Originally Posted by
pyxichick
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Just my opinion. I've thought of doing the get your guts in gear ride, because it would be cool to meet other cyclists who have IBD, but I figure there are better places for my charity.
In any case, I hope you find a way to support your family members with IBD. It's not something I would wish on anyone.
cheers,
Kate
Kate- Where would you channel your funds? I honestly am interested not in drugs, but a cure. I have found a lot of information on how to help my husband through diet, but I also have found there is only a moderate success rate. My husband's doctor is fabulous, if he feels remicade is needed we will stick with it. Right now keeping my husband off the operating table, out of the hospital and out of pain is my number one priority.
What I want is not to connect with others that have IBD, I don't have it. I want to find a way to channel my energy into something other than frustration. My dad is currently in remission from colon cancer, my husband just got diagnosed with Crohn's, I have a lot of anger I want to use positively. People should not have to deal with the pain these very important men in my life have dealt with.
I am actually intrigued by doing something with my husband and donating the funds to a worthy cause. We just need to find something people will want to support. Maybe we could tour a self (family) supported tour and raise funds. I am still just brainstorming.
Amanda
2011 Specialized Epic Comp 29er | Specialized Phenom | "Marie Laveau"
2007 Cannondale Synapse Carbon Road | Selle Italia Lady Gel Flow | "Miranda"
You don't have to be great to get started, but you do have to get started to be great. -Lee J. Colan