Anyone with Lupus or similar?

[runningteach]

Late posting to this thread, but I have lupus. Everyone is different and what works from some, does not always work for others. My lupus is not really under control and I take a lot of medicine, currently going for infusions of Rutuxin, which has seemed to help. Up until a few years ago I was able to run half marathons and bike for long periods of time. Right now I am happy being able to run for 3 miles or bike for 45 mins. I don't think exercise makes me worse, but when I am not feeling my best exercise will make me more fatigued and achy. My doc gauges how I am doing based on if I am running, lol. No matter what, I do something though. Over the summer I did a lot of walking. I was getting depressed with biking because of how I felt afterwards, but I know even if I rested, I would not feel better. Do what you can. If you have an questions feel free to pm me.

I don't know if you know it, but lupus patients are usually very sun sensitive so make sure you wear good sunscreen. Flares can be caused by the sun. I try to get out early or before daylight (I work and sometimes I have to be out early).