For those of you who Know about my Lorelei..

Lorelei is 6 now by the way, and has been in and out of the hospital for pretty much her whole life. She has an Auto immune disease that is very rare (only 2,000 people in this world have it). Well she is not doing well AGAIN. Her blood work has just gone haywire and her eye's are turning yellow (the whites). This is so frustrating! She does well then crashes.
My poor sister (lorelei is my niece for those who don't know)is beside herself . This always comes about when they try and take her off steroids. this will be the the 3rd time they have tried and and it has turned bad. Last time we almost lost her. PLEASE PLEASE send healing thoughts, prayer's anything you do to have good healing thoughts for other people. Thank you my friends!
I just want to scream right now!!!!!

Oh no, poor kid. Prayers and healing thoughts going up.

Crap! This little one needs to just worry about playground boo-boos. :mad:

Hope she gets to feeling better soon, and comfort juju to Mom and Auntie too.

Poor Lorelei!!! Sending lots of good vibes to you, your sister and little sweet Lorelei. (((HUGS)))

Prayers for your family and especially Lorelei.

Sending all of the healing vibes I again for Lorelei. I am sorry and hope the docs can find the right meds to help her and she goes into remission.

Oh no! Vibes for Lorelei and family coming in from Ohio.

So sorry about Lorelei. Hope she's feeling better very soon.

Life can be so unfair for some, especially for your sweet little Lorelei

Sending her special good vibes and a very gentle hug.

My thoughts to you Brandi and your sister and family too.

(((((Hugs)))))

poor little baby- she's been through so much already. :( Just when I thought she was in the clear...
Sending healing vibes/thoughts/prayers her way!!!

Quote:

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Originally Posted by bmccasland

Crap! This little one needs to just worry about playground boo-boos. :mad:

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Amen to that! Brandi, I will keep your precious niece in my prayers. Let's hope she bounces back quick and becomes a handful again. :)

Me, too. Love and healing prayers for your sister and Lorelei.

Roxy

Awww, poor baby :(. Happy thoughts and prayers to you and yours...

Keep us posted...

Sending well wishes for Lorelei. She and her family will be in my prayers tonight too.

Tell her we're rootin' for her!

What a brave girl. I hope she pulls through!

Love and prayers.

Deb

Sending good wishes for healing and health.

Poor little thing! Good wishes to her, your sister and all of your family.

Poor wee mite, sending love and best wishes from here x

I thought about Lorelei on this morning's ride. I hope that all the positive vibes from this thread get to her quickly!

Thank you all for the power you sent her. She is doing a bit better today and might not have to go into the hospital. They have put her back on steroids full dose. They have tried for a couple years now to wean her off of them. Every time has come to this unfortunately. Well every time they have tried 2 times this being the 2nd time. Last time she ended up in intensive care and we almost lost her.
I REALLY do appreciate all the support here. This is an amazing group of people with such good hearts!
Some day we will have to have a group ride so we can all meet in person!