MS Study Enrollment

[itself]

Hi All,

I work with Arizona Heart Institute. Dr. Ted Deadrick is the founder. Recently, he is working with an italian doctor who has some interesting findings in helping patients with MS.

A very rich local Scottsdale family has a daughter with MS. They found out about this italian doctor doing some research around curing MS. They have found that MS patients consistently show clogged jugular veins. Dr. Deadrick put two balloons in these areas after the scan showed they were clogged. Her MS symptoms disappeared.

Call 602-707-3535 to enroll. They are enrolling 200 patients at the Lifeguard Clinic. As many of you know this is very early and these studies take years, let alone approval in the US. Also, one complicating factor is that there are I believe 4 stages of MS. They are not sure what the outcomes will be with people in the latter stage. At present, people are flying in from all over the country for this study.

If I had MS, I'd be flying my butt to Italy. I hope this helps. Google CCSVI for more information.
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[Crankin]

Do you mean Dr. Ted Dietrich?

[indysteel]

NPR did a story about this recently:

http://www.npr.org/2011/01/31/133247319/doctor-challenges-cause-of-ms-and-treatment

Per the story, the procedure is somewhat controversial. I don't link to it to discourage anybody from entering into the study or to otherwise express an opinion as to the procedure (especially since I know next to nothing about MS). I just thought the story was worth reading/listening to.

[itself]

Yes, Dr. Ted Dietrich! 76 yrs old and still going high speed!

[goldfinch]

NPR did a story about this recently:

http://www.npr.org/2011/01/31/133247319/doctor-challenges-cause-of-ms-and-treatment

Per the story, the procedure is somewhat controversial. I don't link to it to discourage anybody from entering into the study or to otherwise express an opinion as to the procedure (especially since I know next to nothing about MS). I just thought the story was worth reading/listening to.

Oh no! My first post and it doesn't have to do with biking. Sorry!

Anyway, this procedure (jugular vein balloon angioplasty or stent) isn't just somewhat controversial it is very controversial and there are substantial and many unknown risks. Venous angioplasty isn't a standard procedure for anything so it is hard to evaluate risk. Nevertheless, there have been people who have died as a result of these procedures, including during a study conducted in the US. The underlying theoretical basis for the procedure is iffy. The chance of a placebo response is extremely high. Please do not rush to join any study in a foreign country and really do your homework. There is way too much hype, emotion and anecdotes on the internet regarding this procedure. Talk to real medical professionals who understand evidence based medicine. Really educate yourself on placebo response issues, especially for MS treatments. Keep in mind that the original work done by Zamboni that started this whole thing has a variety of methodological issues. You should know what they are and be able to articulate what the research actually shows in contrast to the hype before deciding whether you want to put yourself at risk.

Sorry for the lecture.

[itself]

goldfinch,

Thanks for the information. The gal here in Scottsdale that was "cured" posted on facebook. It's been crazy with calls at the Institute.

It's a tough disease, and your points are well taken about the risks. And it needs to be well thought out. Very interesting that the placebo affect is as strong as it is.

Thanks again for your post, not a lecture at all!