Lorelei is back in the ER!

Brandi- (((HUGS))) I admittedly have only followed parts of Lorelei's struggle.

Has your sister sought out a specialist in immune systems disease or maybe infectious disease (according to my doctor friend that is where the brilliant minds go)?

I have a neurologic disorder that was out of whack adn the doctor I was seeing didn't listen to me at all. I was able to self-refer my self to a center at Baylor College of Medicine (the best research center in TX) and finally get support and answers. My husband was misdiagnosed with everything from anxiety problems to Strep virus in his stomach to hepatitis before a surgeon stepped in and got him one of the best gastroenterologists in Austin. Only then was he properly diagnosed with Crohn's disease and given care that has really improved his quality of life.

Lorelei, her sister and parents deserve so much more than "we don't know". (((HUGS and PRAYERS)))

My sister says things are a bit better this morning. Which is good. Lore was finally walking this morning even though she says her leg still hurts.

I am sorry to hear about this. I will keep them in my thoughts.

Brandi: I can't believe that this is still going on. I hope the best for her, and am glad that at least she is home and better.

I think AggieAma has a good point -- keep searching for someone who can find the answers. Don't stop until you have them. Otherwise, you don't even know what you are fighting. So scary.

They (and you) are in my prayers.
Jes

((((((((((Brandi, Lorelie, & Family)))))))))))

and I second the motion from LLBloomer. Enough already!

Warm fuzzies coming up from the Big Easy

Lorelei is walking finally. But they want to run more tests on her. My sister just doesn't know what to do. She knows why they want to do this. But it has really damaged lorelei at this point. She is having behavior problems. And that is just a small part. her physical being is needing to be left alone. She has so many scars from all the tests. that has got to be hard on a little soul.
I have been working on a very large sculpture so I haven't had a lot of computer time. Miss you all, miss riding my bike!:(

(((((((Hugs)))))))). Thinking about you, Lore and the family. Hoping for an answer soon. Hoping that Lore doesn't have to get needled, poked and prodded much more. Poor thing.:confused:

Ohh Brandi! I just caught this. UGH!
Huge hugs to all!
There is an answer out there. I just know there is. I'll be praying that someone who has that answer comes into your life. That poor angel needs some relief!
UGH! :(

(((((((Brandi, Lorelei, and family)))))))))
Healing vibes sent.

I wonder if there is some type of medical forum, where you can list all her symptoms and others can get you leads if they sound similar to something they are going through.

Quote:

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Originally Posted by Brandi

Lorelei is walking finally. But they want to run more tests on her.

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Brandi, can your niece be seen by someone at Mayo Clinic? I'm so sorry she's having so much difficulty. I know your family needs answers.

You know my sister finally asked the Dr if there isn't some wonder Dr they could have come in and take a look at her. I guess there is in LA. It would be really nice to have answer's. All this guessing can wear you out.
Thank you all again so much for your support. It really helps! Happy 4th.