Help! I hate to admit this

My husband is a new Crohnie and he is still feeling frustrated. Everytime he has pain or a bout of diahrrea he feels a little hopeless. He is working with nutritionist, but still is waiting to understand his own case.

I myself have a chronic movement disorder. At first the meds were worse than the disease and I felt hopeless. I cried a lot and it is okay. It is a lot to process when you are told your condition is manageable, but not curable. Especially for you, when it is all about food and pain.

My mom told me when I first starting shaking: "Sometimes you have to sit on the pity pot. But then you have to get up, flush and go on."

So sit a while, until you are ready to flush.

(((Hugs)))

Hey, Wahine

Thanks for the support! I think the food adjustment has both a physical and emotional toll. Tonight is much better, so, yay! I am determined to follow the instructions, but still wonder if it's okay to have those spice cubes...they are about 1cm cubed and the last ingredient in them is cornstarch.....I have not yet stopped using them and hope that I don't have to. The rest I am following closely, even bought soy sauce without wheat!

I did email Tam. It took awhile, but I did. She emailed back the next day and I replied right away to that. That was last weekend and I haven't heard back...so that's where that is. She was trying to hook us up with some snowshoeing buddies she knows.

And no, I have not been to Niagra Falls...yet. If we ever go, I'll look for the butterfly place. :p

Hugs and, well, you know,
~T~

Hi, Amanda! I've been wondering how your DH has been doing. Even with the frustrations, is he having steady improvement? I hope so. He's had a very tough go, and, I didn't realize, but so have you! Your support means a lot!!

I am determined that the diet restrictions will be a good thing. I'm looking forward to the weekly weigh in tomorrow morning.

As you can probably tell, I'm not feeling quite so sorry for myself tonight! yay!

Wish your DH well for me and you two take turns "taking care" of each other!

Hugs and beautiful butteflies,
~T~

Jennifer, Duck and Singletrack

Thank you! Your words of encouragement and understanding mean so much!

I'll bookmark this thread and come back to read it the next time I feel so low. You're so wonderful!

You'll all be happy to know that I worked out when I got home tonight. DH held the heavy bag for half of my drills and it was grand! I can hit the bag much harder when he holds it for me. And I even did a two minute drill at the end. I am pretty wiped now, but it feels a lot better than last night did!

And tonight's meal was baked chicken breast in a light marinade I whipped up with papaya, soy sauce, maple syrup and spices. It was particularly yummy.

Tomorrow night we need to find a great recipe for haddock.

Thank you so much. I feel supported, loved, accepted - that's so nice!

Hugs and super fantastic butteflies,
~T~

I just finished reading Mind Body Balancing by Osho.

He describes how as humans, our "normal" is feeling bad. If we feel good, then there is something wrong with us. He says when we see happy people we think something is very wrong with them, and since misery loves company, we will try and "draw them to the dark side" so to speak.

Anyway...he goes on to describe how hard we are on ourselves, our bodies, and because we are so hard on our bodies we can have symptoms and health issues. By listening to our bodies a little more, we can also learn to love our bodies as well.

It has some wonderful lessons, and some wonderful silly little stories to even make you smile. I really loved reading it...

Smile

Hannah

Quote:

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Originally Posted by LBTC

... You'll all be happy to know that I worked out when I got home tonight. DH held the heavy bag for half of my drills and it was grand! I can hit the bag much harder when he holds it for me. And I even did a two minute drill at the end. I am pretty wiped now, but it feels a lot better than last night did!

And tonight's meal was baked chicken breast in a light marinade I whipped up with papaya, soy sauce, maple syrup and spices. It was particularly yummy.

Tomorrow night we need to find a great recipe for haddock.
...

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Oh yes! Hitting something! One of my worst down periods we were lowering the basement floor. DH had borrowed a compressor drill and cut the concrete up into squares. I went down there with a sledgehammer and busted 'em all to pieces, imagining certain people's heads with every thump. Very stress relieving. :D

That chicken recipe sounds great. Hard to find papaya here, but it might be worth the trouble and expense if I could. Papaya's not my favorite fruit (I prefer melon and mango, with papaya somewhere down my list but not rock bottom), but it's s'posed to be good for the digestion and that combination sounds delicious.

BTW ... Crohns can, at least from time to time, be brought under control. Food restrictions can be eased. I've been on a low fiber diet for over a year now after one green apple landed me in hospital. I was told, then and earlier, that one of my problems was strictures due to scar tissue and that I'd likely need more surgery. I said ok, but first get my inflammation under control. If there are still strictures then, I'll go ahead with the surgery. Lately I think the inflammation is finally under control, and ... hey, not even the strictures are bothering me. I can eat a whole orange and not suffer for it after :D I can eat popcorn :D Tonight I've decided I'm fed up with cooked carrots and have made them grated instead :D So, maybe I don't need surgery after all, at least not just now. :cool: :)

Just thought I'd let the rest of us Crohnies out there that there are breaks in the tunnel, periods of light.