View Full Version : For those of you who Know about my Lorelei..
Brandi
05-26-2011, 09:30 AM
Lorelei is 6 now by the way, and has been in and out of the hospital for pretty much her whole life. She has an Auto immune disease that is very rare (only 2,000 people in this world have it). Well she is not doing well AGAIN. Her blood work has just gone haywire and her eye's are turning yellow (the whites). This is so frustrating! She does well then crashes.
My poor sister (lorelei is my niece for those who don't know)is beside herself . This always comes about when they try and take her off steroids. this will be the the 3rd time they have tried and and it has turned bad. Last time we almost lost her. PLEASE PLEASE send healing thoughts, prayer's anything you do to have good healing thoughts for other people. Thank you my friends!
I just want to scream right now!!!!!
OakLeaf
05-26-2011, 11:20 AM
Oh no, poor kid. Prayers and healing thoughts going up.
bmccasland
05-26-2011, 11:49 AM
Crap! This little one needs to just worry about playground boo-boos. :mad:
Hope she gets to feeling better soon, and comfort juju to Mom and Auntie too.
Aggie_Ama
05-26-2011, 01:47 PM
Poor Lorelei!!! Sending lots of good vibes to you, your sister and little sweet Lorelei. (((HUGS)))
VeganBikeChick
05-26-2011, 01:52 PM
Prayers for your family and especially Lorelei.
runningteach
05-26-2011, 03:05 PM
Sending all of the healing vibes I again for Lorelei. I am sorry and hope the docs can find the right meds to help her and she goes into remission.
Owlie
05-26-2011, 03:13 PM
Oh no! Vibes for Lorelei and family coming in from Ohio.
nancielle
05-26-2011, 03:23 PM
So sorry about Lorelei. Hope she's feeling better very soon.
ClockworkOrange
05-26-2011, 03:25 PM
Life can be so unfair for some, especially for your sweet little Lorelei
Sending her special good vibes and a very gentle hug.
My thoughts to you Brandi and your sister and family too.
(((((Hugs)))))
Tri Girl
05-26-2011, 03:55 PM
poor little baby- she's been through so much already. :( Just when I thought she was in the clear...
Sending healing vibes/thoughts/prayers her way!!!
sundial
05-26-2011, 04:36 PM
Crap! This little one needs to just worry about playground boo-boos. :mad:
Amen to that! Brandi, I will keep your precious niece in my prayers. Let's hope she bounces back quick and becomes a handful again. :)
channlluv
05-26-2011, 05:17 PM
Me, too. Love and healing prayers for your sister and Lorelei.
Roxy
ASammy1
05-26-2011, 05:31 PM
Awww, poor baby :(. Happy thoughts and prayers to you and yours...
Keep us posted...
sgtiger
05-26-2011, 08:29 PM
Sending well wishes for Lorelei. She and her family will be in my prayers tonight too.
KnottedYet
05-26-2011, 09:26 PM
Tell her we're rootin' for her!
NbyNW
05-26-2011, 09:52 PM
What a brave girl. I hope she pulls through!
blackhillsbiker
05-26-2011, 10:06 PM
Love and prayers.
Deb
PamNY
05-27-2011, 06:29 AM
Sending good wishes for healing and health.
roadie gal
05-27-2011, 06:55 AM
Poor little thing! Good wishes to her, your sister and all of your family.
Poor wee mite, sending love and best wishes from here x
redrhodie
05-27-2011, 07:35 AM
I thought about Lorelei on this morning's ride. I hope that all the positive vibes from this thread get to her quickly!
Brandi
05-27-2011, 08:52 AM
Thank you all for the power you sent her. She is doing a bit better today and might not have to go into the hospital. They have put her back on steroids full dose. They have tried for a couple years now to wean her off of them. Every time has come to this unfortunately. Well every time they have tried 2 times this being the 2nd time. Last time she ended up in intensive care and we almost lost her.
I REALLY do appreciate all the support here. This is an amazing group of people with such good hearts!
Some day we will have to have a group ride so we can all meet in person!
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