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KnottedYet
03-22-2010, 07:16 AM
Running barefoot not daring enough for you?

How about running a 5k in your underwear? :D

Event t-shirts becoming passe'?

How about a pair of event boxer shorts? :D

www.undy5000.org

The "Undy 5000" is a 5k (and a 1 mile fun run/walk) to raise colon cancer awareness and rake in some moola for the Colon Cancer Alliance. It's $30 for adult registration, and you are encouraged to do some fundraising as well. Fundraising is NOT required. There are some groovy prizes for runners who are able to weasel a lot of money out of their friends and family, though.

I'm planning to do this one. Cuz I want the boxer shorts, dude! (I will not, however, be running in my underwear. Some sights are best left unseen.)

Trek420
11-15-2018, 07:02 PM
Running barefoot not daring enough for you?

How about running a 5k in your underwear? :D

Event t-shirts becoming passe'?

How about a pair of event boxer shorts? :D

www.undy5000.org

The "Undy 5000" is a 5k (and a 1 mile fun run/walk) to raise colon cancer awareness and rake in some moola for the Colon Cancer Alliance. It's $30 for adult registration, and you are encouraged to do some fundraising as well. Fundraising is NOT required. There are some groovy prizes for runners who are able to weasel a lot of money out of their friends and family, though.

I'm planning to do this one. Cuz I want the boxer shorts, dude! (I will not, however, be running in my underwear. Some sights are best left unseen.)

Bumping this because ... sad to say but Knott’s been diagnosed with colon cancer. If we’re able, we plan on doing this AND Mercer Island 5k. Both benefit the cause.

rebeccaC
11-16-2018, 12:24 AM
Soooo sorry to read this, wishing strength of spirit to both of you!!!!!!! Be strong….your strength can help make her stronger when needed

Alex put a note on our refrigerator that just said Listening, Learning, Loving, and most of all Laughter. She helped my strength in those and so many other ways.

a loving ((HUG)) to both of you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Trek420
11-16-2018, 07:08 PM
Thanks all. Yes she is swell. We’re taking this adventure step by step. It really teaches you to enjoy the time you have.

If you’re 50 or older get a colonoscopy. Really not that bad. There are good meds, you won’t even know it’s done. If younger than 50 and there’s cancer in your family ask your doctor to do this earlier. We’re crossing our fingers that it’s early enough.

Crankin
11-17-2018, 03:57 AM
Thinking of you both. Knott is really a resource to this forum and I miss hearing from her!

And, I would not run in my undies!

north woods gal
11-17-2018, 06:41 AM
My husband is a colon cancer survivor, so just letting you know that it can be beat. Stay strong.

Trek420
11-17-2018, 11:36 AM
My husband is a colon cancer survivor, so just letting you know that it can be beat. Stay strong.

We’re doing our best. She beat cancer before (melanoma). So in her words, going for the collection. :confused:

Trek420
11-20-2018, 04:25 PM
So tomorrow is a PET scan. This is a test to see if there are any other bad guys in there other than the gut and if so where and what size etc. To prep for this she needed a whole day no exercise and of eating only protein and fat. It’s interesting how after a day of pate’, scrambled eggs cooked in olive oil with cheese ... she’s craving sugar.

So I’ve packed some Theo’s chocolate as a reward when the test is done in the morning.

Crankin
11-23-2018, 03:22 AM
Excellent plan...

rebeccaC
11-23-2018, 04:44 AM
hoping the scan went well and with no new bright spots!!
…and theo’s ghost chili caramels ftw :)

ny biker
11-23-2018, 09:31 AM
Trek, I'm so sorry to read this. Thanks for letting us know. I hope the treatment goes well.

You are right that a colonoscopy is not a difficult test. I didn't love the prep but it was not as bad as I had feared.

Best wishes to you both.

Trek420
11-25-2018, 06:36 PM
hoping the scan went well and with no new bright spots!!
…and theo’s ghost chili caramels ftw :)

Knott’s a milk chocolate fan. I’ll look into that one. We love Theo’s.

I know that doctors get time off. But couldn’t they get up from Thanksgiving dinner or football and read her tests?

We should have results tomorrow. It’s been hard to wait. But my MIL was here for the weekend. She has a lot of support and great family.

withm
11-29-2018, 09:26 PM
Knot & Trek - Very sorry to hear this. I wish you both well. From one who’s been there.

Trek420
11-30-2018, 07:08 PM
Knot & Trek - Very sorry to hear this. I wish you both well. From one who’s been there.

Thank you!

Trek420
12-03-2018, 07:42 PM
I am not mechanical at all. Putting my new Cycleops indoor bike trainer together (Happy Hannukah to meeeee) is a challenge. But so cool to have one again. This will allow me a bit of a work out.

Knott will be starting chemo soon and I’ll want to stay nearby.

north woods gal
12-04-2018, 08:29 AM
Yeah, my indoor trainer is something I love to hate, but it sure does have a place in my biking. My Cycleops allowed me to stay in condition while recovering from my accident, last summer. Only biking I could do (with the doc's permission) for almost two months while I recovered. When I did get to ride, again, my trainer workouts allowed me to get back to peak riding shape much faster than I would have without it. Nice option to have, too, when temps get below zero.

Trek420
12-04-2018, 02:36 PM
Yeah, my indoor trainer is something I love to hate, but it sure does have a place in my biking. My Cycleops allowed me to stay in condition while recovering from my accident, last summer. Only biking I could do (with the doc's permission) for almost two months while I recovered. When I did get to ride, again, my trainer workouts allowed me to get back to peak riding shape much faster than I would have without it. Nice option to have, too, when temps get below zero.

Days are getting shorter, trails are icy ... it’ll be good to be inside and keep me near the patient.

Now to figure out if I have all the parts. :)

ny biker
12-04-2018, 08:04 PM
With January-like temps already here, I'll be getting my indoor trainer out of storage soon instead of waiting until January like I usually do. I just have to motivate myself to ride it...

I hope the chemo goes well!

Trek420
12-05-2018, 09:30 AM
With January-like temps already here, I'll be getting my indoor trainer out of storage soon instead of waiting until January like I usually do. I just have to motivate myself to ride it...

I hope the chemo goes well!

Thanks. Gosh us too. We’re hoping they choose to use immunotherapy. Since her oncologist is one of the leading researchers in that field could be. We’ll know more today.

Back to biking; it’s very cold and icy outdoors. In the past I watched football on the trainer; moderate fast pace during the game, stand or sprint through ads. It’s surprising how many ads and how much of the programming is advertising.

So this works pretty well as HIT. Problem is we don’t have a TV. We stream everything.

So far I’m listening to podcasts but they don’t have the same functionality of the ad break. I might try a service like Rouvy, a Spotify list or streaming a game.

ny biker
12-05-2018, 05:11 PM
Sometimes I use music -- an uptempo play list. One song easy, next song hard effort, next song half easy, half moderate effort, etc. Or shift to a hard gear for the chorus and easy for the verses. Stuff like that.

I would think someone somwhere has made podcasts for indoor cycling intervals...

Trek420
12-06-2018, 04:33 PM
I would think someone somwhere has made podcasts for indoor cycling intervals...

Spotify to the rescue; dozens of play lists. I’m starting a playlist for my rides. On Spotify you are welcome to add your faves to my list;

Knott Dead Yet I love booty, out spin colon cancer

north woods gal
12-07-2018, 07:02 AM
Another fan of music for indoor riding. I just put on the headphones and use some of my playlists my iPod. The music helps get me motivated to ride indoors. It's the only time I listen to music when I ride. This time of year, I'll also have a thermos of coffee to sip on in the bottle cage on the bike. That helps, too.

Trek420
12-07-2018, 01:05 PM
Normally I watch football while riding indoors. Hear me out on this, it’s perfect. You do a fast regular pace during the game, then sprint during all the ads. It’s near perfect HIT. I’m not a big fan normally but this works.

Problem is we don’t have a TV so Spotify it is unless I stream a game somehow.

Off to set up the bike.

north woods gal
12-08-2018, 07:37 AM
If I had to pick a sport to watch while on the trainer, I think it would be something faster-paced. Basketball would get me in better shape. :)

Trek420
12-17-2018, 08:15 PM
If I had to pick a sport to watch while on the trainer, I think it would be something faster-paced. Basketball would get me in better shape. :)

I don’t really get strategy of basket ball. It seems just run ... dunk ... run ... dunk. I know there’s much more to it. But I “get” football somewhat. Today though I listned to This American Life podcast while on the bike.

Knott starts chemo on Thursday. :o

rebeccaC
12-20-2018, 01:10 PM
Let us know how you are she are doing. Thinking about you both.
+1
wishing strength and bravery for both of you!!!! looking at cancer as just one chapter in our life, not our life story…can help.

I like to say that i had cancer, cancer NEVER had me.

Trek420
12-20-2018, 01:53 PM
First chemo treatment today and so far is kinda boring. But boring is good.

wnyrider
12-25-2018, 04:58 PM
Wishing you and Knott more "boring" chemo treatments.... meaning better health prospects and more going into 2019!

Trek420
12-26-2018, 11:11 AM
Wishing you and Knott more "boring" chemo treatments.... meaning better health prospects and more going into 2019!

Thanks. Day 4 and 5 were supposed to be the worst but she actually did well. Her appetite came roaring back. I made posole made with some local happy pigs. Well, they were happy up to a point in their lives. We pigged out. Chemo fatigue is definitely a thing and we take it slow. But we have taken a few walks and both are thinking of starting the RBG workout as something she can do inside.

I’m definitely thankful that she’s already in good shape and that’s our starting point. If she wasn’t this’d be a whole lot harder.

rebeccaC
12-27-2018, 07:28 AM
since we both live in states with legal cannabis i'll say it helped me with both fatigue and nausea. my riding was replaced with walks for awhile but even short rides helped me, especially mentally.
...and yes the help of starting with a strong body/mind is a good reason to stay that way normally!!!!!

Trek420
01-06-2019, 05:40 PM
since we both live in states with legal cannabis i'll say it helped me with both fatigue and nausea. my riding was replaced with walks for awhile but even short rides helped me, especially mentally.
...and yes the help of starting with a strong body/mind is a good reason to stay that way normally!!!!!

Knott was very concerned about nausea. Her nurses said of the anti nausea meds to take them at the first sign of anything, really anthing feeling odd. So she took them on schedule then gradually started with a few drops of CBD oil in her tea and so far is totally off the nausea meds.

Session 2 is on the 10th and we’ll see how that goes. I can’t say “so far so good” about cancer but it’s better than anticipated. I do read that things will get worse as the chems build up. :(

rebeccaC
01-08-2019, 11:41 AM
i’m an advocate for medical cannabis being available and affordable to all. With my oncologist we worked out a cannabidiol strategy that helped more and with less side-effects than the first anti-nausea medication’s she prescribed.

Each person can have different side-effect strength and timing during treatments. I was consistent in journaling about my side-effects which helped in my discussions with my medical team….and kept me more informed about how my body was reacting and what strategies were helping..……and as always wishing for positive and healing actions/thoughts for knott and caring strength and blessings for both of you!

Trek420
01-20-2019, 11:35 AM
i’m an advocate for medical cannabis being available and affordable to all. With my oncologist we worked out a cannabidiol strategy that helped more and with less side-effects than the first anti-nausea medication’s she prescribed.

Each person can have different side-effect strength and timing during treatments. I was consistent in journaling about my side-effects which helped in my discussions with my medical team….and kept me more informed about how my body was reacting and what strategies were helping..……and as always wishing for positive and healing actions/thoughts for knott and caring strength and blessings for both of you!

I think Knott’s scientific bent helps. Like you she jounals medications which helps her keep track of when she takes them. There are so many. Timing is important to avoid over or under dosing.

There have been several positive indications leading her to quip one day “Well. I might not die ... yet” But I don’t want to talk about them because I don’t want to jinx results. At least I can say for sure she’s getting chemo, she’s not the test subject getting sugar solution only. ;) otherwise there’d be no effect.

She’s upset that she’s visibly losing muscle tone. I can tell just putting a hand on her thigh there’s less muscle there. But the first week, especially the first 5 days after chemo she’s almost stuck in bed. This effects me too because I can’t get out. But we’ll take this step by step. I’m cautiously optimistic for positive results and then starting a recovery workout program. This either at the end of chemo or after surgery.

I’m not looking FORWARD to getiing back in shape. Easier to stay there then to get there. But hoping we can atart then.

Trek420
03-27-2019, 05:43 PM
Knock knock

Who’s there?

Tumor.

Tumor who?

Tumor treatments.

withm
03-28-2019, 02:30 PM
I’ve been thinking about you two. So sorry you have to go through this. I know it’s not much fun. Hope things are going as well as can be expected. Hopefully this time next year you are back to two-wheeled adventures.

Trek420
04-01-2019, 07:22 PM
Thanks. Chemo is not much fun. By a few days before the next treatment knott feels almost good enough to take a bike ride but the neuropothy makes her nervous about control. Wondering if anyone else has feeback about getting back in shape after chemo?

snapdragen
04-04-2019, 06:59 PM
Just saw this, sorry to say I'm not around much. Knott & Trek, I hate that you are going through this. Chemo sucks, I know. My main issue post chemo was getting my energy levels back. It's rough, and they may not come back 100%, but they come back, and that's what counts. I wish you both peace and a return to good health.

Trek420
04-06-2019, 07:51 PM
Just saw this, sorry to say I'm not around much. Knott & Trek, I hate that you are going through this. Chemo sucks, I know. My main issue post chemo was getting my energy levels back. It's rough, and they may not come back 100%, but they come back, and that's what counts. I wish you both peace and a return to good health.

Thanks. Session 7 now done. 1 more to go! Tomorrow she should start back on the upswing. Cancer and chemo both suck but we are learning coping strategies. For instance it took a while to figure out she gets dehydrated. We never said we’re smart, just cute. Something in the concoction makes her sweat a lot combined with difficulty swallowing at first. Even though she drinks lots of water still gets dried out.

I’m figuring out the foods to keep her hydrated. Favorite jello salads anyone? But hope to be on an upswing tomorrow.

Geonz
04-08-2019, 06:10 AM
I remember learning the pinch test for dehydration https://www.youtube.com/watch?v=KSo0Cwhsm-A
... won ton soup was a favorite for my mother..

Trek420
04-09-2019, 10:02 AM
But as cyclists we use the color of the pee test. Problem is on organized rides it's blue.

Thai Kitchen instant soups are good. Takes only a couple of minutes to cook. Can be endlessly doctored; add an egg, veggies like chives or chard from the container garden, chicken or pork ... as of today her appetite is roaring back. So Chef Trek is just trying to keep up. Always a good sign.

This last round or last for a while will be tough. Normally she's feeling almost normal by the last 2-3 days of the round. So we get a tiny rest before starting hell anew. Her doctor's going on vaycay so next session is bumped earlier one day. Means not much of a break or none.

Argh.

rebeccaC
04-14-2019, 06:23 PM
yeah i cherished those few days of feeling somewhat normal between treatments!!...hoping this is an ending to chemo and the beginning of putting it behind.


We never said we’re smart, just cute.
:)
and...((HUGS)) to two cuties.....

Trek420
05-02-2019, 06:03 PM
So PET scan, CAT scan done. Why no DOG scan?

Finally some good news. :D The metastasize in her liver is gone, vanished, deleted, missing, MIA ... gone.

The tumor on her colon is the same size but it’s not as hot. Less active. So now her oncologist talks to her surgeon and we start seeing appts with him. It’ll be anywhere from 8 - 12 weeks till surgery.