little more needs to come out, and we save the breast, but I'm preparing for more, just in case. With the way this year has been, I'd better prepare.

indysteel

12-06-2011, 09:07 AM

More hugs to you, Red!!! Your attitude throughout this has been inspiring.

spokewench

12-06-2011, 09:11 AM

Oh ((((Red)))), I just saw this; but if you have to have the CA, then this is the best that could happen it sounds like. Dang, I'm so mad this has happened to you! But, I know this will get better. I've been thinking lately that I wish the internet would let me express myself in situations like this a lot better. Suffice it to say, that I'm pulling for you!

redrhodie

12-06-2011, 09:43 AM

I feel your love. :) I'm actually not mad that this is happening to me, but I do feel a little more road rage-y on the bike these days. But, who better to take out my frustrations on than people in cars doing stupid things? I guess they're good for something after all. :rolleyes:

emily_in_nc

12-06-2011, 09:53 AM

Ah, what a bummer, Red...I was really hoping it would turn out to be nothing. But so glad you got it checked out and found early. I definitely second crankin's recommendation to get a second opinion. Do your research, consider all your options, and you will make the decision that is right for you.

Hugs...

Becky

12-06-2011, 10:22 AM

(((Red)))

margo49

12-06-2011, 11:22 AM

Welcome to a large and very non-exclusive club!
That said, I would add from my experience: take it one step (or procedure or issue) at a time. Make your decision and then once you have results from that make another decision. Don't race ahead of yourself. Learn to wait till it is time to make decision after decision on the facts of your case. (Don't make flow charts/ decision trees or whatever they call them - you know if it's this then I'll do that). The process of diagnosis and treatment goes sort of slowly anyway, and you will have time to consider and make the best decisions for yourself .
And keep us in the picture!

redrhodie

12-06-2011, 01:01 PM

Great advice. Thank you. I feel very informed already, and probably am a little ahead of myself, but my decisions will be well thought out, and I have some things that are important to me, that will be factors.

When I told my bf, he said something like although I love your breasts, there are a million things about you I love even more. He's been great.

snapdragen

12-06-2011, 03:24 PM

indysteel

12-06-2011, 04:06 PM

He IS a keeper. How very sweet.

pll

12-06-2011, 05:03 PM

Oh, Red, so sorry to read the bad news. I will be rooting for you!

marni

12-06-2011, 07:44 PM

Red,
DCIS is what I had so I had a lumpectomy, but then they didn't get it all in spite of very generous margins, so it came back. Like you, I decided that I didn't need the breast for riding and it could go rather than coming back frequently to have another hunk whacked off, or go through radiation or chemo.

The first couple of weeks were not much fun, mostly because of having to wear an irritating drain. (hint biking jerseys are your friend. It is much more comfortable to through the drain in a jersey pocket thanhave it pinned to your bra or tucked into the cammie/jersey with shelf bra and slit to hold it where the boobie was. I was one of those one who had the drain in for three weeks and then had to go back every other day for another week and a half to get it drained. But the healing seepage did finally stop, the swelling went down, the scar tissue pulled in and the muscle tightened up. I was back in almost full swing on bike and at the gym in six weeks and back to where I was weight wise before surgery about two weeks later. The one not so bad after effect that I did notice was a striking desire/need for an afternoon nap, but that could have been as much about the horribly hot and humid summer, or dealing with all of 90 year residents FIL's health issues at the same time I was trying to heal. Most of it was mental vacation/ check out rather than actual need for sleep but I did indulge.

Take it slow and listen to your body, eat good food that will help your body heal, rest when you need to, and when you feel like it, start stretching the surgical arm and shoulder up back and out so that your shoulder doesn't roll in as the chest muscle heals and contracts.

Hang in there, once the breast is gone, the worry is gone as well. They may or may not start you out on tamoxifen which is to discourage estrogen production in your body. For me that was the worst part of the recovery because it felt like going through menopause all over again complete with the weepies and hot flashes and broken sleep. Apparently it affects some people that way. Fortunately the surgeon warned me about that and so although it was not fun, it was doable since it only lasted a couple of hours at a time and the family was aware of what was happening.

Before you know it your will be back to normal and perhaps slightly giddy with the relief of knowing that you are out of it free and clear. The worry about the three month check on the other breast may catch you unaware, but since DCIS is non invasive, your chance for being clear on the second side are relatively low, since DCIS is a totally random thing to begin with.

I'm pulling for you.

marni

lph

12-06-2011, 09:59 PM

Wow, red. That's a setback. You have a great attitude, though, very inspiring! Hold that thought :)

redrhodie

12-07-2011, 04:25 AM

Marni, thank you so much for that. I've been reading a lot about DCIS, so knowing that it did change and come back for you is making the statistics look a little different. You see those and wonder if you should just wait and see. With the way things have been going, me winning these unlikely lotteries, I suspect I'd better not wait.

Today, 2 weeks after the biopsy, my breast feels normal. I can sleep any way I like, and don't feel it at all on the bike. Other than a little bruising, it looks perfect. It's amazing how the body heals. It's really cool.

I'm feeling pretty normal (for me ;)) mentally, too. I'm still doing normal things. My bf is doing more around the house, which is awesome. I feel a little guilty, like I'm taking advantage of this diagnosis, but hey, if it makes him feel better, I'm not going to stop him from scooping the litter box. :D

goride

12-09-2011, 06:34 PM

Red - sorry to read about your diagnosis. It is good you have some time while you heal from the initial procedure to gather facts and make sound decisions on how you will proceed.

marni

12-09-2011, 07:49 PM

enjoy it, it makes them feel better and that makes you feel better. DH did the same until I got so tired of not being allowed to do anything that I muttered- Should have kept my mouth shut.

I forgot to add, that I did ace my three month check on the non surgical breast, and have been told to go away and not come back for a year. Yay.

I have also restructured some of my eating to eliminate foods high in natural estrogen or that inhibit estrogen growth so sweet potatoes are out of my life ;( but fresh strawberries, as many and as often as I can get them are in :). Lots of other things but that is the biggest switch.

Whatever you decide, I am pulling for you.

marni

I'm feeling pretty normal (for me ;)) mentally, too. I'm still doing normal things. My bf is doing more around the house, which is awesome. I feel a little guilty, like I'm taking advantage of this diagnosis, but hey, if it makes him feel better, I'm not going to stop him from scooping the litter box. :D[/QUOTE]

redrhodie

12-10-2011, 05:05 AM

Thanks Marni. I've been thinking about you. Glad you're doing so well! You're an inspiration to me.

I've been lurking on a breast cancer forum, and it's been very helpful. It's similar to this, in that the women are compassionate, smart, thoughtful in their writing, and generous with their knowledge, but they're not as fun as you guys. ;) There's not enough ride reports. It's been extremely useful though, and I feel like I'm back in college again. I've already learned a lot.

I'm still good, taking great care to eat really well and ride gently. I'm avoiding stress as much as I can, although some of it is seeping in. I'm thinking about doing yoga again, after a several year hiatus. I should probably get a referral to a nutritionist. I'm sure there are things I should be avoiding. I love sweet potatoes.

margo49

12-10-2011, 06:17 AM

Yoga is good (I'm no expert just bought a bright purple mat and copied the gorgeous women on tv and as glad they couldn't see me)
Yeah, the nutrition is key.
What's the story on sweet potato??
Tho' My Onck reckons that soy products are not a problem but I keep away from them. I was craving soy back in the 90's before my first "incident" and ate it like crazy. It means something I am just not sure what.
Took a week off my Aromasin (aromatase (estrogen pre-cursor) inhibitor) and back on it yesterday so feel really CR-P today . I just got tired of feeling 85 years old and gave myself a 7-day pass. Naughty but not medically significant ...

malkin

12-10-2011, 01:26 PM

Aw ((red)).
I wish you got to spend this much thought and energy planning some spectacular ride trip. Maybe you get to do that too.

marni

12-10-2011, 06:03 PM

according to my sources, sweet potatoes and soy contain natural estrogen and similar phytogens that are not good. I figure now that I am on the tamoxofin except for the 24-36 hours once a month menopause symptoms recurrence I might as well stick to it, I can't imagine taking a week off since it would take me at least ten days to get back on and not feel like killing myself or someone else. Good for you for being able to take a break though.

I am aiming at doing a cross country ride with my sister going from New Orleans to Lake Itasca MN along the mississippi in may to celebrate an almost one year anniversry. Of course with all the stuff that is going on with 90 year old FIL right now, all of this might change but I am determined to stick with the original plans as long as I can.

Pick a dream trip and start planning for it red, and then make lound long and frequent comments. Stranger things have happened.

marni

redrhodie

12-11-2011, 07:14 AM

I got a call from my NP yesterday telling me to stop taking the pill until I talk to my Oncologist. Ugh. I've been on it for a long time. There were a lot of perks to the pill, and I liked being on it, but if it's the cause of the problem (will I ever know?), of course now I'll regret it.

I'm open to suggestions about alternative methods of birth control. PM if you're shy. Ha, that's funny...like there's anything too personal for TE!

OakLeaf

12-11-2011, 08:42 AM

I'm past that now, but I used a cervical cap for years and loved it. I had to go to Planned Parenthood to find a practitioner who could fit one.

malkin

12-11-2011, 01:02 PM

I used a cervical cap for a while too. Not bad for a barrier method.

I hope you can let go of regrets and carry on from here. Maybe it was the red candies or the neighbors' pesticide or the smog or the sun but then again, maybe it wasn't.

My granny always said "Ain't life grand?!"
My uncle agreed and said "Nobody ever said life was fair."

redrhodie

12-11-2011, 01:39 PM

What made you choose the cervical cap over a diaphragm?

Life is grand! You know, as bad a thing as this is, I know some good things will come out of it. I'm already seeing my body in a new light. I've been so critical of it all these years, and really, it's pretty great. I'm done obsessing about the tiny flaws. It all looks good to me now.

I stopped looking at the breast forum for now. I got spooked last night reading some horror stories. I took today off and didn't worry. At this point, there's no reason to worry. There's just discover and repair. I'm lucky to have these options.

ETA: My father's mother died at 51 of some kind of cancer. He never knew what kind. He was very young. I never thought about it being BC until my diagnosis, but it makes sense.

OakLeaf

12-11-2011, 01:53 PM

The cap is a lot smaller than a diaphragm - more, um, uncovered surfaces = more sensitivity and less to get in the way. The only downside is that mine was so comfortable it was possible to forget about it. Ewwwwwww. Geez, maybe some things are too personal for TE! :p :o

At least the kind I had (the Prentif cap which I don't think is imported into the USA any more) could stay in for 24 hours or longer which allows for spontaneity. IIRC a diaphragm has to go in pretty much right before sex.

Hang in there red. This is tough - you're allowed to feel whatever comes.

snapdragen

12-11-2011, 07:21 PM

I stopped looking at the breast forum for now. I got spooked last night reading some horror stories. I took today off and didn't worry. At this point, there's no reason to worry. There's just discover and repair. I'm lucky to have these options.
.

I found that the people that frequent the illness/physical problem forums are usually the ones that are not doing well, having issues, etc. Those that have recovered and are doing great drift away. At least that's how it was on the spine forum I was on.

Crankin

12-12-2011, 02:51 AM

Yes! When I had my medical saga a few years ago, I made myself sicker by reading stuff on line. The people who write on these forums are the ones that are not doing well, or have some ax to grind with the medical community. I only allow myself to look at stuff from the Mayo Clinic now!
Way back in the day, I used a diaphragm, after it became clear the pill was causing the horrible side effects you read about (pains in the legs, chest, etc). I didn't like it, because I could always feel it after sex, and it made me feel like I had to pee every second. I had lots of UTIs during this time. We switched to condoms because of this, which lasted until after I had kid #2 and then DH had his tubes snipped.

Catrin

12-12-2011, 03:40 AM

I found that the people that frequent the illness/physical problem forums are usually the ones that are not doing well, having issues, etc. Those that have recovered and are doing great drift away. At least that's how it was on the spine forum I was on.

I agree, I was like this when I had the ovarian cancer scare in 2008, and also drifted away from HysterSisters as I recovered from my surgery.

For me at least, I've learned the hard way that the more time I spend researching and visiting forums that focus on a problem I am having the worse I feel. This is just me, I do have OCD issues (which probably isn't a surprise) so I really focus on things that get my attention. I do still research things on the internet, but am very careful about where I go and stick with sites like the Mayo Clinic, or the Arthritis Foundation.

OakLeaf

12-12-2011, 04:07 AM

Honestly I try to stick to medical journals, or at least summaries aimed at doctors, as much as possible. Although you certainly don't escape the corporate influence that way, it's slightly less pervasive than it is in the consumer-oriented sites, and at least you get to analyze the numbers for youself.

If you do use consumer sites, stick to the ones that are HON code (http://www.hon.ch/HONcode/) certified and preferably screened by a neutral organization like the National Women's Health Network (http://nwhn.org/outside-resources). IMVHO, user forums are great when you have a problem and need support or a place to vent - not so much for when you're looking for unemotional information.

When I was going through this stuff, DH was absolutely useless to me - I later found out it was because I was reading medical journals and asking him to help me sift the data, while he was reading user forums and completely freaking out. I still don't think he gets it.... :(

redrhodie

12-12-2011, 04:09 AM

I found that the people that frequent the illness/physical problem forums are usually the ones that are not doing well, having issues, etc. Those that have recovered and are doing great drift away. At least that's how it was on the spine forum I was on.

That's so good to know, and not something I realized. It makes sense.

Cervical cap 2+, diaphragm 1-

margo49

12-12-2011, 06:47 AM

I think those forums are good if you have a really specific question eg Did you gain weight on Aromasin, Do you have joint pain?
Better than wading thru technical and medical stuff. Which is what you are "employing" your oncologist to do (or have done) actually.
But you can freak yourself out if you read just for general info and women's stories. The latter you can get waiting for appointments and as the chemo drips (:eek:) and people are friendlier when face-to-face than when online too.

redrhodie

12-13-2011, 11:55 AM

Just had the MRI. I held still very well for the whole time. The noise was not that different from some of my bf's pieces of music (he'd consider that a compliment). He plays electronic music. I felt right at home. :rolleyes: I couldn't hear much of the actual music I was listening to (I chose The Shins, which was too soft), but I could hear the song changes so I had a good idea of how much time had passed. That really helped. I kept telling myself to relax, which also helped. I went back to my childhood, when I'd "dead-man's float" in the swimming pool, holding my breath for as long as I could to freak out my parents. Funny what you think about in those things.

It took a half hour, not including set up time. You lie face down with your breasts in 2 holes in the table, with an IV in your arm, and headphones for the music. It's like a massage table. Just one tech, and she was excellent. For anyone who has to have one of these, it's not bad. The half hour didn't feel as long as the crit race I did last summer. That was way worse.

Next appt next week, and I probably won't know more until then.

szsz

12-13-2011, 04:55 PM

Just had the MRI. I held still very well for the whole time. The noise was not that different from some of my bf's pieces of music (he'd consider that a compliment).

That's how I felt too, like I was at a rave. I actually didn't mind it but I was ready for it to be over when they put the cold dye in. One issue with MRIs is false positives; I got two which were proven as such in a followup ultrasound / biopsy. So don't freak, the false positives are common, wait till you know definitively what is going on before you freak :)

I haven't chimed in till now, but feel free to PM. I had stage 2 er+ pr+ diagnosed in Feb 2010. I had a mastectomy followed by a tram flap reconstruction. Am now on Tamoxifen. A couple minor things going on here and there but I am doing great.

I've been keeping you in my good thoughts (I've been lurking here.)

Blueberry

12-13-2011, 05:02 PM

Continuing to think of you, red - and send positive vibes.

I'm impressed with how calm, cool and collected you seem to be. You certainly don't have to be/aren't expected to be - but it's nevertheless impressive.

redrhodie

12-14-2011, 04:35 AM

szsz

12-14-2011, 07:20 AM

Thanks so much szsz. How long until you could ride again after that surgery? Does the tummy part have a big impact on cycling? I understand a little what you've been though, mentally, with making tough and scary decisions. I can't imagine the physical part. So glad you're here and doing well!

Let's see, I had the surgery in April 2010 and another little followup surgery at the end of May but looking back at my training records I started out with shorter (12-14 miles) rides in June and throughout July and August with a 20+ mile ride here and there. I haven't really done a ride over 50 miles since the surgery, but a lot of that has to do with opportunity. I need to get myself a group to ride with consistently now.

(And, we did ski the following Feb and it was fine.)

Also, although I was in the hospital for 4 days, I was up and walking the hallway by the 2nd day and I walked every day after. Little by little, but just getting up and moving.

My surgeon recommended the tram / stomach surgery so as to have minimal impact on cycling and skiing. The other alternative is a surgery where they take the muscle from your back, but he said that would be a no-go with me being a cyclist.

The best part of the whole thing was being so healthy going into it. Having good muscle tone to begin with, as I'm sure you do.

Whatever you decide, you are going to be fine! And you are going to look great.

redrhodie

12-14-2011, 02:31 PM

Wow, szsz, it's amazing that you were back on the bike so soon. That is very encouraging!

szsz

12-14-2011, 03:21 PM

I went slow, though. But yes, I worked closely with my surgeon and we both had the same goal: Return me to the life I had before.

redrhodie

12-17-2011, 02:46 PM

I've been keeping busy, but I thought I'd update. I got a call today from the wife of a guy I ride with, who also had BC, and is my age. It was so nice of her to call me, because we've never met. I got a lot of info, and she's going to be a great resource for names of doctors for second opinions, should I need them, and I think we're going to be good friends. Having this in common, at this age, is an instant connection. She's going to be a great asset. Now, if I can get her to the Sat ride...

Monday is the day when I get the pathology report, and the recommendation from my doc on how to proceed, based on all the tests and the board review. I've been reading a lot so I'll be capable of understanding all the info, and a friend is coming with me to the appt to take notes. I've learned a lot in these few weeks. That's been kind of cool. I know about stuff I'll never need to know, just in case.

Telling people is really interesting. I can't really predict how they will react, but when I think about it later, it makes sense. One good friend, who is amazing in her ALWAYS upbeat attitude, who never gets even a little depressed, said something to the effect of a mastectomy being a bowl of cherries, compared to some of the alternatives. The same day, another friend was horrified that I might have to have that, and understood the fear I feel. Lots of creative empathy, because I see both of their points. Good friends have been asking to let them know if there's anything they can do. I realized that I'd probably like hospital visits if I'm in there a while, so I'm telling them that. There's not much else I need.

I'm so lucky.

Crankin

12-17-2011, 03:35 PM

I would definitely come and visit while you are recuperating.
Just keep us posted.

redrhodie

12-18-2011, 05:08 AM

Crankin, that's so sweet.

indysteel

12-18-2011, 05:29 AM

pll

12-18-2011, 06:55 AM

Red, it's sounds like you are doing a wonderful job of taking care if yourself emotional and physically. I am truly in awe of your strength and positive attitude. I mean this sincerely: I really wish I knew you in real life.

Please keep us posted as to the path report.

+1. Best wishes, Red.

I will add that I wish I knew many of the women here in real life. [Thank you Team Estrogen for bringing together such a fantastic community.]

redrhodie

12-18-2011, 07:33 AM

Thanks, guys. The feeling is absolutely mutual! I think of you as good friends. I wouldn't be surprised if our paths meet someday.

indysteel

12-18-2011, 08:05 AM

+1. Best wishes, Red.

I will add that I wish I knew many of the women here in real life. [Thank you Team Estrogen for bringing together such a fantastic community.]

That is very true. I wish we could have a TE convention!!

OakLeaf

12-18-2011, 08:16 AM

Great idea bringing a friend tomorrow. Hope it goes well and you can make decisions you're comfortable with. Keeping the hugs and healing wishes flowing.

szsz

12-18-2011, 02:54 PM

Also, don't feel like you have to make a decision on the spot. I was lucky and had the choice between lumpectomy + radiation or mastectomy. I couldn't make up my mind then and there and so I took a week to decide, meet with the surgeon and talk with other women.

Go with your gut!

redrhodie

12-19-2011, 02:25 PM

Cautiously great news--the MRI was totally clear, so even though she didn't get as wide margins as she is supposed to (she couldn't because of the tumor's proximity to the nipple), she thinks I might not need more surgery. Plan is to meet with the radiologist and see what she thinks. Most likely we'll be waiting 6 weeks and getting another mammogram to make sure all is still clear, then starting radiation. But right now, I'm on cloud 9. Mastectomy is totally off the table. More surgery would definitely mean losing my nipple, so I'm hoping for no more surgery, but I'm so thankful for the news so far! I didn't think it was a possibility that the biopsy had gotten it all. Yay!

Merry Christmas! :D

Blueberry

12-19-2011, 02:36 PM

Yay Red! Hope this turns out to be correct, and you can move on with life. Hugs!

snapdragen

12-19-2011, 02:54 PM

What a great Christmas present Red!!

OakLeaf

12-19-2011, 03:44 PM

Yay! :)

pll

12-19-2011, 04:44 PM

Wow! What great news!

indysteel

12-19-2011, 05:15 PM

That's so awesome, Red!! Yay!!

emily_in_nc

12-19-2011, 05:58 PM

Wonderful news, Red. I can only imagine your relief. NOW you can enjoy your holiday! Woot! :D

ny biker

12-19-2011, 06:32 PM

Fantastic!!! Congrats.

marni

12-19-2011, 06:48 PM

yay for a clear MRI, spinning wheels for a clear mammogram in 6 weeks, surgery avoided is also good. Good luck with the radiation and take good care of your skin.

marni

szsz

12-19-2011, 07:07 PM

Awesome news, Red! So happy for you. Merry, merry Christmas!

goride

12-20-2011, 01:37 PM

So glad to hear you got such good news.

malkin

12-21-2011, 05:42 AM

Christmas on Cloud 9!

What great news!

Crankin

12-21-2011, 10:35 AM

Excellent!

redrhodie

12-21-2011, 03:01 PM

Starting radiation on Tuesday! Yay! That means, no more surgery!!!!!!!

The radiologist went over all the statistics of getting a larger margin. The evidence boiled down to a few percentage points better for staying cancer free with additional surgery (in which I would lose my nipple), but no difference in survival rates if I chose to move on with the too-close margin. Survival rates are the same, close to 100%, for either choice. More surgery would also mean for both breasts for cosmetic reasons, and additional reconstruction procedures. It wasn't a hard decision for me. I know a lot of women choose mastectomy for an even better chance of no recurrence (and I can understand that; it's often the best decision), but I'll still have that option if I need it later. In fact, it will be my only option, so I'm taking the chance to spare my breast while I can.

Oh, and I had another mammogram today, thinking back to the title of this thread. It's really no big deal! Actually, none of this has been that bad, so I hope I've inspired some of you to start doing self exams. If I hadn't found this so early, I'd be looking at a lot more effort in staying well than I am right now. This is a piece of cake. Okay, some of it was scary, but nothing has hurt, and I don't need chemo. I hope this hasn't scared anyone away from mammograms. I feel very, very lucky. The latest test came back clear.

For your info, radiation doesn't hurt, make you nauseous, or make you lose your hair. There are some risks, but most of them are minor, related to skin, and feeling tired. It's a few minute procedure 5 days a week for 6 weeks.

I'm also probably going to take Tamoxifen, since my cancer was Estrogen+. I'll let you know about that later. ;)

szsz

12-21-2011, 04:48 PM

Hey Red, this is such great news. I've seen women go through radiation in my support group and they all did fabulously. You'll want something soothing and aloe-like to use after treatments, but get instructions from your radiation oncologist, there are specifics dos and don'ts with the topicals.

*Happy dance for you* !!!

I'm in year two on Tamoxifen so I can chat with you about that if you like. The side effects I have had have been manageable.

:) :) :)

margo49

12-22-2011, 01:45 AM

Catrin

12-22-2011, 03:10 AM

Red - I am so happy for you, and relieved as well :D

redrhodie

12-22-2011, 05:53 AM

Good news!
I was sweating for you as I had to have re-surgeries because of a very aggressive grade cancer and too close margins...
Yeah it all looks better in retrospect...bit like life, really
How many rads are you in for?
Early Christmas prezzie!

That could be my fate as well, so I'm hoping they got it all. My cancer was stage 0, grade 2, and there's nothing else viewable on either MRI or mammo, so my fingers are crossed that microscopically, everything is out!

30 rads coming to me! That could be part of that song. :D Happy Christmas!

indysteel

12-22-2011, 06:00 AM

Yay, Red! I hope radiation goes smoothly. Here's hoping for a very bright and cancer-free future!

redrhodie

12-22-2011, 06:01 AM

Everybody sing!

2 mammogaaams
1 ultra-sound
1 excisional biopsy
1 MRI
2 months of worrying
and 30 rads-a-comin' my way :p

margo49

12-22-2011, 07:00 AM

My cancer was stage 0, grade 2, and there's nothing else viewable on either MRI or mammo, so my fingers are crossed that microscopically, everything is out!

Happy Christmas!

Really great numbers!

pll

12-22-2011, 01:20 PM

Amazing news, Red. Happy holidays!

maillotpois

12-22-2011, 05:38 PM

I cannot believe I have missed this thread for so long!!! Wow you have been through so much (I just read through all 12 pages) and your attitude has been amazing. I am so glad things have taken a more positive turn. I will be reading this thread more regularly now. Good luck with the radiation - huge hug to you!!

Crankin

12-23-2011, 03:47 AM

Keep riding, Red.

redrhodie

12-23-2011, 04:03 AM

Oh I'm planning to! I'm probably even going to ride to my rads. 10 easy miles from the park and ride, on days I don't work.

I'm going to need new bras. I love my Ibex ones, but I'm probably going to be too sensitive for wool. The best thing after the surgery was cotton camis with a shelf bra, so I may just get more of those. It's funny, I never thought I'd be able to wear just a cami out, since I've always been too modest, but this has changed that.

Aggie_Ama

12-23-2011, 04:18 AM

I just caught up as well, not realizing this thread wasn't only about getting a mammogram. A positive attitude has never hurt anyone when kicking cancer's butt, seems like you have one. (((HUGS)))

redrhodie

12-27-2011, 04:59 PM

Today's appt ended up being just a CAT scan and set-up for the rads, no treatment, yet. I did get the 3 tiny tattoos (one needle prick each) for guiding the machine, since you have to be placed in the exact position every time. Rads start next Thurs.

Christmas was great, easy, and with the 3 people I love most. We watched the latest Woody Allen movie "Midnight in Paris" which was fun. I got nicer presents than I gave, which is not supposed to be a good thing, but it didn't seem to hurt. :D I've given myself a lot of breaks during this. I'm getting totally spoiled.

szsz

12-27-2011, 05:37 PM

I've given myself a lot of breaks during this. I'm getting totally spoiled.

You're doing this right!

margo49

12-27-2011, 09:20 PM

Christmas does give you perspective (on the occasions it doesn't disturb your equilibrium)

redrhodie

01-06-2012, 03:25 PM

I started radiation! It's going really well. You don't feel a thing. The hardest part for me is not laughing. I got the giggles the first day, because on my way in, there was an xray on a monitor and I said "Is that me? Oh, I look so thin." :D Snort. Anything can set me off.

I've also decided to take tamoxifen, which will start right after radiation is finished. Hoping to be able to handle the side effects. I know a lot of women have problems. I really hope I can last long enough to get the benefits.

I think I've had more drs appts these last 2 months than my whole life. :rolleyes:

Oh, and I did commute there by bike yesterday. That was fun. I'll be doing that a few times per week. Makes the whole thing better.

Crankin

01-06-2012, 05:06 PM

I wonder if you are the only person to commute to radiation? This must earn you some serious brownie points, somewhere.
Great attitude, Red.
Now go out and ride tomorrow, when it's 50 out!

redrhodie

01-07-2012, 09:47 AM

Oh, man, I did ride today, and it was one of the scariest rides ever. We were fooled by that gorgeous forecast and not prepared for the black ice. I actually walked down some hills, a first for me. We had 2 crashes in the group. ( I didn't fall). Commuting to rads was way less stressful.

I know I'm handling this okay, but icy hills are too much. I know my limits.

indysteel

01-07-2012, 10:08 AM

Yikes, Red! That sounds really scary. It must have been"fun" trying to walk down hills with your cleats and a bike in tow.

I'm glad radiation is going well. It sounds like the worst of this process is over.

margo49

01-07-2012, 11:26 AM

Tamoxifen is cool...worst thing is the weight gain. I took it for 5 years (1997 -2002 and was well for 13 years.
I am on aromasin now and it has needed a bit of tweaking. I hate taking pills against other pills but it's not got to ridiculous levels yet and I'm feeling fine.
Way to go, Red; rads do tend to get a bit "cumulative" so keep an eye on yourself.

ny biker

01-07-2012, 05:17 PM

I don't think my mother had a problem with weight gain from tamoxifen. She did have hot flashes.

She's doing great 14 years later.

szsz

01-09-2012, 05:50 PM

I had weight gain from Tamoxifen and am now getting it off. It's slow going. But, I am in this trial http://energytrial.ucsd.edu/ which is definitely helping. So, I feel like I am having little to no side effects now with the 1 hour (at least) of exercise a day.

The main issue these days is feeling like I am having PMS for weeks at a time. I was getting my period at first and then I stopped, and then it started and then stopped again. Before my DX in 2010 I was not at all menopausal.

SpeedyChix

01-13-2012, 05:05 AM

Was on tamoxifen for three years, off now due to another primary (not spread) cancer and experiencing the chemo coaster (ugh). Won't need any more mammograms moving forward now.

Didn't have any issues with weight gain from tamoxefin. Mostly menopausal symptoms which weren't too bad. Stayed pretty active during '09 rads, running and biking. Think that being active and exercising helps overall with the symptoms.

Eating a healthy diet and being active are a real help.

redrhodie

01-14-2012, 06:48 AM

One week down! Rode to rads 3 times this week. We had pretty intense wind and rain at the end of the week, so I drove those days. Still no problems, knocking on wood. Using lots of aloe vera.

SpeedyChix

01-14-2012, 08:31 AM

One week down! Rode to rads 3 times this week. We had pretty intense wind and rain at the end of the week, so I drove those days. Still no problems, knocking on wood. Using lots of aloe vera.

Way to rock it. Staying active seems to help.

malkin

01-14-2012, 10:01 AM

What a woman!!

redrhodie

01-21-2012, 08:49 AM

One third done! Managed another 3 commutes, which I'm pretty proud of since it was 18° one of those days, and snow/ice the other two. Of course that makes me appear very badazz to the rest of the kids in the waiting room (who are all retirees). They always ask about my ride, and one of the ladies has a motorized trike she rides in summer, so they don't seem to think I'm that weird. I'm working on getting the receptionist to commute. I can tell she's thinking about it. :)

I still have no skin issues, and although I did need a long nap yesterday, I'm not sure that wasn't just normal sleep deprivation, along with the extra effort of riding on studs.

Crankin

01-21-2012, 09:10 AM

Wow, it's cold out there... good job on riding to treatment. I hope you're not riding today. Of course, I know those of you with studded tires keep right on going.
It's great that you can be a good role model for the retirees and the receptionist. Hopefully, you'll inspire one of them.

redrhodie

01-21-2012, 09:32 AM

No riding for me today! My lbs even canceled today's ride. Studs aren't great in this kind of heavy snow, so I've been lounging with gusto. I did walk to to get supplies earlier, and that was fun, but now I'm hunkering down with the kitties. Life is good.

Blueberry

01-21-2012, 09:35 AM

redrhodie-

I've said it before, and I'll say it again - you attitude is such an inspiration:) You really are amazing! I hope that your enthusiasm encourages those you encounter through this process to change their lives for the better.

There are a few people on TE (you included) who routinely inspire me - and I very much appreciate it!

indysteel

01-21-2012, 12:36 PM

Catrin

01-21-2012, 12:52 PM

+1,000! Red is one of my TE heroes.

Indeed! Reading of your commuting adventures during the winter is causing me to think about trying it when the weather warms...you are indeed one of my heroes!

redrhodie

01-21-2012, 02:35 PM

Aw, thanks, but I still stand firmly a slacker, and part of that is living by Maillot Pois' tagline, which I think is something like "if it's easy make it easier, and if it's hard, don't do it." :D I got that right? ;)

Luckily it's not hard; not like learning to ride a bike at 50. But if you get anything from this, I hope it's that it is so easy because I caught it early. If I had to go through more surgery and chemo, I wouldn't be so glib.

Oh, and the commute is shorter than my regular one to work, so even there I'm slacking off. I usually ride more than this.

malkin

01-21-2012, 03:57 PM

What a slacker!

OakLeaf

01-21-2012, 04:05 PM

Red, you're amazing. Keep right on. :)

maillotpois

01-21-2012, 05:15 PM

marni

01-21-2012, 06:31 PM

red, you go girl !

marni (another survivor)

redrhodie

01-28-2012, 10:03 AM

Another week down! I'm more than halfway done with radiation. I am feeling pretty tired, but I'm still riding. I'm so glad the lbs canceled today's ride, because it would have been too much for me. I rode an easy paced 18 miles alone instead. Felt great, but now I'm wiped out. My skin still looks good, and I have a little tenderness, which might be unrelated to the rads.

I met with a new OBGYN to discuss contraception, and that was an eye opener. I thought I'd get a diaphragm or cervical cap, but instead was told those weren't good options for me, since I need something more failsafe. I'm scheduled to get an IUD in a couple of weeks. My other choice was tubal ligation. I can almost hear the creaky steel door of my fertility slamming shut (which is okay, since I never wanted kids). I'm almost looking forward to menopause. I'll be reading your hot flash stories with envy. ;)

sookiesue

01-28-2012, 11:12 AM

My OB/GYN recommended Essure for those who are certain they do not want kids. Apparently it's a very simple procedure and much easier than tubal ligation. I think there is another similar procedure available now (can't remember the name) that might be worth exploring if you're looking for a permanent solution to birth control. But I also know a number of women who have been happy with the Mirena IUD - although since that does have some hormones it may not be appropriate for everyone.

Is a vasectomy for your partner an option? : )

Good luck with your decision, and I hope you continue to do well with your treatment. I have followed this thread and am amazed at your positive outlook and strength. You are inspiring!

Crankin

01-28-2012, 12:16 PM

Glad you are still getting out there, especially in this no winter winter we are having.
How many more weeks of treatments do you have?

redrhodie

01-28-2012, 02:23 PM

I'll be done around Valentine's Day.

Essure was one of the methods discussed. I chose the Paragard IUD over the other options for a few reasons. It's non hormonal, a short in office procedure, and will last for 12 years, long enough to get me through. It works right away, too. Essure is surgery, it takes 3 months to form scar tissue, so you need a backup during that period, then there's another procedure where dye is injected to make sure it's working. I could see doing that if the IUD doesn't work, but at this point, the Paragard seems like my best option.

Vasectomy is not a great option for us.

maillotpois

01-30-2012, 08:48 AM

I'll be done around Valentine's Day.

What a great Valentines gift!

redrhodie

01-31-2012, 11:09 AM

Actually, I got it (Paragard) yesterday! My cycle has a mind of its own these days; let me tell you, 10 days early was a fine how do you do. I knew that mattered for insertion, so I called to reschedule and they fit me right in. It was pretty much a surprise party. Very fun. :rolleyes: Actually, it didn't hurt (aside from a little fainting later). I rode today. I might be tougher than Jens Voight. :D

Blueberry

01-31-2012, 11:13 AM

Actually, it didn't hurt (aside from a little fainting later). I rode today. I might be tougher than Jens Voight. :D

Fainting and riding today? Yeah - I think you are tougher. Seriously - you are a rockstar!

redrhodie

02-14-2012, 02:55 PM

Last zap tomorrow! I can't believe how fast this has gone by. I'm pretty red but it doesn't hurt. Rode 30 miles today, and I'm not that fatigued, so that's getting better.

Fri I meet with my oncologist. My next phase is to start Tamoxifen, which is an estrogen blocker, which I'll take for 5 years. I feel lucky to have it as an option, so I'm hoping for minimal side effects.

I just want to thank you all for being here for me, and for all the hugs and well wishes. It's really helped.

OakLeaf

02-14-2012, 03:05 PM

That'll be a relief to have that done with I'm sure.

You've been amazing. I'm so glad your side effects have been tolerable.

Good luck with the tamoxifen.

indysteel

02-14-2012, 03:19 PM

Congratulations, Red. I'm so glad you're nearing the end if this phase. It's really been an honor to share this experience with you. You've shown a tremendous amount of grace, strength and good humor. I admire you greatly.

Crankin

02-14-2012, 03:33 PM

I am really amazed at your attitude, Red. Especially the fact that you rode to treatment!
The way the weather is going, we may be going on that ride soon.

margo49

02-14-2012, 08:20 PM

Nothing on earth like the Last Zap!
As for my Last Zap...I got someone at the Rads Hotel to paint my face - we had had a make-up workshop the day before and got free things not that I knew what to do with them - and I told her to make me a "fierce and strong jungle fairy" and she did a great job with swirls and leaves. I wore it all day incl to the hospital . It was a great celebration!
You have beaten it Red, join the club!

szsz

02-15-2012, 01:39 PM

Very, very, VERY awesome!

Tamoxifen is basically a breeze although there are some side effects. I've been on it going on two years, so let me know if I can help.

redrhodie

02-15-2012, 01:44 PM

I really wanted confetti to fall from the ceiling.

I want a new word for "survivor". I'm open to suggestions. Conqueror? Where's Zen when we need her?

indysteel

02-15-2012, 02:57 PM

Champion, victor, vanquisher, winner?

redrhodie

02-15-2012, 08:05 PM

Thanks Indy! Maybe defeater. I like how "I defeated cancer" sounds.

maillotpois

02-16-2012, 07:35 AM

Great news! No more rads for Red!

goride

02-16-2012, 10:21 AM

Red - thank you for sharing your very personal experience with diagnosis and treatment. It is both inspirational and educational.

emily_in_nc

02-16-2012, 03:59 PM

red - thank you for sharing your very personal experience with diagnosis and treatment. It is both inspirational and educational.

+1!

redrhodie

02-17-2012, 04:01 AM

I'm so glad that someone has found this helpful. If I hadn't known someone who went through it, it would have been way more scary, especially based on fictional portrayals of cancer which were mostly all I knew. I think my experience is pretty typical of early stage cancer, so, if you find a lump, don't freak out, but get it checked out sooner rather than later.

And yes, Crankin. We'll be able to ride soon.

redrhodie

02-18-2012, 06:18 AM

I did the lbs ride this morning, and for the first time, I really felt the effects of the treatment. I was dropped for the entire ride. A sweet guy who also had cancer stayed with me, so I wasn't alone, but it was really clear I have been through something major. I'm a little freaked out by it, because what if this is permanent? I know it's probably not, and to be doing 30 mile rides at this point should be proof that I'll be fine, but it was a hard wake up call.

Now I'm exhausted and crying, which is not like me, but I bet this is normal. Some kind of PTSD, maybe?

Blueberry

02-18-2012, 06:24 AM

((((((((redrhodie)))))))))

I am not a doc - but I just found a couple of journal abstracts that say fatigue is the worst in the last week, and usually resolves within 3 weeks to 3 months. Hang in there, and be gentle to yourself! You are amazing, no matter how far or fast you can ride right now.

indysteel

02-18-2012, 07:06 AM

What Blueberry said. Your body needs time to recover, but you'll get back to your old form in time.

For as strong and positive as you've been, I have to wonder whether you have processed through perfectly legitimate feelings of fear and sadness, too. Remember that it's okay to feel all that you're going to feel. It's not a sign of weakness or defeat. So have some good cries. My guess is that they'll be cathartic.

redrhodie

02-18-2012, 07:22 AM

I knew you two would be here for me. Thank you.

I think maybe I never felt sad through any of this because it would interfere with treatment, and now that I'm done, the floodgates have opened. I will let myself go through this, too, don't you worry.

SpeedyChix

02-18-2012, 07:28 AM

One is so focused getting through treatments that the emotional impact often hits once you're through that. The transition from treatment to getting on with your new 'normal' takes some time. The fatigue will pass but I found it took awhile. Hang in there, you've made it this far and stayed really active during, that is a real plus to the overall scheme of things.

OakLeaf

02-18-2012, 08:17 AM

(((((red)))))

What Indy said. I'm glad you plan to let yourself process this all emotionally.

And I think PTSD is certainly a possibility. If you think you're having that type of symptoms, some guidance might be helpful for you. I had flashbacks for more than a year, and what I went through wasn't even close to what you've just done.

redrhodie

02-18-2012, 08:36 AM

Maybe talking about cancer for so much of the ride (with my well intentioned friend) brought feelings up. I'm just having a well deserved surprise pity party, which I didn't see it coming.

I obviously need new shoes. ;) Doesn't that always make you feel better? Or cake.

indysteel

02-18-2012, 08:42 AM

How 'bout wearing some new shoes while you eat cake? :D

ny biker

02-18-2012, 08:55 AM

How 'bout wearing some new shoes while you eat cake? :D

Or eating cake while shopping for shoes. ;)

I once read about a guy who went through multiple surgeries for cancer and several rounds of chemo, and a few years later he won a few big bike races. But that first time back on a bike, he damn near fell over he was so tired.

Just take it one day at a time...

Crankin

02-18-2012, 12:46 PM

This is the time to be doing nice, easy, slow rides. Enjoy the view. I found when I couldn't keep up because of medical issues, I had to let myself "let it go," and focus on different kinds of riding. Eventually "it" came back, when I wasn't really thinking about it. Riding at any speed and walking are two of the best things you can do for yourself during your recovery, because both of them will regulate your emotions.

malkin

02-18-2012, 01:40 PM

Wishing you a gentle rain of confetti while you rest up!

redrhodie

02-18-2012, 02:41 PM

Got the shoes. Feel better. Works like a charm. Didn't even need cake.

And yes, I should be and will be riding for pleasure now. I really didn't know I lost so much fitness. I obviously need more time to get back to where I was, and I'm going to let it happen without pressure.

indysteel

02-18-2012, 03:24 PM

What kind of shoes, pray tell! I want to live vicariously through your shopping.

redrhodie

02-18-2012, 05:22 PM

I got these, in mustard. They were actually waiting for me when I got home (perfect timing). My friend had ordered them for me a few days ago from Amazon, so I new they were coming. She's also my boss, so they're kind of a bonus.

They look really good on, and feel great. They're El Naturalista. She and I are both addicted to the brand, and it's dangerous because we encourage each other in this folly.

szsz

02-18-2012, 07:31 PM

I obviously need more time to get back to where I was, and I'm going to let it happen without pressure.

Definitely give yourself a break! You will get back to your previous level of fitness. I promise you. But pushing limits this early may result in delays. Revel in your accomplishments, including conquering! (I hate the survivor word, too).

And yes, it is normal to feel down after treatment ends. All of a sudden you're sort of thrust back into life away from cancer and after all the time when life revolved around treatment it can be a bit disorienting. It will normalize.

margo49

02-18-2012, 08:13 PM

Yeah, I was told that physically it takes as long to recover as you were in rads - in my case 6 weeks. I would agree. Mostly tiredness.
Emotionally - obviously mightily individual.
And not necessarily the same as how you (one) has dealt with and recovered from other crises. I think the rads do something to yr brain function and the tension (trauma?) has an effect too.
Make it up as you go along...I've just been reading Tao so I'm full of going with the flow.

I always talk like the last book I've read :rolleyes: so for what its worth - probly < 2 cents

redrhodie

02-19-2012, 02:46 AM

Thank you ladies, that really helps. I had no idea that it would take that long to recover. It's good to know that it will come back (I am worried about that) and that it's not that I'm not trying hard enough.

I'll try to go with the flow. In my new shoes. :)

malkin

02-19-2012, 04:43 AM

Wow, cool shoes!!

indysteel

02-19-2012, 05:09 AM

Agreed. I've never heard of that brand before. I'll have to check them out.

szsz

02-19-2012, 06:20 PM

You are doing more than trying hard enough!

redrhodie

02-25-2012, 06:45 AM

Started taking Tamoxifen this week, and so far, so good. I took most of the week off from riding, just commuted to work one day, and that pretty good. After last week, I obviously needed a break. Still a bit of fatigue, but nothing a nap doesn't help with.

My skin is healing way faster than I expected. Not much color or peeling. My breast feels and looks normal. Very happy. :)

OakLeaf

02-25-2012, 11:54 AM

One more step. So glad you're doing well.

marni

02-25-2012, 07:12 PM

yay for red hoodie!

good that the tamoxifen is going so easily.

marni

redrhodie

03-08-2012, 08:08 PM

I finally discovered the true meaning of fatigue. It hit hard again after my last bike ride, which was last Sun. It was only 20 miles, and not windy, but it basically took me 3 days to recover. Talk about SLEEP! I feel like a Grimm character. I think I'm over the hump now, only taking one nap after work today.

So far, I haven't had the typical SEs from tamoxifen, although I have lost interest in food. It's weird. I don't even want cake. Haven't had a hot flash yet. Haven't gained weight.

I'm planning on commuting to work on Sat. I have to accept that riding needs to be easy easy. It's really hard not to try to put some effort into it and ride normally, but I know that I don't have the energy to expend. It's challenging to accept limitations.

Edit, actually, my problem isn't accepting limitations, it's identifying them. I just don't know how much I can/should do.

marni

03-09-2012, 06:15 PM

since I have been on tamoxifen, I have decidely become an afternoon napper. It seems to make little difference whether I have ridden, worked out at the gym or just spent the morning weaving. come 1;30 -2:00 PM my head grows weary and my eyes grow dim. I tuck myself for a 2 hour snooze and then walk the dogs which wakes me up enough to cook dinner and pull myself together for the evening.

I suspect its a combination of the continuous 2 am hot flashes and tamoxifen andtraining hard plus a little mental laziness. I tell the SAG guy that it is because I spent 20 years getting up at 5 AM to get three kids ready for the school bus at 7 am, not to mention the continual stress of conscientiously parenting three smart kids to a responsible adulthood.

I swear every time I ride or I go into the gym promising myself to be gentle it backfires and before I know it I have done an extra 20 miles or and extra hour at high cardio rate.

That's my excuse and I am sticking to it.

marni

redrhodie

03-20-2012, 12:32 PM

Time for an update. My tamoxifen side effects seem to be mild depression, decreased appetite, and weight loss. No hot flashes yet. Now here's the funny (not so funny) part, as I'm concerned about the weight loss- yesterday some jerk yells "fat b!tch" at me out a car window. I'm 5'5", 120 so yeah. Fat. :rolleyes:

I think about how devastating that could have been to so many women, and I hope he never does it to anyone else. Lucky for him my chasing mojo isn't back yet. Soon.

My nurse said that most of the side effects usually go away in a few months, so I'm not really worried. Actually things seem a little better already. I'm almost back to regular weekly miles on the bike. Much slower, but not wiped out after, like I was.